Hi Emily 

I have just come across your post and wanted to reach out. 
I found a lump in my neck/collarbone about 5 weeks ago. Referred on the 2 week fast track for ENT app and then Ultrasound scan. They found that I had a enlarged lymph node in my cervical (on my left) and supraclavicular (on my right), the right being about 2x2.5 cm.

on the ultrasound apparently these look abnormal and they look for lymphoma. I have my biopsy on Thursday which is my birthday ️

What was your issue with your lump? Any advice and help would be great xx

Hi Jenc1986,

I'm sorry to hear that you're worried; definitely a positive thing that you've gone into check this out early, some people take years to see their doctor. When they felt my neck they said it seemed abnormal so I had an ultrasound scan the same day. They didn't make a definitive diagnosis (except for ruling out cancer), but they  did say it was either a slightly enlarged lymph node which can happen randomly, or a subcutaneous cyst which was slightly deeper under the skin when felt.

The chance of skin lumps or things like this being cancer is rare. Even if it was lymphoma, my doctor told me it is increasingly easier for them to treat. She told me of past patients who were stage 3 and are now completely cured and leading totally normal lives.

Try not to let anxiety take over your life. I promise there are solutions whatever the diagnosis. X 

Hi honey, just wanted an update. How is your husband doing now and did you ever find out what the real issue was?

Hey nideba, thanks for asking! Just looked through my earlier posts. Friday the 13th was in fact unlucky! He was 'diagnosed on the spot right after the biopsy with lymphoma. It was the worst thing ever, right before Christmas. But then on the 30th of Dec the results of the biopsy ruled out lymphoma and he was diagnosed with sarcoidosis, an inflammatory condition. He is absolutely fine but what happened still haunts us sometimes. We complained to the NHS about the whole thing and they agreed that he shouldn't have been 'diagnosed' on the 13th. I hope you're well and that all is well with you 

Hi, I can't help you with any answers but I'm going through something similar now, I'm 41 healthy, don't smoke and after having lots of ct/mri scans and a biopsy I got told I might have lymphoma, my results have been sent to Leeds for further examination and so far heard nothing, the annoying part of this I have no symptoms, no lumps no nothing. This waiting period has had a horrible I pact on me as I'm usually a chilled guy. I hope your husband is handling it OK as I know it will be playing on his mind.

Hi, thanks for your message, I hope you're holding up. My husband was diagnosed with a condition called sarcoidosis after all (having been misdiagnosed with lymphoma initially). The wait really is the worst part of it all but I'm hoping the fact that ct/mri scans haven't found anything and that they needed further tests on your biopsy is a good thing! It's not easy but trying to stay busy as much as possible is key. It helped us get through Christmas 2019 when we were told my husband had lymphoma. It was horrible but having 'normal' Christmas and trying to live 'normally' was what got us through it. I also used this forum as an outlet which helped me. I really hope you get the good news. 

Hi Honey,

could I ask how your husband is now? I'm going through the same thing? 

Thanks 

Dean 

Hi Dean,

I'm sorry to hear that, have you had your diagnosis yet or are you still waiting? My husband is absolutely fine, luckily his sarcoidosis isn't affecting him at all although we thought it would have been gone by now (apparently it usually goes away by itself within 3-5 years). 

Best wishes,

Honey M