Neck Lumps and fatigue, waiting on FNA results

Hi guys,

 

I'm new to this forum, but ive read quite a few posts before deciding to post myself. I probably should stop reading posts to be honest, cause it just makes me worry more, haha! 

And I know I should wait for my results before stressing more BUT i'd love to hear if anyone had similar experiences.

In April 2017, I noticed what I thought at the time was a lymph node under my jaw line, on the left side of my neck. This is a common occurrence and even though I wasnt sick at the time, I figured my body might be fighting something off and I ignored it. 

 

After roughly 4 weeks.. the node was still there and the more I felt it, I realised it was two lumps next to eachother. One slightly smaller, but i could feel both easily and if i turned my head, they protrude slightly. They're really hard, and not really mobile. I went to the doctor, and he put me on a course of strong antibiotics and put it down to an infection. 

A week later, antibiotics finished, no change in lumps, the doctor put me on another, stronger course of antibiotics, still thinking infection. At this poing I'd not had any other symptoms of any kind.

Second course of antibiotics did nothing and now itd been 6 weeks. The doctor sent me for generic blood testing, not very concerned. Bloods all came back fine. I wanted him to do more, as i wasnt happy to just ignore this after so many weeks, so he did another set of bloods looking for more specific, but also broader things. Cat scratch fever etc. All came back fine again. At this point it'd been 8-9 weeks and no change, no results. 

The doctor seemed unconcerned but he sent me for an ultrasound to set my mind to ease. The ultrasound didnt show anything obviously sinister. The lumps measured at 2cm in diameter and 2.5cm in diameter. He said most likely lymph nodes and to ignore them now. He said the next step would be an FNA but only if he thought there was some thing sinister going on and he didn't. 

So, I let it get off my mind, and I kind of forgot all about it for a bit. Fast forward to December 2018 and I notice the lumps are both still there. I notice ive been feeling tired, struggling to get up in the mornings, low in energy, not going to the gym, a day at work exhausts me etc. The lumps feel pretty unchanged, not sore but can be uncomfortable to lay on sometimes im not sure why. I figure the tiredness could be due to it being christmas and being busy at work but i dont even know.

I went to a different doctor, wanting more answers this time. Again a series of blood tests and again nothing showing up. The only thing that changes was that my thyroid flares up - TSH fluctuates between being in the 2s to being in the 6s, but doc says thats fine and cant be causing enlarged lymph nodes. I tell him they first popped up in April and he seems alarmed so once he sees a course of strong antibiotics dont help at all, he writes an FNA referral. I did the FNA on Wednesday and I'm waiting for the results. Should be in by Tuesday, but ever since i did it, ive felt so uneasy and nervous. I cant keep it off my mind. 

Just some extra info that could be relevant 

Age: 25, no health issues, no history of lymphoma in family (history of bowel cancer tho, granfather)

Generally lead a very healthy lifestyle, i eat well, i barely drink, i dont smoke 

The only other thing that happened in April/May during the lymph node swelling was some face rashes - theyd last about a wk and nothing the doctors prescribed made them go down (steroid cream, antibiotics). It was red and blotchy with lumps on my cheeks and forhead mainly, hot and itchy. This hapoened three times, lasting a week to 9 days each time and then it stopped happening. Hasnt happened in months and unsure of cause. Other than this, no health problems.

Hoping to have some answers on Tuesday, but would love to hear if anyone had swollen lymph nodes for 6 months for no apparent reason and it was nothing to worry about?

 

  • I do! I have the most supportive partner and family. I'm going to not think about it until the ENT apt, no use stressing before i know what it is hey! Thanks for all the support :)

  • Update to anyone who follows this - had my ENT apt today, and a core biopsy. I should have answers by monday next week! The ENT doesnt think its presenting like cancer so im not really worried anymore but will update with the results anyway :)

  • Hi just out of interest what was your results if you don't mind me asking? I have also had the same symptoms and awaiting my results of my FNA I have also had a body scan and I'm on the dreaded wait for results, my mother had non Hodkins lymphoma, I have a few on my right lymph glands down my left side of my neck, and one in my right thyroid gland and also my groin, I also have raised white blood cells for over a year so yes Iam worried, I have also lost over 5 stones in weight and have night sweats really badly. I hope you are doing well. 

  • Hi Bee123 hope all is well, I'm going through some test atm, as I was having pain in my throat for a while now, then noticed that my right side of my kneck had a slight lump, went to Drs, was referred for bloods, they came back all clear, then had scan, got a phone call within a few days that j need to be referred to a ENT Specialist which was done for the following week, went to see the DR in ENT, was told I had these in 2016, which have slightly grown, they are called thyroid Nodes?, Scan was done he asked a surgeon for second opinion who said does not looked benign non cancerous, and as my mother has a Goiter they would like to do a biopsy, which I agreed to, done that, and a endoscopy,  Dr said my throat looked clear, I also was sent for a CT Scan the following morning, everything was done really fast, I'm now waiting for all the result which are on the 14th of December, I have been having terrible anxiety, and panicking I'm going to be told something awful, I just keep crying as I'm a mummy to a big family. I hope you all are well and Bee123, are your test all clear Xxx

  • Hi i have the exact same thing under my jaw line a solid lump ive ignored it for a whilw thinking the same thing aa yourself. It only seems to flare up everytime i eat? I have a doctoes appointment tomorrow done alot of googling i am concerned now its a solid large lump love to hear back off you 

  • Hi Bee123, would be so good to know what the outcome was of all this. Hope you are ok. I’m just about to have bloods and an ultrasound due to lump/gland in my neck. Trying not to worry but can’t help it. Thanks. 

  • Hi all, 

    Just wondering if anyone got there results and what the outcome was. 

    My 2 year old daughter has a solid fixed lump measuring over 3cm under her jawline, it has been present since Jan 19. Spent 10 days on IV antibiotics with no change, followed by a 7 day course shortly after and a 14 day course a week after that.

    We still have no answers and have been told her next consultant appointment will be august and if its still present they will do a biopsy sometime after that..

    I just worry that if it is lymphoma (which has been mentioned several times) they're leaving it for an unnecessary length of time. 

    Forgot to mention she is sleeping an awful lot during the day, an hour after she get ups she's asleep on the couch and her appetite has just about disappeared did anyone else suffer these issues. 

  • That seems an incredibly long time to wait. I think I would push for something to be done sooner, especially with the size and other symptoms. Just for some peace of mind at least. 

    I ended up having an aspiration on my lump and it is a benign tumour in my salivary gland. I’m due to have the whole lot removed this month. 

    There are apparently many harmless lumps that can appear in this area but I’m thankful mine has been investigated so quickly and will be taken out soon. 

    Take care. 

  • Hi. So I have found this bump in my neck on the left side. I can only feel and see it when I face straight and bend my neck to the side. I cannot feel anything when my neck is straight. Has anyone else had the same presentation? I'm literally sick with worry. I suffer really bad health anxiety as it is xx

  • I'm having  scan next week for lump in throat  at front  they was ment to give me urgent  appointment  ages ago but  the dock  forgot  so went back and now in as urgent  as it has grown  from pea size to plum size in 7 month  doesn't hurt  one bit so so tired .have ent  for head too as keep getting  serious  headaches and ears keep going funny sometimes I can't hear at all.I do have brca1 too so I'm waiting  on  surgery  for that too .just hope this lump is OK but  in my heart I know something not right u just know ur  body fingers crossed  all ok