2ww ENT referral for enlarged lymph nodes, next step CT scan

Hi, first time post for me and it’s quite a long one, so bare with. 

Around the time my children went back to school after their summer holidays, I noticed that I was becoming extremely fatigued. I put it down to loss of routine, having to start the day a lot earlier to get my son to his new SEN school etc. 

By october i could hardly function so decided to go and visit my GP. After blood tests I was told to make an appointment to discuss my results. My B12/foilate was very low, so I was prescribed three months worth of foilic acid and told to come back in January to have my bloods done again. 

Around the second week of January I noticed a lump in the crease of my neck / under my chin. I already had an appointment Pre arranged for a week later so decided to wait until then. At that appointment I was prescribed antibiotics and referrd for an ecg as I have a rapid heart rate and told to come back in a week. 

My latest GP appointment was today, she checked my throat, lymph nodes etc. The lump hasn’t changed, but now my lymph nodes are swollen too. She’s made a referral for me to be seen at my local hospital by ENT within 2 weeks. 

So now I’m just driving myself mad with worry. I know that 9 out of 10 referrals turn out not to be cancer and that these referrals are more to rule out than diagnose, but I just can’t help myself. 

I just can’t shake the feeling that something isn’t right. I’m tired 24/7 even after a full nights sleep, I never feel fully rested. I have a dull aching pain in my shoulder, Color bone and armpit on my right side that never goes away. I feel weak, I have an awful taste in my mouth that I can get rid of and I’m having to sleep with the window open and fan on. 

Ive tried my best not to start googleing my symptoms, but I’m trying to find out what this ENT appointment is going to involve? Should I take someone with me etc? I’d probably take my mum, but haven’t mentioned it to her yet as I don’t want her to worry over nothing. 

Not really sure what I’m asking for, it just felt good to write this out, if you made it this far then thank you. 

  • Hi there,

    i just wondered what the outcome was from your CT scan? I have identical symptoms you listed in your firt post - multiple sore nodes, fatigue, pain in shoulder / colour bone / upper back. I have a 1 year old son so have been putting it my fatigue down to being a working mum. I have been to the doctors several times as the nodes have been raised for about 7 weeks now. They just tell everyone I’m run down and catching the bugs from the little one, but that doesn’t explain all the pains I’m getting on the right side, along back, neck shoulder and arm. I’m considering booking privately to see an ENT.

     

    thanks and hope your situation has  resolved now xx