Really worried about CA 125 results

Hi. I am 43 and for the last 2 moths have been going back and forth to my doctor's thinking I had a urine infection as I have needed to go to the toilet a lot more than normal. My urine tests have always come back normal and so I was referred for blood tests. My CA 125 level has come back as 39. I am not sure if that is really high or not but have now googled and read it can be an indicator of ovarian cancer. I  am booked in for a ultrasound and a transvaginal scan this Sunday and am terrified of what they might find. Has anyone else had a an above normal ca 125 and was it something simple.

Many thanks for reading. 

  • Hi all,

    I have a bit of an update. I had raised ca125 levels between 50-95 for a year and had multiple clear ultrasounds and a normal CT. I was referred for a diagnostic laparoscopy which I had 3 weeks ago and stage2/3 endometriosis was found, I’m still awaiting biopsy results from peritoneal washings and polypectomy  and will hopefully get these on Tuesday.

    sending love to you all, it’s not an easy wait xx

  • Hi Ladies I hope you don’t mind me joining in on this conversation.. it is 3:40 am and all I have in me is worry! I have suffered from constipation for well over a year and have been on laxatives the whole time… over the last 2 weeks my tummy has bloated so big I went to the doctors .. they have given me every laxative/enemy you can think of but my tummy hasn’t gone down .. so I had to go back ..they did blood test Wed 3rd , rang me on the 4 th to say my CA125 was 69 and they have referred me for an urgent scan…. I am absolutely beyond myself my tummy is still huge, I have cramps in my pelvic area and back ache .. I am 59 post menopause and am terrified I have ovarian cancer as if I have  I think I may have had it a while due to the constipation for over a year! 

  • I know this was 2 years ago but wondered what your of one was as going through the same thing right now x

  • Hi all, I have just come on here as I am worrying myself sick, I am post menopausal and had a bleed dr took bloods and sent me for 2ww scans my ca125 levels are 55 but the dr at tthe scan said my womb lining looked fine and she would send my results to dr on Monday,, I called the dr no results but then received a call from hospital say the gynaecology wanted me to come in for a face to face appointment in two weeks. Has anyone else had a solitary experience 

  • Hi 

    just came across this post. I’ve just had my ca125 back at 92 level I’ve just started HRT and I’ve been booked for an urgent scan. I’m absolutely petrified. I was on my period when I had my blood tests so I’m hoping it’s this. I’ve already googled myself to death

    it has been nice reading this it’s put me at ease a little bit my anxiety is through the roof 

    the 2 week wait is going to feel like forever 

  • Hi all

    this thread has been a real comfort this evening.

    my ca125 level was 41 and I've been beside myself with worry. Now it feels like hoping is almost tempting fate, as it's a small elevation.

    scans for me next Thursday. 

    im 42, attended the GP with period issues. I'm praying it's not OC. My MIL had it 25 years ago and died. I'm so worried.

    sending love to all x

  • Hi, I also had a blood test and my CA125 level is 42, I am bricking it now.

    have you heard back? 

  • Hi, I have just got my ca125 results and it is at 42. I’m absolutely petrified. Just wondering what happened in the end?