Hey!

im having the exact same problem! 2 in my neck and 3 in my groin since April  and all blood tests and Ultrasound scan came back fine. Now I’m being referred to the haematologist for further checks as more lumps came up. My lumps don’t change shape though, they grow to about less than 1cm and stay there, and moveable (ish). Tight chest, no other symptoms except some aching where the lumps are and some tiredness (but not exhaustion).

I feel your frustration being told everything is “normal” when lumps are still present! Have you had any results  back or anything to say what the causes are? I’ve been told it’s very rare but you can get a bacterial virus without actually being ill. 

I am going crazy with google and have diagnosed myself with every form of cancer. It is taking over my life. The anxiety is so bad and I’m getting so stressed about it!!!!

i really hope your results come back clear! Keep me updated :) x

Oh no, sorry to hear that. Google is an absolute nightmare, I know the feeling soo well and it really is horrendous! But we do it to ourselves unfortunately... you just have to think, IF it is cancer, it will be found. IF it is lymphoma, it is extremely treatable. Don't let your head run away with you with fear as the chances are it isn't, the drs see so many people with swollen lymph nodes all the time and i think its something like 0.4%  turns out to be cancer!  But if it was, you would get through it and yes it wouldn't be pleasant but you are much stronger than you think.

No they don't know what, it might potentially be a low grade lymphoma but the biopsy will reveal that... I haven't had it yet. My bloodwork has been fine too, i've had so much taken for all sorts of autoimmune things etc. I was slightly folate deficient in april and still am now but other than that my blood is fine. Did have a very slightly raised ESR in april but the gp referred to this as a red herring at the time and all my blood tests since have been fine. Haemotology will give you all the right tests, they test you for literally everything under the sun, HIV, hepatitis, autoimmune etc. Aswell as checking kidney, liver, LDH levels and so on. They will probably give you a ct scan too. 

Try not to worry, less than 1cm isn't technically enlarged even if you can feel it - I don't mean to make it sound trivial but I wish I had someone telling me all the facts back in april! the drs consider my 3cm x 1.4cm one very small, which it really is compared to most lumps which turn out to be cancer! But to me it feels huge haha!! If you are slim you are more likely to be able to feel them under your skin too, especially in the groin, I can feel loads but they didn't light up on my pet scan so they are fine! Stay away from google, and try not to become worried unless the drs tell you to worry! A positive mindset makes all the difference - i'm only just learning this.

I will report back once I have biopsy results, i'm seeing ent for him to book excisional biopsy next week, have a FNA week after (don't know why i'm having 2) and then have an appointment with oncology again at the end of september to get the excisional biopsy results... so it will be a while unfortunately! X

Hi, During a moment of weakness I went back to google and found some information on a rare condition called 'Castlemans Disease". It has many of the symptoms we are describing particularly the swollen groin lymph nodes that you two have but I don't. It says that the disease is NOT cancer but mimics it. Ill insert the link here if you wanted a read, just thought maybe it was worth mentioning at your next appointment SunshineEm? www.cancer.org/.../what-is-castleman-disease.html I am still panicking, and it feels like I am being strangled, and feels weird in my me neck when I swallow, like something is stuck! 

Please let us know your biopsy results, and I couldn't agree more with you about the positive mindset, i've been forcing myself to try and remain positive. Hope is all okay for you both. 

E xxx

Hey Ells2098

have you had any more info on your symptoms? I’ve just been referred to a haematologist today so just waiting for the appointment to come through. Will let you know how it goes. Woke up with night sweats last night! Was so annoying, had my window open too!!!!

im bad for googling too so please please try not to do it as it will increase your anxiety even more. I’ve learned the hard way and now all I have to do is think about the situations I’ve researched and then sends me into panic.

keep positive and keep going back to the docs to get more information. Are you allergic to anything? Do you smoke? Also anxiety makes the muscles tense and sometimes makes me feel like I can’t breathe and something is stuck in there.

i hope everything will be okay for you xx

Hi Jasmine27, 

Good luck with your new appointment, please let us know how it goes! In regards to the nights sweats that’s something you should deffo mention, I can understand that must have been scary for you! 

In regard to my symptoms, the swollen lymph node on the left side of my neck is still there, it’s been 4 weeks now since I noticed it. It’s still not painful, and I can move it under my finger and it hasn’t changed in size, it did shrink at one point. My left tonsil is STILL bigger than the right and I still have a red spot on the left tonsil with a vein going into it that hasn’t gone! But still..not ill!! 

Have had some horrendous neck pain on the left side that starts in my left upper back and goes up my neck and into the base of the left side of my skull. It made me feel so sick, painkillers did nothing. My boyfriend even massaged it with deep heat which did nothing. That lasted 3 days last weekend and then went, then came back for an hour or so this Saturday just gone. 

Neck tightness has gone a bit which is nice. Ears have been blocked and ringing for about 4 days (it’s driving me insane) so doctor gave me olive oil ear drops which haven’t done much so far, so have been feeling very dizzy due to balance being affected. Doctor said that I’m a “hypochondriac” and a “worrier” and I need to stop thinking it’s something sinister like cancer. It makes you feel so stupid when they say that..I can’t help having health anxiety, I wish I didn’t!! 

Had a blood test today...let’s just say that is a massive deal for me. I’ve only ever had 3 in my life and I do not handle them well. My Doctors surgery always has to book me in for an extended time slot as it takes them soooo long to calm me down, I get in a right state. My mum came with me and tried to keep me calm but I was still having a crazy panic attack. However they managed to do it lol and are testing the following: 

-Glandular Fever

-full blood count

-signs of inflammation 

-thyroid 

-kidney and liver function 

I should get the results back at the end of the week. Obviously I will be relieved if it all comes back okay but then 1) it still isn’t answering why this lymph node is swollen and 2) blood tests aren’t ALWAYS accurate I’ve heard?

in regard to any allergies, no I don’t not that I’m aware of anyway..but I do get a blocked and runny nose randomly sometimes that lasts a few hours it’s really weird..not sure if it’s dust or hay fever. I also get hives on my hands sometimes that doctors can’t find he cause of as they are so random and adhoc. I also don’t smoke, I don’t take any drugs and I don’t drink that much.

Sorry this reply was so LONG but I wanna be able to help anyone who is panicking like me and detailed answers I find are a massive help! 

Remeber remain as positive as you can xx 

 Hey,

You may have an  ear infection or glandula fever,  have you had any results back ?  I hear it takes awhile for it to make you feel ill but that could be very positive if it’s something simple as that .   I hope you’re feeling okay and you’re not as worried .

 last week on Tuesday I had eight blood test to test for absolutely everything then that evening I received a text saying I have to go in for a CT scan next week which is today .  I have to say it was the most strange and scariest thing ever and I don’t get my results back until next week or the week after .  I’ve basically had a full body MOT .

 Will let you know of results soon .  Remember remain positive and it will all be okay  X

Hi, 

They thought at one point it could be an ear infection but it hasn’t devloped into one, and the blocked ears has gone now, still sometimes rings. 

My blood test results came back “normal” for everything that they tested for that I mentioned above. So baffled!! The swollen lymph node is still there.. so I am still worried. On one hand it’s good my bloods come back good, but on the other it’s not because what is it not picking up?? Left tonsil is still swollen, and I keep getting tonsil stones come out for it. Just PRAYING it’s just a slight tonsil infection or something. 

I’m Doing work experience this week in a PR and Social media office and I was having such a nice time and then I remembered this forum and got so anxious and down again, but as you said just got to remain positive. 

8 blood tests!! How did you do it, I can’t even manged one! I hope the scan went okay!! That’s good that there are checking for everything. Last week I had some chest pain too. 

22 days and counting till my ENT appointment - it needs to hurry up!

Please let us know how it goes, sending positive thoughts your way lovely!! X x 

Hi 

I have been reading your conversations in the hope it will make me feel more optimistic....which has alittle.But unfortunately I have googled myself stupid and totally convinced myself I have lymphoma ....I am petrified !! I have a swollen node on side / back of my neck for weeks ,finally got to see advanced nurse practitioner on Thurs and she checked other areas ...no more lumps.She seemed to think that as lump was moveable it wasn't sinister but when you read online (ooo which I have) it's so contradictory .She said come back in 4 weeks if its still there but it hasnt changed in last month so cant see it changing by then .Have booked  another appoint for Wednesday this time with a doctor for 2nd opinion the not knowing is driving me crazy .Hope all goes well for those waiting for results/appoints etc hope good news is posted soon .

Hi dmar, 

I completely understand what youre going through with the axiety and convincing yourself that you have lymphoma, this is what I have been like for the past 3 months!! All my bloods came back fine and I saw an ENT who put a camera up my nose to see my throat which he said was all clear. He felt my swollen lymph node which is STILL swollen and said he is not worried as I have a "slender neck" so it is likely that Ill be able to feel them more, however he did agree and said it is swollen and a lot more promenant than the others, so therefore I am having an ultrasound scan on the 8th of Nov to see if they can further understand it. 

I have got to the point now where it is what it is and there is nothing I can do. I spent the whole of August and September worrying, having panic attacks and not enjoying my life so I am just going to start enjoying life and waiting till my ultrasound I guess. I know that is all easier said than done, but it does it get a lot easier I promise, just honestly stop googling things, it was the worst thing I did. 

Keep us updated! x 

You are absolutely right X Have promised myself no more Google !!! Thank you for reply helps so much to hear from others going through same experience .Hope all goes well on the 8th .