Another update - after lots of messing around I've finally been given an appointment with my plastic surgeon but it's 5 weeks away !!

This is just for a consultantation so if I need an MRI , I'm looking at another 8 weeks before I have any idea why it keeps swelling up . 
 

I am going to ask to be put on their cancellation list but I don't want to come across as too pushy ! 

Hi PinkLadyAppleCourt. You really need to be referred to the breast clinic where they are more likely to have knowledge of BIA ALCL and will hopefully be able to rule it out for you through testing. This is the most important step. Your surgeon should be after the testing and your results will inform how the surgery is done. If you have textured implants, regardless of whether you have BIA ALCL, I think the advice is you have a full capsulectomy at the time of explant to prevent it from developing which can still happen when implants are removed if the capsule remains. They'd also want to send away some of the capsule for testing, even if the fluid tested previously was negative for BIA ALCL. Please do be more pushy. This is your health and there's nothing more important. 
 

Can I persuade you to join the BIA ALCL Facebook group where you can get a lot more advice and support to guide you through next steps and material to educate your doctors on why you should be testing now rather than waiting for an appointment with your surgeon? If you send me a private message with your real name, I'll make sure you're accepted very quickly.