2ww referral

I finally had some good news today which I didn't expect at all. Writing about what I'm going through really helps me try to make sense of it.

I started getting bowel symptoms in March (going to the toilet more often, bright red blood and pain when eating) and had a positive FIT test but thankfully all other tests (faecal calprotectin, blood tests, rectal and abdominal exam) were all normal. Because of this and my age, I didn't meet the 2ww criteria but I was told I was going to be referred urgently. I asked the hospital how long it should take and they said 20-25 weeks so that would've been by October.

I haven't lost my appetite but recently I've lost a lot of weight and have become incontinent. I had called so many GPs and just felt like giving up as every test just kept coming back normal while I was suffering.

Today, I decided to call my GP at 8am and see if the doctor who had referred me had any telephone appointments available. She sounded concerned about the weight loss and said she doesn't want me to continue losing more weight. I was more concerned that I've become incontinent.

She asked if I've heard from specialists and I said no. I said that I was more scared about my incontinence as it is hard having to live like that but then I got upset and stopped talking. She paused and told me I am young so shouldn't have anything like cancer. I thought that would be it and that she would fob me off. 

She then said she has checked off a lot of symptoms and said a lot of stuff about it and asked if it made sense to me and I said yes but really I should've said no because I've completely forgotten what she said. She then explained to me about the 2 week pathway (which I already know about a lot from research) and I couldn't believe she was actually going to refer me and she asked if I was okay with that and I felt like I was jumping up and down in my head because I couldn't believe I don't need to wait until October (so concerning how long the urgent wait list is) anymore. Of course I said yes. She told me to contact the GP if it's longer than the 2 weeks as soon as possible.

I never thought this would be something I'd be happy about but it feels like I've been waiting for so long so I'm so glad things are moving again. Hoping so much that cancer is ruled out and that I have a less serious condition. 

  • Aw I can imagine having 3 little ones keep you very busy and it  must be even more worrying having health concerns when you have children.

    You're doing the right thing going to your gp. Make sure you still go if you get new symptoms. That must have been shocking to find out there was blood when you didn't see it. This test does look for microscopic amounts of blood which is great for the screening program as it leads to earlier diagnosis or just ruling out.

    It's good that they still referred you even though they knew you have haemorrhoids incase there's another cause. Especially since you mentioned that treatment is unfortunately not working.

    It is so hard not to think the worst. I remember because I never used to have period problems and then I suddenly had a long heavy black period in June, I thought that I had bowel cancer and that it had spread to my uterus.

    It turned out that there wasn't any abnormalities found in my abdominal ultrasound and I want to feel reassured but I want to have other tests like transvaginal ultrasound, cervical smear etc but I can't have those since I've never been sexually active. I felt like just lying so I could find out if something's wrong but I'm religious so I can't lie ahaha and I'm guessing it would be painful.

    They told me I should get it by the 2nd September. I hope it comes sooner. 

    I hope your appointment goes well xx

  • Also I'm studying primary teaching. I was in my 2nd year block placement when the bleeding started. It was just after I taught an observed lesson badly and the observer said my lesson idea was (I don't know if I can say this word on here but it's the word when someone takes their own life) and that she needed to re-assess me in a few weeks.

    But once I started bleeding a lot, suddenly nothing else mattered to me anymore. The first GP that I called sounded angry and said one off bleeding was nothing. I went back to school 2 days later and my teaching mentor shouted at me for praising the kids too much. I became upset and the bleeding became more heavy so I booked a phone appointment with a different doctor for the evening and he told me to come in the next day at 9am.

    It turned out that there wasn't an appointment for me and the receptionist booked me an appointment with a different doctor for the next day. I went back to school and the teaching mentor shouted at me for not preparing my lessons thoroughly. That night, I had a nightmare about her telling me everything that's wrong with me.

    The next morning, I woke up and took everything she 'said' on board and I taught 2 fantastic lessons which she actually praised me about. I then went to my appointment and I was so nervous in the waiting area thinking the dr will be angry like the first one I spoke to.

    I then saw a cheerful elderly lady come out and go to reception and say "dr  (the one I was going to see) has asked for me to book a blood test" so I thought that's really good. The lady was friendly and said "this place is turning into my second home". Little did I know it was going to turn into my second home ahaha.

    It was then my appointment and I was so scared when I walked in that I don't even think I said anything. She probably thought I was the complete opposite of the cheerful lady she had just seen. She then introduced herself and told me that she read my notes from my phone appointment and that she found it upsetting to read. That was so kind of her to validate my feelings, I felt so calm after that. 

    She looked so sad when she listened to me. I was so glad I wasn't with the angry doctor. My abdominal and rectal exams were normal so I was so scared she'd just leave it there. She then gave me the FIT test simply saying it looks for blood and asked me to book a blood test at reception. I was so relieved that I was going to have tests.

    It was worth waiting 5 days to have an appointment with her because she became my allocated GP as she had to refer me afterwards. It makes such a difference when they are compassionate. 

    I decided to leave placement as it got too stressful and I wanted flexibility with appointments. Now I'm just studying the theories of primary teaching. I don't know if I still want to be a teacher but I know I want to positively impact children's lives. Hopefully one day I stop being incontinent because I haven't left my house (other than to go to appointments and shopping) since it started.

  • Ladies can I ask if you got colonoscopies and if you got an answer for this? I have loose stools and heartburn for 2Months. I'm really anxious about it :cry:

  • Hello [@Smoore921]‍ I did end up having a colonoscopy because I had a positive fit test that is the only reason why my doctor would give me one I had a few biopsy's and the doctor also removed what she though that's a suction aterfact when she suction my colon to hard but it turns out it was a polyp, I k or know this from ringing up my doctors constantly, haven't had anything from the colonoscopy team so no idea if I'm going to have to do anything else but I'm like you I was constantly getting heartburn it stayed for ages then would go and then would come back so I'm not sure what's going on with that side of things. I find I'm always ringing up my doctors thinking something is wrong with me and that I'm going to die :( I've suffered with health anxiety for over 7-8 years now and it hasn't been to awful lately until my mum was diagnosed with cancer a few weeks ago now my anxiety is through the rough :( if your worried about your stools you could ask your doctors to do some stool samples? I have had h pylori in the past two so have been tested again for that, but maybe ask for a fit test?

  • Thank you for your reply. My heartburn started in July and then constant loose stools. Can I ask if you were getting loose stools and if you still have it? My stools are never normal which is really worrying me. My doctor thinks my acid reflux has flared up and the anxiety and stress has given me loose stools. I'm really struggling to believe it has caused me 2 months of symptoms. My bloods are normal and fecal calprotection normal too. Hpylori negative. I'm going insane with worry, googling constantly. My health anxiety is chronic and I can barely function when I'm like this to be honest :cry: I'm mum has cancer too so I understand how that flares your fear and anxiety. I have the FIT test here and will leave it in next week. I'm just so terrified x

  • That's okay and I would say the where loose but they where all over the place sometimes I could go to the toilet up to 8 times a day, I know stress can cause an awful lot of problems aswell as anxiety it's crazy some of the symptoms it can cause I've joined a few health anxiety apps that seems to help abit. Oh god stay away from google it's the worst think you could ever do if I started to google I will just sit there a panic not like I don't do now anyway but my anxiey is so much better when I don't google, I just find I speak to the doctors a lot more. I get what you mean I have 3 children and when you have health anxiety it's hard to think about anything else are you currently taking any medication? Yes do the fit test and just had it in as soon as you can xx

  • Yes I am on medication for my anxiety. I find it impossible not to google, I tell myself I do it to reassure myself of other non sinister things it could be but it always terrifies the life out of me! I will leave the fit test in next week, il be terrified waiting for those results. I just wish my stools would go back to normal do you get pains with it at all? I don't have stomach pains so it can't be ibs as far as I know. I just think everything points to something sinister. What else would cause loose stools constantly and heartburn. 
    So are you waiting on results now then? Do you still get heartburn?