You're welcome. Mine were both also 1.5cm so that would be roughly 15mm but my mom's were about 3.5cm and we were told by her surgeon that often times we worry about the big ones being cancerous but statistically there is a greater risk of cancer for the smaller ones. So there's another little thing to remember. Anyway, hoping you get more clarity on yours soon and will be able to have some peace while you wait. Xo

Thank you so much. Your kind words have really helped me today xxx

Hi,

I got my core biopsy result. They said it's consistent with a benign thyroiditis lump but they also can't rule out malignancy. I now have to wait to hear what they decide is best to do next at the meeting. I hope they say to take it out x

Hi there, thanks for letting me know your results.

I think that would be making me feel a bit better for the time being. A few things I would remember are that the majority of these things are indeed benign and while there is nothing that beats the absolute certainty of knowing.. it's just a matter of time and waiting until you know for sure.

A lot of people have nodules they don't even know about! At least we know about ours and are being diligent doing all we can do to monitor them and if we find out they turn out to be something we can have them removed.

I just returned from being evaluated by a thyroid specialist. This surgeon does nothing but thyroid surgeries and after many thorough tests his recommendation for me was to wait 12 months then have them perform another ultrasound and biopsy. If there are changes in the pathology or if they grow we can take them out then. If I get another benign result at that time then I may be a candidate for ablation to just shrink the nodules vs. surgery.

My main concern is what if cancer was missed in my first biopsy would 12 months be too long to wait and do something and his reply was "No. your nodules are not that big, there is no lymph node activity indicating anything like that is going on, if there is by some small chance cancer is there and was just missed, in vast majority of cases they are very slow growing and in twelve months time you would not necessarily be in a different position than you are today. It is reasonable time to wait and re check before deciding to have surgery." So I am going to follow his recommendation.

Another thing is my mom who did have hers removed because they never could determine through two biopsies and genetic testing STILL INDEED came back benign after final pathology of her entire thyroid gland which contained MULTIPLE nodules. So while we are extremely glad and grateful hers was benign.. she had her whole thyroid gland removed thinking it could be cancer and is now on medication the rest of her life. She's doing well on it but it's been a few adjustments to her doses to get her feeling normal. It's been a year and I think her current dose is going to be the right one to level her out.

Sorry for the long post, just to say I know you still feel anxious a bit with the waiting bc I do too sometimes. Here's hoping we can both be patient during this time and to think positively because I truly believe we will both be ok! At least you have not received really definitively bad results from all your work ups so far! That's a blessing for sure and something to hold on to! Good luck with you, I'm here to chat any time! Xo

Thank you for replying. It was nice to read how you and your mum are getting on. The waiting is so hard. The words from your surgeon are reassuring. It worries me that mine is 29mm already, but you are right in that we are on the case to hopefully get everything resolved. My anxiety is awful. But the benign part of my result is encouraging. I definitely want to have surgery to get mine out and fingers crossed they recommend that from the meeting next week. I will keep you posted xx

Hi again, yes please do keep me posted. I would like to know how you are getting on. One thing I remember my moms surgeon saying which we found reassuring while awaiting her surgery was that often times we worry about cancer in the larger nodules and statistically there is a greater likelyhood that it is the smaller ones. My mothers largest nodule was 3.5 centimeters when it was biopsied so it was a bit bigger than yours and her surgery was scheduled for two months later. When I asked if that was okay to wait that long not knowing if it was cancer she was not the least bit concerned. She said "it would be totally fine to go another 4-6 months if we had to. We have time to take care of this and it is not an emergency." It made us feel easier to get through the holidays without excessive worry. One thing I wonder in your case, from your ultrasound... did they note any lymph nodes that looked suspicious or swollen? I would think if there were no lymph node findings that should also put the mind at ease a bit. Take care! Xo

Thank you, your messages are really helping me. Nothing was suspicious on the lymph nodes on the scan. Thank you for the info on the waiting. That's the bit I'm finding really hard because I just think if it is cancer then what is it doing to the rest of my body and that's when I start to get seriously scared. My doctor hasn't said one reassuring thing to me. I know he doesn't know what it is yet but nothing he has said has made me feel any better. I just want the operation to get it out and hopefully get all this over with xx

Thyroid cancer is extremely unlikely to do anything to the rest of your body, even if it is cancer, which it very likely isn't.

Looking at old photos, my nodule is visible for at least four or five years before I got diagnosed, so who knows how long I had cancer. 5-10 years maybe? Could even be longer for all I know. In that time, it had no effect whatsoever on me and was only diagnosed when a doctor noticed the lump on my neck and said it should be checked out.

Worst case scenario, they have to remove your thyroid and some lymph nodes. That is really as bad as it is likely to get. Not fun, but...probably no worse than something like having your appendix removed.

By the way, my nodule was 105mm, of which 67cm was cancerous and I was and am still absolutely fine.

I have to think that not finding anything unusual in the lymph nodes is a good thing! Same goes for my moms ultrasounds and mine too.  I feel like this is always positive but I surely understand until you get that definitive answer you worry about cancer being in there. If I let my mind go there I could think the same thing too as I know that Bethesda category 2 Benign still runs a slight risk 3% cancer was missed but honestly, this kind of thinking does us zero bit of good. For all any of us know we could be growing a brain tumor as we speak.. not to be morbid or anything at all just to emphasize we truly cannot do more than what we know about and we have to learn to accept that to the extent that we are careful not to rob ourselves of any joy or peace during the waiting times. I know I know... easier said than done! :))) I hope you have a nice relaxing weekend anyway because why not, right?! Just take a deep breath and say "today, all is well." And give yourself permission to take some time off from the worrying. It will do you loads of good! Xo

Thank you so much for your message. It really helps to hear that x