Hi jolimine, thank you fur replying to me , however I will be asleep it's an early morning telephone appointment I can't seem to rearrange it , I can't stay up until that time then gi back to bed , it's just not possible. I don't want the results yet I need the strength to get through the CT scan when that appointment comes through xx

Hi Spiritlove,

It might be worth phoning your consultant's secretary to tell her that early morning appointments are not suitable for you and why. You would be best to get the biopsy results as soon as you can, as it takes some time for it to sink in, if it does turn out to be cancer.  This might give you a little time to consider treatment options.

Kind regards,

Jolamine xx

Hi u already know it's cancer , they said as much at the clinic , they didn't actually use the word but saud they were very concerned , she dud say maybe some chemo we don't know going to arrange a CT scan and the biopsy would rule anything out. 

I saw the nurses notes they left when they cane out to the house , it says advanced breast cancer with wound. 

Spirit love 

you sound very stressed I'm sorry you are feeling this way , try to stay calm , as it is not confirmed yet I think one day at at time is better , i don't no how you were good about chemo ect when the type grade ect hadn't been given as your biopsy results are not in , seems like you had alot of information from that appointment and it's not done you any favours so I can see why you. Are feeling the way you are .take a deep breath and don't look to far down the line in terms of treatments they have come on so well now I no many ladies who had breast cancers 20 years ago .

please stay here for support we are all here 

Hi there I too have an appointment at breast clinic on Tuesday ,im the same totally ,thinking of my kids growing up without me ,just all over the place ,I don't normally drink but this weekend I'm so having a few wines .

we can do this ,we will get through this,my appointment is Tuesday too,feel free to private message me if you want to chat more .x

Hi Spiritlove,

The CT scan will show your care team exactly where the lesion is and the size of it. This will indicate what treatment options are open to you.

Did you get your phone call this morning?

Regards,

Jolamine xx

Looks like there's a few of us who have appointments on Tuesday. I'm off to the pub to have a couple of glasses of wine. It's been the longest week ever and I have not been at my best at work - quite detached from it all and a little bit grumpy. Just getting through the day and going to bed. 
 

Going to pick my son up from uni tomorrow which will be a nice distraction

hope this weekend passes swiftly

Hi jolimine they rang but I had to sleep so I didn't answer, I had to get some sleep.

They left me a voicemail but I haven't listened to it yet.

But they have just sent me this ? 

How do I upload a screen shot? 

It's a patient portal letter from the same nurse that was giving mey results for 3rd march..it says we have revised your results or something and they deem it safe to to speak to you about your condition over the phone ? 

I'm still worried because when I was at the breast clinic the nurse said he be me a ring in a couple of days so I can give you a date for your biopsy results..I sayd to her at the time do I have to come in for the results as I have a disabled son , she said we can do it by telephone, I said oh right , then I dayd what even if it's bad news and she said yes. Really confused now 

Hi Spiritlove,

I am not in any way technical, but I think that it is just a case of downloading it by clicking on it. I hope that you can get it opened and that it clarifies your situation.

Regards,

Jolamine xx

I'm so sorry I'm not making myself clear Jolimine, I know how to get into the portal letter, I was meaning how I upload a photo onto here this forum, but it duesnt matter as I've said in my previous post what the letter says, the phone appointment is now a week today , initially I felt calm when it says they have looked at your condition or words to that effect and considered it safe to speak to you by telephone. I am also sorry to the original poster for jumping in your thread, I hope you are ok and gulping that wine down this weekend, massive hugs to you and everyone else that is going through this very very scary journey and thank you to all replying and supporting xx

P.s I'm confused because at the breast clinic this nurse who's delivering the results said that I would be getting a date for results by phone..I asked her what about the results if they are bad will I be called in cause I have a disabled child and it's difficult to arrange things ,she said no we can do it over the phone, I said what even bad news, she says yes .

This letter saying she's deemed it safe to give my results over the phone made me sigh of relief but now I'm panicking again because of what she saud at the hospital last week.. wording is everything, she's not typed that letter so it prob just means safe as in what she said at the hospital so it duesnt necessarily mean it's good news dues it?