Hey lovely, 

I am so glad you have your appointment through, make a list of questions you want to ask they may cover most of them before you get a chance to ask. Will help if you are like me and your mind goes blank at important times. Also write down your symptoms, especially the newer ones, every bit of information may help. My hubby cringes when I get my notebook out!

Whilst it is a week away, time will go quicker than you think. 

Got my appointment tomorrow, have had nervous tummy all day today and know I won't get much sleep tonight. Am hoping things will be clearer after tomorrow and there will be a plan of action with regards my op.

Let me know how you get on next week xxx

Hi Loulen, 

Great tip, that's such a good idea. I'll be sure to find a little notebook to jot all my questions and symptoms down. Thank you :) 

I hope your appointment goes really, really well and you come away from it with more peace of mind about what the next steps are. And of course, I wish for the very best result to come out of it. 

Let me know how you get on. Sending hugs of support your way xx

Hi all, hope I'm ok jumping in this thread. And I hope you're all doing ok.

ive had raised ca125 levels and very single one of OC symptoms. I have an ultrasound today and I'm terrified. I'm having very dark thoughts all the time. 
 

i love reading about all the positive outcomes on here but I'm so afraid that I left my symptoms too long and that it will be the sort and have spread too.

sorry. I'm so afraid 

just looking for some chat and some support.

i wish us all the very best of health x

Hey Freckles88, 

It's perfectly ok to jump in on this thread, we're all here to support each other :) 

It's important not to let your thoughts run away with you, even when you're feeling lots of symptoms. I know the feeling all too well. 

As you've mentioned reading other positive outcomes, you've likely heard all of this before, but I know it's reassuring to hear again and again: The symptoms you're feeling have a very real chance of being something entirely unrelated of OC. A raised CA125 can be for many, many other reasons. Infection, benign cysts, endometriosis, fibroids, and even where you are in your cycle. 

You'll know much more after your scan. If they do refer you on for more investigation, don't worry. They refer most people on if there's anything other than a simple liquid-filled cyst. They're making sure to be thorough. It doesn't mean they think you have OC. Even if it's suspected, many complex cysts turn out to be perfectly benign. 

I hope your ultrasound brings you more peace of mind. Sending lots of support your way. 

Let us know how you get on xx

Hi McNervous,

Truly, thank you for your response.

im indescribably happy to report a 'normal' scan. I say that because she said my ovaries have lots of little cysts in but assured me this is benign. She didn't know is PCOS could caused raised ca125 and the bloating and aches I've been having.

i have an appointment with the gynaecologist tomorrow and so I will write down all my questions and report back. 
 

i honestly feel so happy and so relieved and so shocked as I think my severe health anxiety had connected all the dots in a bad way. I had some very dark thoughts yesterday. 
 

i wish everyone going through this all the very best because I've learnt a lot about OC in the last few days and it's so scary. My heart genuinely bleeds for those who get a diagnosis.

here's to living life to the full!

thanks ever so much again. Kim

Delighted to hear you got good news! That's fantastic.

PCOS could very well raise your markers if you had a little bit of inflammation going on as a result of that. I too have PCOS (and a questionable cyst which I hope ends up being benign) and it can cause a whole lot of bothersome symptoms. 

You can breathe a big sigh of relief now :) 

xx

Thanks so much for being such a support. 

This entire experience has taught me so much. 

Hey lovely

How did you get on today? Any clearer with what's going on?

I had my appointment last week, we were only expecting a 15-20min appointment but ours lasted 1.5 hours. They went through everything, whilst some of it was very hard to hear and I had a few melt downs there was nothing new and no nasty surprises.  They still can't be sure what I have but there is a 70% chance it is malignant. They think it could be a stage 1a or 1b and there are no signs it has spread - but they won't know until they get it under a microscope. They went through the op, that was pretty scary but I will know by the time I wake up if it is cancer or not as they do a biopsy whilst I'm in theatre. 
I met the consultant, and one of his surgical team members, he was very pregmatic and wouldn't talk about treatment after the op, he was very much of the option 'we don't really know what we are dealing with, once we do then we can talk more'. No matter what or how I asked he wouldn't be pushed into saying anything. I really liked him.

I even managed to get a date for my op, it's longer than I wanted to wait but there isn't a way round it, he told me not to bother trying to go private as the wait was just as long! 
All in all it was a good meeting considering the subject, I walked out feeling positive but crikey the thought of the op scares the life out of me! 
Still a very scary time ahead but at least we make Christmas special for our little ones. 
Let me know how you got on today if you feel like talking about it x

***UPDATE***

Sorry for taking so long to update this thread. A family member passed away really close to Christmas, and everything just became a bit of a blur. 

So, what happened to me was, and still is really confusing. As you'll know from this thread, I had an internal U/S where they found a "complex cyst". I was then fast-tracked for a CA125 blood test which was normal, but due to the imaging, my GP put me on the urgent two-week cancer referral list. I got an appointment within about 7 days and I was terrified this meant something bad. 

So I got to my appointment, already in tears and the gynae/oncologist (I think?) said that there was nothing remotely worrying on my U/S imaging. She wasn't even sure what they had seen. She said the image quality was super bad too and that she was going to do another scan right there and then to prove her conviction that I was fine. I was in shock. She did the scan and confirmed that there was NOTHING there. My ovaries are slightly polycystic, but I knew that anyway.

She said what they probably saw was a follicle while I was ovulating, and that it was likely flopped over on itself. She said her machine was a much higher spec than the one used in my initial U/S and that she was happy to send me on my way. As I was leaving, she said I most definitely DO NOT have cancer there. 

I walked home in a daze because I honestly didn't know how to process this. Everything had been so, so urgent and terrifying. They had been quite certain that I had a complex cyst on my ovary 2cmx2cm and everybody who contacted me was acting like this was potentially very serious. To be told it was *** images on a bad machine made me feel a mixture of relief and anger. 

I also wanted to add this here to let you know that just because something can look bad, doesn't mean it 100% is. I really really hope you all have the best outcomes from your investigations too.