Hi,

I just wanted to say you write beautifully and I couldn’t agree more. 

I found a lump last year, was misdiagnosed and then finally after waiting 10 weeks and having a biopsy I was told it was a fibrodenoma - the stress of waiting meant I was put on antidepressants. Even afterwards I struggled to calm back down. People just don’t understand the stress in waiting.

Now I’ve found a second lump and I’m waiting all over again, not even had urgent referral through yet.

My thoughts will be with you today - remember that so many people do get a benign result. I pray you’re one of them.

Claire x

Hi claire

 thank you so much for your kind words.

i think deep down I know it won’t be anything too serious especially as they believe it to be granulomatous breast disease which is quite rare I believe so I don’t know why this is their first thought. I have had quite a time of it ( which I know everybody on here does which is why this is the only place to vocalise our feelings without fear of rejection or being classed as over dramatic which I sometimes think certain friends of mine are thinking!) with getting to this stage as they thought it was an abscess for weeks and weeks and although they never got more than 1ml out they kept persisting, even with 5 different types of antibiotics over the course of 7.5 weeks and two weeks of IV antibiotics they kept persisting with it being an abscess( I do have cellulitis which covered half my breast but this is much better now ) it was only 11 days ago they thought it time to do the biopsy as they were reluctant with how bad the cellulitis was but after another ultrasound to which there was no change in this so called abscess they realised enough was enough and they have told me it’s NOT an abscess now(?!).

when will you get your referral through? I wish you well and I hope you have people around you who you can vent at/lean on etc. I will also be thinking of you and hoping you get it through soon. It would be nice to keep in touch

warm regrads 

clare

(great name by the way Claire!!!!)

I’m going threw the same the last 2 & a half weeks have been awful. I was at Breast clinic on Monday had all scans done & 2 biopsy’s & back tomorrow for results. Hope everything is ok for you today, my family and friends keep telling me to stay positive easier said than done tho so I know exactly how your feeling. Can always message me if you need a chat. Fingers crossed for your results today xxx

Fingers crossed Pumkin and Sarah. Let us know how you get on! x

This poem is so beautiful and so me right now.  I also have my biopsy results today at 3.10 this afternoon. All of this poem sums me up. I feel sick with worry. I'm currently sat in the hairdressers having my hair done and wondering if I should even be sat here (fear of bad results) 

They told me nearly 2 weeks ago they thought my lump was fat nerosis (which is caused by trauma and I don't have trauma)  so took a biopsy and told me they thought it was 100% certain it was nothing. I got home and Googled fat nerosis to see that it often mimics cancer!! Scared myself so much and wondering how I will get through til 3.10. I just want to run away!!! All can think about is my 3 young kids. 

I will be thinking about you hun. I hope everything works out ok xxxx

Hi Sarah 

i really know where you are coming from and I sincerely hope you get  the ok, I think friends and family mean well but it kinda falls on deaf ears- well it did with me!! 

I have my results and I’m very happy it is nothing sinister ️but they say it’s unexplained inflammation, which while I know I should be satisfied with this, I just don’t feel it’s an answer - why is it inexplicable? She said I need to go twice a week to see her so I won’t be discharged (I’m still leaking fluid) and they will ‘watch and wait’..... wait for what? I asked does that mean it could turn out sinister and she said it could but she doubts it( which is good ) I just feel like I’m in limbo, also that I’m bit of a fraud for moaning on here when people are under such stress! 

Good luck tomorrow I will be thinking of you, if you have time to let let us know how you go on it would be good to hear..

take care 

clarexx

Hi thanks

i am happy to report there is nothing sinister going on, but I feel a bit in limbo that it’s just unexplained inflammation - I just don’t understand how it can be? I don’t want to keep going on and being selfish!

thank you for your well wishes

hope all is good for you

take care

clare xx

Hi mummykir

thank you for liking my poem, sometimes it’s the only way I can express myself! 

I will be thinking of you and I pray all is well, I have a two year old who is my world and the fear the waiting causes is based around missing them. So I know your pain! 

I had good news that it’s nothing sinister, which is quite the relief, I just feel at odds that it’s unexplained inflammation? 7.5 weeks, 2 weeks in hospital numerous infections suspected abscess then to now be told it’s ‘unexplained inflammation’. I phoned a breast care number after my appointment and the nurse said to give it a few weeks and if there is no change to seek a second opinion ( she wasn’t trying to scare me but she did understand my concerns ) so I guess I will watch and wait as my breast doctor said and see them twice a week until they see fit and hope it just goes. 

Hope the hairdresser did a good job! You can’t beat a fresh do!!

take care and let us know how you go on

clare

xxx

Those words completely sum up how you feel waiting for results, everyone says it will be fine but unfortunately it’s not all the time. I think the word Cancer has been made to be scary as not every who gets it dies of it! I think the internet though very informative as made it worse as we all google and our minds zoom in and focus on the negetatives of it all . All this grading etc makes me very anxious just reading it, I think it’s a definite saying of ignorance is bliss !!

Hi I’m so glad you got the all clear, not good that you have to keep going back but at least they are keeping an eye on you. When you say leaking fluid is that from the biopsy? I keep checking my breast hoping there is some change but nothing. I’m still so worried and have another week to wait I got a call from hospital last night to say my appointment had been cancelled as my consultant has had a meeting & my results haven’t come back yet. So frustrating I’m back next Thursday now. The waiting is so hard I’m making myself ill with worry. 

Take care 

sarah xx