Hi Both 

I am having a bit of a wobble today.Had follow up appointmnt with Oncologist , he said the node they took the biopsy for is cancerous - wasn't really expecting that. I know its treatable but a bit of a shock.

I also felt another small lump in the other breast a couple of days ago , he said he could also feel something -could be a cyst (thats what they said about the first one !) I am having an ultrasound for the other breast.

 Chemotherapy planning appointmant will be 7th or 14th of December to start about two weeks after that.

Don't feel like telling people , when they ask how the appointment went , have to get my head around it first.

How did you get on today Mum ? 

Hope you got in touch with the doctor Ned

xxx

Hi Minty

Sorry to hear this.  This journey seems to be full of the possibility of things changing at every stage. Will they remove the other nodes or will chemo deal with it?  Hopefully the other side is just a cyst - did you have an MRI when first diagnosed? 
 

I can imagine you wouldn't want to speak to people really. It's difficult for people who haven't been here to understand.

I'm here if you need a rant or a chat or anything.

my appointment isn't until late afternoon - I'll let you know what he says.

Ned - did you manage to get anywhere with the doctor? Sorry to hear Covid got you! At least you're hopefully immune for a bit after this! 
 

xxx

How are you feeling tonight Minty?

consultation was mixed - they got all the cancer out. It was smaller than they thought but there were bits in 17 out of 30 nodes they took.  He's still positive and the plan remains the same but that doesn't sound too good.

x

Hi Mum 

Sorry to hear that , you must feel a bit shocked.Thank goodness they took them all out and he is still positive so that's good.it's such a rollercoaster isnt it , every time I go i feel there is something else that's added on to this worry list.

I am a bit calmer tonight but friends are texting concerned and I  just dont want to tell them the whole story.

Are they planning for you to have radiotherapy after chemo do you know ? I asked my oncologist about node clearance but he said  radiotherapy is just as effective , sometimes I wish they would explain their decisions a bit more.

Did they indicate when you might have a chemo planning appointment ?

Sending you hugs -lets hang in there and hang on to getting this *** sorted xx

I have lobular cancer too and also they think it may well have spread to adrenal glands from CT as a mass found on there. 

Hi Silkie

So Sorry to hear about what you are going through, your head must be all over the place.

Sounds like you weren't given much support at the hospital.After being told I have it in my lymph node and possible other breast ,my BCN was talking to me about what it all means in the corridor with cleaners and everyone else listening in , I could go on .... but the main thing is getting the treatment.

I think they will act pretty quickly once they know which way to go and then you have a plan and something to focus on.Waiting is horrible.

Always here if you need to  talk xx

Hi Minty

yes it's knocked me for 6 but it is what it is I suppose. How are you doing?

yes he said radio after chemo - not sure where and for what but I'll take anything!! He's way more positive than the predict tool so I hope he's being honest. 

planning appointment should be next week.

hugs back - yep, let's do this! **** off cancer!

xxxx
 

Hi Silkie

sorry to hear that - what are the next steps for you?

you're in the right place here - we're always here to listen 

xxxx

That's good he is more positive than the predict tool , that makes me feel happier too !

Do they arrange for any more scans elsewhere  - I feel like they should check , do you ? but then again the treatment plan would be the same anyway ?

I'm OK thanks decided to be a bit vague to some friends when appointments are etc as it gets a bit overwelming and I have realised not everyone needs to  know everything, I need to save a bit of headspace for myself.

Got Oncology appointment through for 14th 

How are your exercises going ? I can lift my arm well above my head , its the ones where you lay down  hands behind your head and push elbows down , that are tightest .Can't get my elbow down very far yet.

Speak soon xx

Thanks Mum and Minty

They have said I need a repeat CT to get another look at adrenal gland and see if its cancer mets, think on first look it maybe be, then 2 weeks later doctors appointment but they then left so I have no idea what happens then other than my stage 3 plan of surgery will be cancelled and said they would just do tablets. But did not say what tablets, doctor said was pointless to tell me now and left. I have no idea how this ct will be conclusive if old one isn't and not sure if it will go to biopsy after that as seems to be only sure way to tell but its dangerous and more time with no treatment. The issue on lungs they think is likely not cancer and no further investigation planned they think its scarring from covid. Also said I have weak bones.

Was completely devastated by it and the lack of treatment plan or date and just spent whole weekend crying worried for my kids. Have a lovely husband at least but it sounded very grim and no support there though breast nurse is nice but she just took me to husband and said to phone on Monday with questions. I was coping OK until the appointment, have a couple of lovely ladies with cancer on another forum, one very similar circumstances and one grade one but local and very kind which helps. Friends are a bit variable and more of a burden to update some of them, which seems more for gossip than for caring, and one lovely one. 

Hope you are both OK. I am trying GP and hospital again tomorrow to see if I can get anywhere. Atm just want to hide under my duvet and not go to hospital ever again. So hard going alone and so hard the news is just worse every time. I don't want another scan, it will just be more problems.