My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • I just got my smear results today. I had my smear two weeks ago. No letter came through the post to say my smear was abnormal. When i called the doctor she said that I had an abnormal smear result but no action would be taken. I said that's weird. Half an hour later the Dr's receptionist called back an said I would be sent for a colonoscopy. I scared I won't get an appointment letter. I told the receptionist that I needed the actual Dr to call me. I asked him if I had HPV. He said yes and it's sexually transmitted. This made me feel terrible. Does this mean hubby has been unfaithful? Anyway I remember the nurse saying they don't check for cancer cells anymore. They just test for HPV. I asked the Dr if there's a possibility I have cancer. He said no. They did check the cells and there not cancerous. So if that's the case why do I need a colposcopy? So confused right now.

  • You will have pre-cancerous abnormal cells. These are NOT cancer, but potentially turn into it. People see the 'c' word and automatically panic, as I did when I got my phone call. Abnormalities are graded CIN1 - CIN3. It's likely you have CIN1 if you are yet to get a colposcopy appointment and have your results (sometimes referred to as low abnormal cells). Read the feed above regarding colposcopy examinations. Really straight forward, don't hurt and can show abnormalities changing that may need attention; usually CIN3 and some CIN2. Nothing for you to panic about, very similar to a smear. If you are in your late 20s or early 30s, CIN1 is relatively common as your body is still naturally changing and can fight this off itself. Again CIN2 can be found in that age range and be fought off.

     

    As for HPV... There is the stigma that it is dirty... THIS IS NOT THE CASE!!!! 80% of women have HPV and it can flare up and show on results at any time. My results in December showed HPV for the first time. In the 2 years prior to it, I've had no sexual activity, but had a very very stressful time, which is why it has shown on my result this time around and not on my result 3 years ago. HPV isn't like an STI. You can actually get the virus from your mother during birth if she has it. Don't be stressing that your husband has cheated because this is not likely to be the reason you have HPV.

     

    Nowadays smear tests have 2 tests. The first is for HPV. If you come back negative, you get a smear result of clear. If you come back positive, they will then test for abnormalities. This is because our bodies change all the time, so sometimes abnormalities come up. HPV is what causes most cervical cancers, so this is why this is the initial test. 

     

    Hope this helps. If you have any other questions, let me know. 

  • Hi sorry I know this has been answered over and over!! But like all petrified! 31 single mum 2 kids! Went for smear and 6 weeks came back as high grade squamous something....nurse told me but was very relaxed over it and laughed and told me to relax...went to doc and she said the same and told me to relax and not to go near doc Google...last smear 3 years ago was normal! I'm petrified....a week after nurse referred me got a letter to go for colospophy 10 of march.....I'm so scared cant help it! 

  • Sorry I haven't been in touch. Finally got my letter after waiting for a few weeks only for it to tell me to phone and make an appointment. Got an appointment for a few weeks time. 

    Still really nervous about it all. Just a waiting game now :-( 

  • Hi,

    Try to not think about it too much. It is going to be fine! :)

  • Trying to distract myself with work etc to keep busy but it's difficult. I hope you are right.

  • Hi Kat12

    Just thought I would let you know I finally got my colopscopy results back yesterday.... Biopsy showed no abnormalities and have been discharged back to my GP! My next smear due in 3 years. I can't remember if you got your results? Hope they were all ok if you did! 
     

    for anyone reading this I was also convinced it was bad news as soon as I got the letter, to be honest I had a feeling it was going to be bad news before I went for my smear! It is so important to go even for peace of mind. The whole experience helped my anxiety in the end because after I got the letter all I kept thinking about was how much time I had wasted worrying over petty things like if my friend still wanted to be my friend or did I say something I shouldn't of when catching up with friends. It really made me realise we only get one life, look after yourself, eat good, have fun and enjoy life! Ladies it doesn't hurt, it's over so quickly and more times than not everything's ok! I didn't realise how common this was! Good luck to anyone reading this xxxxx

  • Hi Miss88, 

    Yes, mine came back CIN1 instead of the initial suspicions of CIN2, which I was kind of relieved by. I'm due to go back for another colposcopy in June and they'll monitor me every 6 months. 

     

    I'm now having another dilemma... 

    As mentioned previously, it's almost 2 years since I've had any sexual relations. I'm now in the very early stages of something that I would potentially like to go somewhere. Do I tell him before anything happens that I have HPV? I'm guessing that would really throw him off, although he'd be understanding - if you think how confusing it was for each of us to get our heads around it when we have the diagnosis. If jumping back into that world wasn't scary enough, I'm now thinking about this over and over.

    Do I? Don't I? After all, 80% of women have it in their lifetime and a lot don't know. It's unlikely to effect him. But then should he be entitled to know? 

    So confused - help anyone?

    Kat x

  • Hi Kat,

    I know your post was a month ago and I hope it all went well with the guy? 
    i have read the whole tread and I thought I would ask you as you went through something I am going through right now. 
    I am 35 and I have had normal smear all my life. Last year, I got "mild dyskariosis" result, had colposcopy, the biopsy revealed inflammation only. I was told it meant I had no abnormalities. I had another smear last month and it showed "moderate dyskariosis " and high risk HPV positive. I am having my colposcopy next week. I am now freaked out. I wonder if they had made an error the last time and I am now anxious they will find cervical cancer there. How did you stay calm? It's difficult to control anxiety. Funny thing is that I don't even know what I am asking you but reading how strong you were during your experience, made me want to reply to your thread. 
     

    Xxx

  • Completely honest, calm is not a word I would have used to describe myself - I was a mess!!!

     

    It was so scary not understanding why something is happening to you, but all I can say is that you're in the best place you can be. Those people who do not go for their vital smear can have the same you do and be completely unaware. Are you having a 6 month follow up colposcopy? I'm due to have mine the beginning of June, but don't know if it will go ahead in the current circumstances.

     

    With regards to the man situation, I made the difficult decision of delaying going there to avoid having to have that conversation. It's not completely out the window, but let's say that is a positive of lockdown. Just hoping the abnormalities haven't progressed and the HPV has miraculously cleared by the next colposcopy

     

    Sometimes it's just reassuring that you're not the only one going through this. If you have any questions, just ask @cloud77