Ovarian cancer

So I have been thrown into turmoil again. Had my hysterectomy last Thursday. Consultant said couldn't find any sign of diseased tissue so was quietly confident that my outcome was good. Today he gets histology report and it informs that cyst was cancerous and rogue cells were found in the omentum wall. Now I have to stay chemo. Absolutely terrified about what this means. Has anyone else gone through or going through similar???  Any support would be so helpful. Thank you 

  • Hey Meetski

    How are you getting on with your chemo? 
    I started mine for OC on the 19th, first one down 5 to go! 
     

    xx

  • Hi Loulen

    thank you do much for asking. I am just approaching my 3rd round in 2 weeks ( half way). It's been a bit up and down really. First round gave me false hope I think as had no nausea but now after 2 nd round I have struggled a bit with feeling sick. I am sure it will pass

    how are you coping?  I am still scared every single time I go. I still cannot believe I have cancer. It doesn't seem real but then there's days where it's really hard not to think about it and get a bit negative. I guess it's the same for everyone isn't it?

    Well done for getting round 1 out of the way . How often is your treatment?  Are you having the cold cap? 

  • Hey 

    Good to hear you are nearly half way thru, I'm feeling the same in total disbelief of what is happening. 
    I must admit I feel like I got away lightly with the first one as I only suffered with achy bones and legs for a couple of days, and a bit of tiredness. I know it won't be as easy next time. Do you know what mix your chemo is? 
    My next one is next week, then will only have 4 more to go. Sounds better if I count down!! 
    Decided against the cold cap but hair loss is starting, every time I touch my hair loads fall out. How are you getting on with yours? Are you finding the cold cap ok? 
     

    xx

  • Hi

    i am tolerating the cold cap reasonably well. I think I got used to the idea of a frozen head!  So far I haven't lost too much hair. I can definitely see it is thinning slightly.

    like you I am counting down. I wonder if when the treatment finishes whether I will be relieved or more scared without the security of the treatment?  Do you have the same fears? 

  • Hiya

    Yes totally feel the same. Whilst I feel the side effects, and in a strange way losing my hair, I know it's doing something! 
    thankfully mine had all been removed thru surgery and doing chemo for the microscopic cells. Not sure how I would cope knowing all of that was inside me! 
    I'm worried about the scans, I had 3 ct's and an MRI that didn't pick up part of the disease, so not sure I fully trust one now. Will be interesting to see what my CA125 score is next week, haven't had it tested since Nov last year, pre op. 
    it's a very scary time in more ways than one, whilst my friends and family have been absolutely fantastic they just don't get my fears! Xxx

  • I hear you. I too had everything removed and then histology revealed microscopic cells. After the op they told me they were optimistic that there would be a positive outcome. But then they found the cells and then had the conversation about chemo. I am trying to stay positive but you can't take anything for granted with this disease so that is where my fears come from. If I hadn't pushed so hard for a referral and then paid privately this would not have been picked up till it was too late. So now I am extra vigilant and fear that is how I live every single day !  Before this I have never had any illness and never had any medication so this is a complete shock! 
     

    I have fantastic support from my family but my absolute rock is my best friend who has had breast cancer last year and a long and gruelling  treatment to follow. She is now clear of cancer so she is my positive example to follow. She never gave up on matter how tough it got

    i hope you and I can continue to share our cancer experience. There is something so reassuring to know we are both at the same stage of this journey and I find that so comforting 

    Please let me know how you are getting on. Wishing you all the best for the next round.

  • Hi. I thought I would check in with you and see how you are doing?
     

    I just finished my last round of chemo 2 weeks ago  I am slowly getting my tastebuds back and starting to feel more normal. I've had my post Chemo CT scan and await my appointment with my Oncologist to find out where we are. Terrified of having that conversation. I don't dare hope

    I hope you are ok and feeling well and healthy xx