Convinced I have cancer and terrified.

Hello

I need to talk to someone as I feel I am loosing my mind with worry.

In 2015 I lost my husband to colorectal cancer and I now think I have cancer too. I am a mother of three wonderful teenagers and I am terrified of leaving them with no parent at all and not seeing them grow up!

Christmas and New Year I felt perfectly well with no concerns. On 2 Jan all of a sudden I had terrible pain in my right hand side and it hasn’t gone away. The pain now is in my lower back too. What troubles me is that I have not had my bowels open properly for 3 weeks. The Dr put me on movicol which has done nothing. I had Senna which gave me a watery loss and very thin poo lick the shape of green beans!!!! I went to A&E and had an X-ray which confirmed I was full of poo. I then had an enema which didn’t work! I am passing wind so there is no complete blockage. I am booked to have an emergency colonoscopy Thursday 7 Feb and I am worried the prep won’t clean me out. I have had one prep and I have lost fluid, so the Dr has told me to take extra stools.

I feel well in myself, my bloods are ok and CA125 markers are within normal range. They did those as they thought the pain was from an ovary. 

I am crying myself to sleep at night and waking in sheer terror. I don’t know what to do or think. I have no one to talk to. People I mention it to say you are bound to be worried after loosing your husband but be positive. Thank you for listening. X 

  • I meant every word. Hopefully the diazepam will help relax and give you some clarity of mind. I also find long walks help me relax as well as playing my ‘happy songs’ play list, I turn up the volume and dance/jump around the house like a mad woman - I always feel better for it :) 

  • What would I expect to be the next stage, if they see cancer on the colonoscopy. The pain over last few days has intensified and I don’t feel well at all. 

  • Sorry to hear you’re still in pain, the next stage depends on what they find or don’t find. If there is a polyp there they will remove it for testing, if no obvious sign of disease then they will decide from your symptoms what else they should be looking at. You may be referred to another speciality or back to your GP. They may also send you for a CT scan to get a better look at your digestive tract. 

    At this stage it’s impossible to say. But you’re nearly there, just to more days to go, hopefully the prep will give you some relief and help with the pain. Are they giving you a sedative for the colonoscopy?

  • Yes they are giving me an injection.

    i am still worried the prep won’t work. I have already had two and it’s still dark brown fluid coming away. Should it be clear fluid towards the end meaning it’s all clean. I am so scared now. 

  • Mine did not produce clear fluids and I was still running to the toilet in the hospital minutes before my colonoscopy. I did mention it to the Dr but he reassured me it’s perfectly normal. I could see from the screen my insides were a healthy pink and no sign of poo. Seriously Foxy one could clean the drains with this stuff. The staff were wonderful, the procedure was quick and I was back in my car driving home 30 mins later - I didn’t get a sedative. I understand all of this is scary but try and dissect the fear, compile a list of what it is that’s frightening you and then work through each one. I have found this exercise helps to eliminate some and lessen others. It may help you cope.

     

     

  • That’s reassuring thank you. If it’s not clear I would worry.

    Based on my symptoms I am terrified I have bowel cancer.  I am loosing my mind with worry that I am not going to see my kids grow up and I will leave them parentless. 

    I just have that same gut feeling I had with my husband. 

     

  • Bowel cancer runs in my family, hence why I was sent for scans. My brother has just finished treatment for three colon polyps, thankfully benign. What we all had in common was disruptive bowels movements, I was running to the toilet up to five times a day. My brother was constipated. The other thing we had in common was bleeding from the retum. Mine turned out to be from piles, my brothers from his polyps. My cousin who has stage 3 colon cancer did not have the pain you describe but did have changed bowel habits and blood.

    When I lost my husband my biggest fear was that something would happen to me which would leave them orphans. I even spoke to my sisters to see if they would look after them if I died, so only natural that would be your biggest fear. The reality is that nothing happened, apart from a bout of breast cancer, so still alive and kicking, even cancer doesn’t equal a death sentence.

    you've survived this far and you’ll survive Thursday and you’ll deal with whatever the results may be because you are a strong woman.

     

  • I’m sorry for everything you have been through. You sound an incredibly strong lady too!! Did your brother have pain with the polyps? Could they cause constipation too? 

  • Thank you, Yes he had pain and was first diagnosed with IBS and prescribed buscopan but a couple of weeks later he noticed blood in his stools and yes he had constipation. 

  • Hi. The colonoscopy was clear to my relief, but the pain and discomfort has worsened. The pain in my lower back, upper back and abdomen is awful, I can’t even turn over in bed without wincing. Bowels are still not working as they should and I have the most terrific pain in the tip of my right shoulder. 

    With my bowels not working as they should my first thought was bowel cancer but now reading up i have terrified myself further and fear it could pancreatic cancer?! The upper part of my abdomen is incredibly painful and my back is just getting worse. 

    The Dr has requested a CT scan but not yet sure if I get one and I have an ultrasound booked. I’m just so scared I don’t know what to think, the pain is making me think the worst, as I am never ill but this is unbearable.