Hi Guys
I was diagnosed with CC in October 2017 at 24 . Huge amounts of bleeding on my honeymoon in July 2017 up until diagnosis. Refused checks by hospital that I attended twice in one week. Was told it was birth control related. I knew it wasnt and had all other options tested e.g. STI, removal of implant, new implant, removal again, attempt of fitting coil. GP found a problem with cervix when trying to fit coil. Too much blood and clots to see and referred to same hospital that sent me home twice a week before. Consultant found 4cm tumour, biopsied and diagnosed two weeks later.
Trachelectomy undertaken to preserve fertility plus lymph node removal. Failed as margins unclear. Ovaries moved.and chemorads schedule for Jan 2018. Completed end of Feb 2018.
NED following treatment.
September/ August perforated bowel. Hartmanns procedure with colostomy. 30 days in hospital, radiation damage.
December 2018 CT scan, Jan 2019 results NED. Advised to seek fertility advice on egg retrieval and surrogacy.
March 2019 open hartmanns reversal and ileostomy. Recovering well. 2 weeks later, pain beginning to subside from surgery. Pain replaced by pain in pelvis, right side groin, leg and back pain. Increased discharge. Pain persistent and not gone away with medication.
April 2019 - advised team on symptoms. Also lymph nodes by breast. Told unlikely to return but have MRI due 18th April. Pain increasing dramatically.
Possible recurrence, will have to await scan and results.
Can anybody tell me what the likely treatment will be if recurrence is shown? Previous tumour 4cm. I have already had radiotherapy so this will not be available again. I have 1 daughter aged 8, two step children aged 5 and 8. Wonderful husband who cant do right these last weeks due to my anger and upset with this short straw! Some days I feel positive and others just a black cloud. I had no pains before my bowel surgery and always get my fitness back to peak health after any treatment. We were all just starting to enjoy life again! Now seems to be yet another blow.
Thank you for reading. Sorry to go on!
Searching for the positives!!
