CA125 test result 90

Hi. I'm a 46 year old female and I've been having abdominal/gastric problems since last December after coming off the contraceptive pill in August 2019. My symptoms seemed to get worse monthly and seemed to tie in with my monthly periods. I had blood tests done last week and found out that my CA125 result was 90. I'm now on a two week wait for an urgent scan to find out if I have ovarian cancer. I'm pretty terrified to be honest and wanted to know if anyone out there has experienced the same type of situation?

Thanks

**Update 18th Dec - had my ultrasound yesterday that looked at my upper abdomen, lower pelvic area and ovaries. The sonographer was able to give me information at the time. She found nothing glaringly obvious of concern and said my ovaries looked fine. She said that the bowel is never very visible  on an ultrasound so my gp may want to look into that further. It's a really good outcome and i just wanted to post this update to reassure anyone who may have a raised ca125 that it's not always  bad news. Hope this helps.

  • Thank you for taking the time to send the info especially when you have so much going on yourself.

    I have read a lot of info myself. I'm like you, I feel better knowing info and I do it in a way where I don't let my mind run away with me and only read the bad stuff. I genuinely want a fair representation of what I think I'm going through. For me no knowledge is more worrying! 

    I'd read up about endometriosis, bowel endometriosis, fibroids, dysmenorrhea, adenomyosis etc. and how the time of the month can affect the result. I think when I got an elevated d-dimer test at the weekend it just added to my worry. Hearing that a medical person had told you that information recently, had a much bigger impact than anything I could read on the internet! I don't think I realised just how worried I am. I hid it from myself very effectively!

    I don't know who will be doing my scan, the letter just states that it been requested by a consultant. Did you know beforehand who would be doing yours or did they just let you know on the day?

    Anyway, enough of me! How are you doing? Are you feeling any better today? X

  • I think we are quite similar. I know there is a lot of incorrect and misleading information out there, but I do feel I'm not bad at focussing on scientific papers and legit sites.

    im ok, struggling to focus on work it I'm honest. It's a new job too so feel like I need to make impressions but can't. Not that it feels be important right now.

    I took ibuprofen, paracetamol and bus plan last night (recommended by the gastro consultant I spoke with). It helped but I'm still so uncomfortable. Still super worried about mri and the results but will try and focus on Christmas for the kids. 
     

    I didn't know who was doing the scan until the day thinking about it. What time is yours? X

  • Yes, I think we do seem similar. To be honest its nice to 'meet' someone who doesn't think that 'you shouldn't google medical stuff'. It's not the googling that's the issue, it's the interpretation of what you read, understanding it all, and ensuring it's being done in a reasoned way. I find information reassuring - for me the unknown is far more scarier!!

    It is tough to focus on work. I'm working today from home so that's helping to distract me! I know what you mean about wanting to make a good impression, but once this initial worrying period has passed you'll be able to make up for any lost time. Your health is more important right now.

    I imagine Christmas is going to be a bit of a tougher one than normal (in more than one way!). We'll get through it and hopefully look back on it, knowing that we can cope with more than we realise!

    My scan is at 1.30pm. Wish it was over with to be honest then I could concentrate on Christmas a little more.

    x

     

  • I've sent a friend request over. Maybe we can exchange numbers and support each other through this :)

    Ive found this forum to be really helpful actually. Lots of people have been kind enough to respond to me and let me know their outcome. It's so nice to see people pulling together and support one another.

     

    I'm really hopeful that your scan will be super reassuring for you tomorrow. 
     

    It's hard with covid too and not being allowed someone with you. They ended up letting my husband in thiugh because I was so distressed. I found this was so helpful because since the scan (when I was obviously so worked up and not able to focus), it's been good to ask him "did she definitely say my liver was ok?", "did I hear her say this?" Etc. 
     

    there was a lot of questions I do wish I'd asked now so

    Maybe make a list tonight.

    I'll be thinking of you x

  • Hi

    I've accepted your friend request.

    Yes - the support on here is so helpful and invaluable. Thanks for all your help and advice - appreciate it.

    x

  • Hi just wondering how u both got on going through same thing raised ca125 clear ultrasounds show pcos tho. Waiting on results of ct scan 

  • Hi Selena,

    My ultrasound showed nothing that was obvious and that my ovaries looked fine. I'm being referred to gynaecology in the new year but as far as having a raised CA125 - all seems to be ok.

    Hope you're doing ok and that it hellps you knowing that its not always a bad outcome

  • That's good have just been worrying about it being raised and what the ct will show. Thank you so much for your reply. Did they say why they thought yours was raised. I know my doctor being cautious which is a good thing. It's just waiting. 

  • Hi Selena,

    With Christmas and the New Year - I haven't as yet been able to have a follow up appt with my dr to discuss the outcome and why my ca125 may have been high. My dr did call me and said she would see me in the new year and go through next steps. Looks like I'm being referred to the gynae dept. Hopefully it won't now be anything serious and we can find out whats causing my symptoms and rectify the problem. Hope you're doing ok. Try not to worry. I know its easier said than done though.

    Take care x