Hey! 
 

so glad to hear you're doing ok and side effects are manageable, you're smashing it! :D Had my first session Wednesday and thank god I've been doing ok similar side effects to yourself but nothing drastic all manageable, very thankful!

So glad to be started now!  My picc line has been bothering me and quite uncomfortable but other than that no real complaints. 

how are you finding day to day life, have you been getting out much or are you isolating, so much Covid talk on the news.

Did u manage to find how to private message?

sending you strength and positivity xx

Hey hey!

Sorry I've been quiet for a bit - with chemo this week and Christmas planning coming up, I think my brain just had a system overload for a few days haha. 

I hope you're doing ok!! I'm so glad to hear your side effects seem manageable. Are you stil feeling ok? No bad sickness, headaches, body pains etc? 

I heard the picc line might take some time to get used to, I hope it settles soon. The've given me a port in my arm and took me a bit to get used to, but is all healed now and doesnt give me any issues so hopefully similar story for you! 

Day to day is ok in all honesty. I try to do as much of my normal life as I can - I still work for example. Just not really the week where I have chemo, but I like the fact that it gives me a routine, people to talk to and not think about cancer 24/7. But I do work from home and try to be a bit mindful of who I see, especially with covid again (although I'm so so tired of covid now, I thought cancer was enough to deal with for a bit?!). How are you dealing with it at the moment?

Regarding the private message - I actually had to go on my laptop and tried adding you as a friend. It says request is sent, but not sure if that works on your phone? Hopefully you could see something on your side haha! 

Speak soon, you're doing awesome - 1 step closer to beating this thing!! Xx

Sorry to hear of your diagnosis. Hope you are managing the best you can be. 
 

I'm 37 and was diagnosed at 36 with breast cancer that is E+ and HER2+. Mine was in one breast and multifocal (2 lumps) the main one was 3cm and the second was 1cm. I had 6 cycles of chemo and the herceptin injection a mastectomy with reconstruction and lymph nodes taken. I have Zoladex implant once a month. I am nearly done with radiotherapy and on another treatment TDM1 for 12 cycles. I've just started taking Letrozole as Tamoxifen did not agree with me. I did not go for the egg freezing although I was offered this. It would have delayed my treatment and I wanted to get started and I do have a son. 
Im happy to share my experience or answer any questions. 

Hey hey!

I hope you're doing ok. How is treatment going so far??

I just wanted to give you a heads up about a 4 weekly course I'm attending from Breast Cancer Now. They have a Younger Women Online 4 weekly series for young women with breast cancer, and every week have a different topic to cover (fertility, intimacy, relationships etc). They start in February in case you might wanted to meet some fellow younger women with BC and get some more information :)

Let me know if you want more info!

Thanks, 

Elvira

Hey Elvira,

It's been a minute!  How are you?!

just wanted to check in and see how everything has been going for you, I've finished treatment and had lumpectomy and sentinel node dissection surgery 2 weeks ago, getting results this week which as I'm sure you know is always nerve wracking! Praying for the best.

I was supposed to have my herceptin Phesgo injection this week but it's been delayed a week as they apparently haven't read my surgery results and I can't have it until they have the results so I'm a bit confused and low-key stressed about that as my mind sometimes wanders to the worst but I'm trusting this is just protocol and all is fine :)

I remember you were a bit ahead of me so I'm guessing you've also finished treatment and had surgery? Hope all went well and that you're doing good in yourself.  If you have received surgery results hope they were all positive!

Sending all the love and positivity! <3

Hi Katy! 

I'm doing ok thank you, how are you?

Apologies for the delayed response, I had my surgery last Monday so have been recovering for the last 2 weeks. I had a mastectomy, with axillary node clearance and immediate reconstruction, which went well however turns out to be a bit more painful than I had thought haha.

I'm surprised you can't have your Phesgo injection before your results, as I've been told I need to have them for 12 months regardless of the outcome. But I hope you meanwhile have had your results and have a bit more clarity? 

I haven't finished treatment yet (although it's getting closer and closer!). Have an appointment with my oncologist next week to discuss when I'm starting radiotherapy, but that will be the end of treatment. And am happy to report that I've received my results from surgery yesterday and have been declared NED! They couldn't find any cancer anymore in the removed breast tissue or lymph nodes, so am really happy at the moment. It feels strange though as in my head that should be the end of it, and I'm still looking at radiotherapy and another 8-9 months of Phesgo injections. But its a massive step in the right direction. 

I hope you're well and I hope your results have come back with good news!

Sending hugs xx