Very worried that I could have ovarian cancer

Hi everyone. I've been feeling very worried and was hoping for any advice anyone could offer, or even just a bit of understanding.

I went to my gp a few weeks before Christmas because of pelvic pain that had been going on for a week or so. Every single morning when I wake up I have a horrible burning pain in the same place on my right side. This eases once I'm up as moving around but comes back during the day, especially if I'm sitting down. It also spreads lower down and to my lower back too. This has been happening for around 4 or 5 weeks now. 
 

My GP referred me to a gynaecologist who didn't do anything except say that it won't be cancer because I had a clear smear in February, which I thought was an odd thing to say because ovarian cancer wouldn't be detected with a smear. He referred me for an ultrasound scan. 
 

I went back to my gp because I was so worried and he felt my tummy and said he couldn't feel anything but it sounded from where I was pointing to that it was something to do with my ovaries, maybe a cyst.


My appointment for my ultrasound is 23rd January which seems forever away. I'm getting really worried and I just wanted to know what is going on.

Ive also had breast pain and nausea, to the point where I thought I must be pregnant! But I'm definitely not.

I just feel very worried and the wait seems so long. I have had no other test or examinations except for the gp I saw recently feeling my tummy and doing a urine test (which was clear) 

Edited to add that I'm 30 years old in case that is relevant.

 

Thanks so much in advance for any replies

  • Hi Jeanie 

    Hope your well and dont mind me replying to your post. Ive had mri ultrasound and transvaginal scan gp found a cyst he said i would be having it removed as 10cm but no signs of cancer in them areas at all. He put me on 18 wk pathway for surgery no rush! I have anxiety so pushed for cancelation with hospital called every day and managed to get one. I had ca125 bloods done amd theyve come back over 400 he now said they will have meeting to discuss where we go as mri showing nothing suspicious but results raised! Im so scared thinking ive got cancer and my litte girl will be left on her own as im a single mum. Can i ask did your friends have to have ct scan also and was surgery done asap for them? Did they think they had cancer with the high result? Im so so worried any advice would be greatly appreciated xxx

  • Morning sarahar

    Its normal to be anxious about what's going on. Try not to worry, you sound like your medical professionals are being cautious and looking after you.

    She was operated on within a month, she had MRI only. She was convinced it was cancer, however it was benign thankfully.

    take care, and try not to worry xx

  • Thanksyou so much for getting back to me, very kind of you. Hopefully will know more on Wednesday, i will just be glad to have it removed and know were i stand. Its the waiting that upsets me the most worrying xxxx

  • Hello, 

    im a mother 38 years of age  with a two year old and I'm petrified that I have ovarian cancer. For 4 weeks I've had this pressure in my pelvis towards the right hip with shooting pain from the groin that radiates down the front of my right leg. I'm not urinating more, my bowls seem normal (a bit softer) my periods are regular but this bloating on right  side is constant with no relief or anything. It feels like something needs to pop and gritty. I've been to my doctor they felt my stomach and gave me an internal that result was normal. I asked for a CA125 but they were more shocked that I knew what that was and felt like they were laughing it off with one doctor saying that I'm too young. I'm not too young I know this rare at my age but it's not impossible. I can't sleep at night because I'm so scared that I won't see my daughter grow.I have a scan booked for the 9th of January  I just want some reassurance or some advice if anyone's been through this. 
     

    love 

    Leanne 

  • Hi Leanne 

    sorry to hear your feeling unwell trust me i know how your feeling. I take medication for anxiety its something ive always struggled with so my health journey has been horrendous more because i worry so much. It doesnt help so please try and take one step at a time as right now its all what ifs! Youve not actually been diagnosed with anything. My mum told me this and it really helped me to stay calm and try get on with life knowing its true i hadnt been told i had anything wrong with me. I honestly know how you feel about your children my daughter is 11 and i was terrified the same as you its natural for any parent to feel like that. 
    first i would say youve done the right thing asking for a scan and been persistent!! 
    When i seen my Gp she felt internal and knew something wasnt right so the fact shes not felt anything is a good sign. 
    i had ultrasound and they found a mass 11cm by 11cm the thought it was a benign cyst but after mri they said it was a borderline tumour. Borderline tumours are very confusing as they are inbetween so they have cancer cells or something very confusing but i went on the Ovacome website where all the information is up to date and has a support group and chat that are great. 
    I had my bloods done ca125 test and my bloods came back at over 500! Which if you read google it would make you believe you have cancer! I didnt so i wouldnt read to much into the bloods. 
    im currently in recovery after having a total hysterectomy which was a shock at 39 but im thankful for my child i already have so it was a no brainer for me. 
    my operation was a sucess but my consultant did notice some stuff on my tumour so he removed my lymph nodes in my pelvis incase this showed cancer when the biopsy was done. 
    I received my biopsy back from my surgery after 3 weeks which came back as borderline which means no more surgery or treatment just check ups every 3 months for a few years. I am truley thankful i was treated and seen all the nhs staff were amazing the surgeons are unbelievable at what they do. 
    I wanted to tell you a bit of my journey as i know the worry is intense and you only think one way negative as its hard not too.

    I hope this as helped you knowing there is always something that can be done even if it was cancer ive met some amazing women on my journey.

    when visiting the hospital and staying on the ward while recovering and its truley give me a new outlook on life. Try not to worry have your scan, see whats going on because remember right now youve not been diagnosed with anything. 
    hope this has helped try stay positive and get on with life tbh waiting for the  results made me stronger, i just blocked it out in the end thinking i cant do anything about it until im told whats wrong with me. You will be ok if you need to ask me anything just message, take care 

    sara xxx

  • Hi all

    sorry to jump on the thread.

    it's actually helped me quite a lot as my family think I'm crazy and I won't shut up about ovarian cancer.

    I've googled until my hearts content and I'm absolutely I'll with worry.

    I've had pelvic pain everyday for 5 weeks now which comes and goes but is there everyday at some point. I am now having bad indigestion and feeling of being uncomfortable

     I have had a ca125 and full blood count which was all normal and this has still not made me feel any better I'm starting to get muscle pain in arms and legs and I'm now googling if it's related etc I'm driving myself mad.

    I finally have my scan on Tuesday and I'm absolutely dreading it thinking I'm going to come away heartbroken the anxiety and depression this has caused is something else

     

    do you think a normal ca125 is enough to make me relax? The muscle pain in my arms is getting worse but I don't know if it's stress related 

     

    hope you are all ok and have had positive outcomes 

     

    thanks xxx

  • Hi Rachael 

    sorry to hear of your anxiety and how upset and worried its made you feel x i totally understand what your going thru as i was the same worrying but all i can say to you is right now youve noticed somethings not right with your body and youve acted on it well done! You need to remember right now youve not been told anything is wrong this could be a million things. Go for your scan and take each step as it comes this is what I did and everything turned out ok even if something is wrong the consultants and drs deal with these health problems everyday there amazing and the treatments nowadays are the best. With regards to your results id assume its good your levels are normal as mine were 500 which was shocking but I didnt have OC. The scan will tell uou everything you need to know most likely as mine did. Try not to worry as your wasting your energy you have nothing diagnosed as yet and hopefully wont. 
    Take care and good luck just message if you need me. 
    big hugs 

    sara x 

     

  • Hi sara

    thanks for reply.

    your so right it's draining my energy I do t even have energy to be a good parent as I'm so worried and feel bad on my poor kids.

    Just praying on Tuesday they can see what it is a put a stop to this overthinking nightmare.

    The anxiety is worse than the pelvic pains, so glad your results were ok it's reassuring that my blood levels are normal so praying it's something less sinister.

     

    I have read a lot on endometriosis and feel like that's a possibility also I will update the forum when I find out more thanks for your time chick xx

     

  • Hi ladies 

     

    Wonder if any1 can help ca125 202 16cm mass over ovarian so scared can't eat any one had anything similar. Waiting on ct scan now.

     

     

    Would so appreciate can feedback.X