Thanks for your reply! :) How are you doing now after all of this?

I have now been told my case is going to an MDT meeting, to be discussed Thursday morning and they said they would call me Thursday afternoon. It's all incredibly worrying and I'm just tired of the waiting and not being told anything.

Hi,  yes my situation was discussed in a meeting and then I had a phone call to see the consultant who told me what they planned to do and then he did the quickest easiest smear test i have ever had ! and the hysteroscopy which had originally been planned to be done prior to this and under general anistetic, but he did it no problem, i felt it a little,minor discomfort  but no pain. Then another appointment soon after where i had pre op medical and then two macmillan nurses talked through everything with me and my boyfriend and i could ask any questions, they were really caring and took all the time we needed, very understanding. One senior nurse told us exactly what would happen, every detail which was good so at least you know what to expect. I did find this very hard as I am extremely queasy and nervous anxious person and dont like medical and hospital things ! Cant watch anything on tv involving hospitals or blood!  Yes I had a moment where my bottom lip started quivering and the tears started to flow as it was sinking in what was happening, but something inside me just kept me together and strong. Of course my partner was strong for me, my family too although I didnt see them at all through all this until I came out of hospital, as they live 4 hours away. So that was hard.   The nurse gave me an envelope with operation date and what to do and expect. That was it.  It did all happen really quicky within around 2 months or so i think from seeing my dr, raised level of ca125 and having the op. I beleive I was most fortunate and had great medical staff. Dont think I am allowed to mention the hospital on here but they were fantastic and my consultant is one of the top guys so that put me at ease.   Me being such an anxious person the thing i was worrying about most then was getting to the hospital by 7 am on the op morning as we lived an hour away.  Made it in time feeling very sick and scared but in a strange way I was extremely calm, I dont know how. Its almost like a sick animal when it lets a human tend to it and it sort of knows its being helped ! I think adrenaline takes over and with me it makes me docile and lethargic even though i am scared. This was my first time in my life having an op or even a hospital appointment.  I am rambing a bit here, but to be honest I think this actually helps me to get it out my system too, what i have just been through.

Whilst waiting for op lots drs nurses and aneathatist saw me and kept me calm. They gave me a great drug  to calm me, then eventually the man came to take me away!   Frightened rabbit in headlights then !  waved bye to my boyfriend and everyone I saw then I kept saying im really nervous and anxious. They were all great and chatted to me about what i do for job and took my mind off things. I had to have an epidural drip in back, it didnt hurt but was a strange feeling exactly as the nurse described, more of a pressure pushing on shoulders, then they laid me down, canulas in both hands, which i darent look at! and then next thing i knew I woke up in recovery !   Just like I was home in my own bed. Felt absolutley fine and after a quick chat nurse said do you want to ring your boyfriend, I did and he was shocked to hear from me on phone. Spent night in critical care so they could observe me, all was fine. I didnt feel any pain but apparently I had a high pain blocker with the epidural.  They would come and place an ice pack in places on my torso to see if i could feel hot or cold, so they knew the pain releif was working. Next morning surgeons and consultants came, about 7 of them i think all round the bed and i remember pointing to my consultant and saying oh i know you ! ha ha.  they said it had been a long 5 hour op but they were happy they removed all the 45cm cyst, also everything out including cervix and appendix and abdominal lining, so i am free of any reproductive related problems now ! GOOD......I spent 5 days in hospital. Went in on a tues and was home sat afternoon.  Anyway I have chatted enough! dont want to bore you.  I felt fine throughout the whole thing, never had any great pain at all. Was on tramadole for a week when left hospital as they advised it, then paracetomol.  All I have really felt is a sort of stinging pain here and there around tummy which I have been told is healing and things just settling. For me it has been more mental rather than physical, the thought of what they did and seeing a long scar, which has healed perfectly and I have not had any problems down below. All is good.  My only problem now is due to resting and not doing much manual work (I was a gardener and used to physical work) I have put on weight but cant do too much exercise yet to help lose it. Hopefully soon i can do more in the garden. I feel great but have to stop myself and say hang on slow down or dont lift that its heavy etc. I realise that for me I was lucky in the fact that after being told to prepare for it being cancerous and maybe having chemo, it wasnt and turned out ok. otherwise i may be feeling a lot different now. I do feel scared thinking about what could have been though.  

I hope all goes well for you and you hear soon.  Just remember whatever the news, it has to be sorted and then you can look forward to carrying on normally. If you want to ask anything , im here.  best of luck

Hi! I'm 22 years old and for the past year I've had increasing symptoms that doctors had originally put to be something wrong with my balance system in my ears. I went to have an ultrasound scan a month ago, after the doctor referred me with problems with my periods, and they have found a cyst, I dont know the exact size of it but from what they showed me it looks around the same size as yours.

My symptoms over the past year have been:

- bloating/ swelling of the whole stomach(I also look like I'm pregnant and cant fit in most of my clothes anymore)

- very painful, very irregular periods(they range from 26-60 cycles) 

- severe nausea

- dull/ achy lower back pain

- random sudden sharp pains in my abdomen area.

I'm currently wait for a CT scan on sunday then a follow up appointment for that in the beginning of september. The gyni I went to see doesnt do operations and she said most likely with the size and symptoms, its gonna need surgery so I've been referred to a guy in her team that will discuss that with me.

I hope you are better now!

Hey there

i do hope you're okay and it didn't turn out to be anything serious! If you dont feel comfortable discussing the outcome I totally understand:)

im currently in the same position, I'm awaiting MRI and urgent gynaecologist appointment (MRI is on Saturday and gynaecologist is on Monday). I am so terrified of what it could be, I keep telling myself to stay calm but then when Googling it really makes you believe that these things are only done when it is cancer. I have had a clear CA125 blood test which is a good sign I guess. 
 

hope you're happy and well :)

Hey again,

think I spoke to you yesterday. My CA125 levels and other markers were raised so I contacted my consultant (my local Gp at my 8 week post natal check told me my results) and he got me an MRI for Saturday. Naturally, I got into a panic and pretty much diagnosed myseLf with cancer but after a few hours thinking about it I feel a little better knowing it's going quickly. How are you?

Hi Lucy 

yeah it was me who you spoke to! Oh bless you, remember they could be raised for a variety of reasons (not just cancer). I also have my MRI for Saturday too, how are you feeling about it? I'm quite scared but I know that's normal. Are they doing the dye with yours ? I have an appointment with the Gynae consultant on Monday and I know they'll have the results so I guess I'll know if it's good or bad then. When is your follow up? I know it's hard but try and stay positive. It does feel like nobody understands the anxiety we're facing but trust me I do and am here to talk if you want!

keep strong x

Hey there! I'm in the same position as you and a few other ladies out here, but I can only reassure!

I know it's difficult BC the process is nerve wracking especially during a pandemic where you can't even take people in with you to appointments but I hope you're MRI goes well and the consultant gives ya a clear plan :-) x

Hey , 

I have similar size cyst on my right ovary. I found out about it when I was pregnant ( 7weeks ) however it was not a viable pregnancy and both the cyst and the baby wouldn't be able to fit due to the size of the cyst. It was such a horrible time going through a miscarriage at the age of 22 as well as finding out I have a very big cyst on my ovary. After I had the miscarriage I was booked in with my consultant to see what could be done with the cyst and how it could be removed. My consultant said it is most likely a dermoid cyst and it could also mean it is on my other ovary as well and the most effective way of removing the cyst and see if the other ovary is okay is to make an insertion just like a c-section. 
 

My pre -operation was over 6 months ago and that was the last time I had it measured which I suppose it would have grown by then however I am going in for my surgery on the 25/03 which I am so frightened about , I think I'm just more worried about how it will all look for me after the operation as the consultant said due to the size of the cyst they may also have to take out the whole ovary. It really scares me because I really want to have kids and I know having one working ovary may lower my chances. 
 

My consultant said that the cyst could have been growing for the past 2/3 years and looking back I have put on a lot of weigh , I had a lot of lower abdominal pains , irregular periods and my stomach always looks so swollen but with time I thought that was just my body but no clue as to what was hiding inside. I always looked at my miscarriage as a horrendous experience which I'll never forget and the heartbreak but if it wasn't for that I would have never found the cyst. 
 

I am so sorry to hear so many young girls are always going through the same thing but at the same time when I first found out about it I was so unaware of just how many young women were suffering with the exact same problem. I hope you all have a speedy recovery and wish you all very well and thank you for sharing your stories it really helps me to know that I'm not alone x 
 

Hi I am going through something similar I am 26 and have a complex/solid cyst 9.7cm on one ovary and a 7.5 cysts on the other ovary which is fluid like, I'm due for another ultra sound next week as I had a mri booked but they cancelled because of my age, how long does the process take to finally have an operation date I'm really nervous about the op but really just want it out the way seems like forever! 

Hi, from discovery of raised ca125 levels to getting my op was pretty quick. It's a while ago now, Oct 2019 but I think most appointments and phonecalls were 2 or 3 weeks wait, it was all pretty fast.