Hi all! 

Nice to see more positive news / posts! This forum really does help keep everyone’s spirits up no matter what place they are in! 

I got my results from my 2nd neck scan today. Doctor didn’t really tell me anything - said it would be better discussed/explained by a specialist and so has referred me to ENT. Non urgent referral (which is always a good sign) but just another probably long wait for the next appointment. 

Hope everyone is doing well. Hugs to you all :) xx

Hi Katie,

I am sorry to hear that you now have another wait to get the results of your second neck scan. Still, it must be good news that this is a non-urgent referral

Fingers crossed.

Kind regards,

Jolamine xx

Hi Jolamine

Thanks for the reassurance last week!

I hadn't heard anything from my GP or had a referral through so called my doctor today and they hadn't put it through yet, it's been a week so I was a little annoyed that it wasn't even on the system yet.

After a couple conversations with my GP he's a little more concerned now and I have a haematology referral - the appointment is on the 24th and I will have my ENT & Biopsy appointment date by Friday apparently. 

Also need to go get my full blood count, but as I am away helping care for family on palliative care I have to go via A&E to get my bloods done. My GP said if I explain my situation they will take a full blood count, but I feel a little silly going to a&e. Anyone else had to do this? 

Hope everyone else is getting on well. X

Hi AriaM,

I am so glad to hear that you have contacted your GP to see what was happening with your referral. You must have been furious when you heard that it hadn't been sent yet.

I am glad to hear that you have now got things moving and, hope that they will come through soon.

I have had 2 bouts of breast cancer and that has resulted in bilateral lymphoedema. This means that I cannot get my bloods taken from my arms any longer. I now have to attend a liver specialist nurse at my local hospital any time I need my bloods taken, as they now have to be taken from my foot..

I am sorry to hear that you are caring for someone on palliative care. I know how tying this can be and, I presume that getting your bloods taken at A & E is for the purpose of convenience, although it does seem a strange way to go. Don't feel at all embarrassed. I have had to do many strange things along my cancer journey.

I hope that all goes well for you.

Kind regards,

Jolamine xx

Hello to everyone, hope you're all doing well :)

I had my GP appointment last monday (I've not updated as I've tried to take a little break from thinking about it all!) Wasn't a massive success to be honet! She had a feel of my glands and said she couldn't feel most of those I was refering too, which was a bit annoying as I felt them and pointed to the exact spot for her. Granted the ones by my collar bone are very small and can be difficult to find but the ones in my neck are fairly easy to feel - in my opinion anyway, but maybe I'm just mad?! :confused:

I mentioned the cough and stiff fingers and tiredness.  She had a feel of my hands and said she didn't think it was inflamitory arthritus.  Asked some questions to rule out HIV and TB, said there would be at least something slightly off in my bloods for lymphoma (still not sure that's true) and said that as they aren't getting bigger they wouldn't be concerned about that.  She didn't really offer any opinion on what it could be, just that some people do have slightly raised glands and it could just be normal for me.  This is the second GP to say I have nothing to worry about, so although I'm not entirely convinced I feel that I should try to listen to them.

I'm not feeling great though. My tiredness seems to have reached a whole new level, struggling to keep my eyes open and get up in the mornings.  My fingers are still stiff and my wrists and knees seem to be going to same way.  I'm considering changing my GP practice if it continues as I don't feel confident in getting anything sorted with my current surgery.

Wow, that was a really long moan sorry!

Hi Becky,

I'm glad to hear that you saw your GP last Monday and that she seemed to think that all was ok. The GP is quite correct that your lymph nodes can swell for no particular reason.

This is the second GP's opinion that all seems fine. Try to believe it for a little while. Try to persuade yourself that all is fine. If this doesn't work, either return to your GP or change doctors. You really do need to be able to have total faith in your GP.

I hope that things settle down for you, but please let us know how you get on.

Kind regards,

Jolamine xx

Thanks Jolamine :) You're always so lovely replying to everyone's worries!

You're absolutely right, I'm trying to trust the Drs and believe them.  I know that the worst senariors here are also the most unlikely, and I presume that if they had any doubt the Dr would have referred me on to someone, even if only to cover her own back.  I feel something is off but there are many other less sinister posibilities so I'm trying to relax and stop worrying so much.  Whether I succeed is another matter - its very hard to get out of the cycle of anxiety once you've started!

Hi Becky,

It is only natural to be skeptical about your GP’s opinions. However, you know your own body best, so don’t be afraid to return to see your GP if things still don’t feel right in a month or so.

I hope that you succeed in suppressing your anxiety and, can eventually accept your GP’s diagnosis.

Kind regards,

Jolamine xx

HI I’m not sure If ive done it correctly but I have a few things to ask, before I get to it I’m 17 and I’m scared I have something wrong with my throat mainly the back of my tongue , it all started with a chest infection then I had a cough for a few weeks after so I decided to look into my mouth and noticed these strange bumps at the back of my throat , my tonsils are red but not swollen and it feels like one of my glands are swollen on the side of my neck but you can’t see it you have to feel it , it’s not that hard and it moves easily but I’m a bad hypochondriac,So I went to see a doctor and they basically said it was nothing so I left it for another few weeks nothing changed so I went back (bearing in mind this was only a walk-in centre as I don’t have a gp at the moment through moving away with family problems) and the doctors noticed bumps at the base of my tongue and I told her I keep getting a pain in both of my ears and She then said my one ear was blocked with wax or something and I was prescribed with a gel to put on my tongue and ear drops , i forgot to mention , the bumps at the base of my tongue are not hard they feel squidgy I can’t explain it , I’m just scared to be honest because none of the docs I’ve seen have actually told me anything other than that the last one I saw told me to get registered with a gp for a blood test because I could be low on iron but what does that mean , for the past 6 weeks to 2 months I’ve been worrying so much I have cancer or something in my throat and was wondering if anyone has been through the same as what I am going through , thanks