Diagnosed with sarcoma

After 8 weeks from the removal of a lump from my arm I have had the diagnosis todsy that it is a sarcoma. I had a ct scan last week and that has thankfully come back clear too.

I didn't get much more information as it was the dermatrologist who phoned me as I was originally under him. He said the next stage now was another operation to have further skin removed. 

Sarcoma seems to very rare and not much information out there.

I am just wondering has anyone been diagnosed with sarcoma? 

Parents
  • Hi 

     

    how are you getting on? did you find more information for sarcoma? The McMillan support group is also supportive.

    i had a biopsy taken last Wednesday by a sarcoma team, they said it will be 10 to 14 days before I get my results. 
     

    Try and stay strong so you can fight it all the way 

     

    Tracie 

  • Hi

    well my story still continues. The sarcoma MDT have decided to send the lump to Boston for a 3rd opinion on what type of sarcoma it is, so awaiting on them to come back now before setting a treatment plan up. 
     

    I have had a lot of information now on it so do feel quite clued up.

    how are you doing? The wait isn't nice Isit. I had mine removed 11 weeks tomorow. I am hoping by next week I finally know what is going to happen going forward and have a date for my next surgery.

     

  • Hi 

    wow the wait continues for you, sorry to hear that. 
     

    being clued up will prepare you and give you confidence for what happens next. Let me know how you get on please and stay strong.
     

    the wait and not knowing is still happening for me!! Biopsy taken last Wednesday morning next Wednesday will be 8 weeks from when I went to the doctors about the lump and in that time I have been sent to a consultant who then sent me for an MRI, when he got the results from the MRI he said it was definitely not a fatty lump and what ever it was it was in the deltoid muscle 2.5cm, he then sent it to a sercoma team, who then asked me to go in for a biopsy and this is were I am at. 
    7 weeks this week so not to bad compared to others  

     

    stay strong 

  • Hi 

    How are you? 

    Any further news on which sarcoma it is and the treatment plan for you?

    I had my biopsy taken on Wednesday 31st March and I am still waiting on the results!! 
    the nurse said yesterday when I phoned that some of the results were back but they are just waiting on the fish results what ever that is. 

    the waiting is horrendous 

    stay strong 

    traice

  • Hi 

    i am

    So sorry for the delayed reply! Have you had a reply about your results now? I have had all the info Marion in the type of sarcoma

    i have and this week I went in for my second operation which has Hopfully removed all of the affected tissue now and got a clear margin. So again a waiting game on results.

     

Reply
  • Hi 

    i am

    So sorry for the delayed reply! Have you had a reply about your results now? I have had all the info Marion in the type of sarcoma

    i have and this week I went in for my second operation which has Hopfully removed all of the affected tissue now and got a clear margin. So again a waiting game on results.

     

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