Very worried that I could have ovarian cancer

Hi everyone. I've been feeling very worried and was hoping for any advice anyone could offer, or even just a bit of understanding.

I went to my gp a few weeks before Christmas because of pelvic pain that had been going on for a week or so. Every single morning when I wake up I have a horrible burning pain in the same place on my right side. This eases once I'm up as moving around but comes back during the day, especially if I'm sitting down. It also spreads lower down and to my lower back too. This has been happening for around 4 or 5 weeks now. 
 

My GP referred me to a gynaecologist who didn't do anything except say that it won't be cancer because I had a clear smear in February, which I thought was an odd thing to say because ovarian cancer wouldn't be detected with a smear. He referred me for an ultrasound scan. 
 

I went back to my gp because I was so worried and he felt my tummy and said he couldn't feel anything but it sounded from where I was pointing to that it was something to do with my ovaries, maybe a cyst.


My appointment for my ultrasound is 23rd January which seems forever away. I'm getting really worried and I just wanted to know what is going on.

Ive also had breast pain and nausea, to the point where I thought I must be pregnant! But I'm definitely not.

I just feel very worried and the wait seems so long. I have had no other test or examinations except for the gp I saw recently feeling my tummy and doing a urine test (which was clear) 

Edited to add that I'm 30 years old in case that is relevant.

 

Thanks so much in advance for any replies

  • Glad your fertility clinic went well, and you're in the system now. I hope you are getting your energy stores back too. I've done my first week back on half days and tried 6 hours today, and I'm currently flat out on the sofa. Too much too soon I think :cry: 

    Caggie, try not to worry - worrying takes up too much of your time and valuable energy. As previously mentioned the ca125 test is an indication so don't panic.

    two of my colleagues at work have both been fast tracked for surgery both thinking their cysts were malignant because their ca125 results were in the 1000's but both biopsies were negative. I hope that puts you at ease a bit x

  • Yes. Many thanks for your kindness sorry to be a nuisance. Hope you all have a lovely weekend x

  • Absolutely no need to apologise Caggie, we all understand how nerve wracking the waiting can be. 
     

    try and enjoy your weekend and relax x

  • Thankyou for your time. I was wondering is there any people who have only had bleeding as a symptom? I am feeling very sick by the thought of everything. I cant eat as im literally worried sick. Also i thought hiw can i bleed? I feel terrible. I was like this when i had a call to say my Father died suddenly 22 years ago. My head is churning all kinds of thoughts. Would appreciate to hear if anyone can say me too re symptoms. Thanks. 

  • Hi Caggie 

    I can't say I've just had bleeding, I've had a mix of different symptoms and currently in the system waiting for surgery, blood results and another biopsy. 
    it's very hard not to worry, try and keep yourself occupied with something and stay away from Dr Google.

    I am sure that your doctor will be in touch soon, with results etc. I'm sorry to hear that you're all churned up.  Hope you get some answers soon x

  • Awww thankyou for responding to my message. I hope you will be ok with all the things that are going to be occuring for you. I have a friend telling me because i get all my usual symptoms of a period before etc its fine. Then i think ca125 is 78. Soo all the good thoughts then turn dark. Thoughts like why is  ca125 even there if its not sinister. Im not going on the internet because im terrified. Still am shaking and cant eat.  My thoughts are very dark. Thing is we buried my brother in law last friday. My mum several months ago. So did hou have bleeding and other symptoms or no bleeding? Thank you gor your kindness in taking time to reply.  X

  • hello all, I've just copied and pasted my other post as I had no replies but feel this is relevant to this post, I hope you don't mind....please see below, I'm now waiting for CA125 results, I'm 38 years old and premenopausal xx
     

    Possible Dermoid ovarian cyst, but absolutely terrified

    17 Jan 2020 08:31

    Dear all

    im posting because yesterday I was told I had a cyst on my right ovary. I initially went to the gp on Monday because I had three weeks of feeling like I needed to wee more often than usual.

    the scan was really painful as I needed a full bladder. The sonographer then did an internal ultrasound, and said after a while "you have a cyst on your right ovary" but nothing else. 
    I have awful health anxiety and emailed my gp practice who said they would chase up the results early next week. I got a phone call in the evening from one of the doctors saying that the report was suggesting it was a Dermoid cyst, and they have arranged a ca125 test for today.

    I was reassured that it's unlikely to be cancerous, however my thoughts tell me otherwise. I'm absolutely amazed at the speed of how things are going. I think it's maybe been speeded up as my gp surgery are aware of how anxious I get (I get relapses of health anxiety a few times a year) 

    I suppose I'm asking for some advice on how to cope when waiting for results? I've even started worrying about how my children will be if I do have cancer.

    any thanks in advance and best wishes to you all

     

  • I am sorry to read about your recent bereavements. That will be taking its toll on you too. Sounds like you're not coping so w

    ell. I lost my mum just over two years ago and found that bereavement counselling arranged through my doctor really helped.

    i had bleeding (very erratic for a couple of years) and other symptoms. I am mid forties so peri-menopausal maybe.

    have you a friend or family member who you can talk to? It might help x

  • Hi Cath889, 

    I'm sorry to hear about what's been going on for you. 
    I've been there and you're right, the waiting is the worst. Coping looks different for everyone, for me I completely surrendered to what would be would be and that I was in the right process to get treatment if it was cancer or if it was benign. For others talking to family/friends, or not talking to anyone or keeping busy helps. 
    I also tried to enjoy everyday because if it was cancer then life was about to change and I didn't want to waste the last few weeeks of normality worrying about what was next because it would eventually arrive. 
     

    And yes it is very unlikely to be cancer, most dermoid cysts aren't, but of course it's natural to worry. Something like 1-2% are cancerous so the odds are good that it's benign. I'm 28 and unfortunately my 25cm dermoid was a germ cell cancer, however after surgery im cancer free and am starting surveillance. I don't need chemo and hopefully it won't come back. If it does they'll catch it early and I'll be okay. Rest assured that Even if worse case does happen surgery may be all you need.

    I hope you get through the next few days alright, you'll know more soon im sure x

  • Hi Cath

    Its reassuring that things are moving quickly for you. It's good to hear you've had a blood test soon also. When I went to the docs last May I had both the blood test and scan within two weeks which did worry me a bit. Then I was referred into the gynae clinic the same week for a uterine biopsy.

    I had to give myself a good talking to, and stay away from the internet, for my own self preservation.

    i also have a dermoid cyst, which was identified as around 10cm on scan, but in keyhole surgery last month was found to be 20-22 cm so they didn't remove it during that procedure. 
     

    my doctor has said from the outset that cancer cannot be completely ruled out until it's been removed and biopsy done. She also said that there's less than 5% chance of a dermoid being cancerous so I feel re-assured by that. Health anxiety is difficult to cope with. My best advice is not to google, and trust your doctor. Also keep yourself occupied x

    Hope you get some info soon and try not to worry. (I know it's hard not to) x