Hello River

Di you have anyone to back you up? You are in a really difficult situation.

Sounds like the private hospital is the best bet. 

Around if you want to chat. Ceyenne

I'm so sorry to ask questions on your post and I'm so sorry to hear about your diagnosis. I'm going through a similar situation myself (I'm 28 years old) I was wondering if you had lost a significant amount of weight? I am really struggling with muscle and fat wasting and I'm still waiting on my diagnosis but they've detected a mass in my liver and some abnormal lymph nodes and my guess is it came from the colon (I stupidly just thought I had IBS) but let's face it, with my age that wouldn't have been taken seriously anyway. I'm just at a loss

So sorry I hijacked your post Si77, I was feeling desperate at the time.

Like you I thought I was fit and out walking everyday, I was the one in the family lifting my sons wheelchair and seeing to his needs, doing housework, just normal life.

 I had swollen glands, I didn’t panic, waited 2 months before going to doctors, they examined me, did blood tests & that was it. One week later I thought my glands were worse so went back to the doctors, this led to a diagnosis of Metastatic breast cancer, lymph nodes, stomach lining & bones, 5-6 months without treatment, 2 years with.

Its almost surreal, surely it can’t be true, even right now I’m lying in a hospital bed wondering if I can really be as bad as they say, tomorrow I’m having a scan to see if I’ve deteriorated which may prevent me taking from in the trial I’ve been offered.

Best of luck with your treatment and remain positive, as Denise on here says there are lots of people living with cancer.

I live with my family and have friends supporting me but instead I find myself wanting to protect them.

 I do trust my oncologist so will take his advice after getting the scan results, but the fact he now sees the urgency to begin treatment worries me.

Hi Krissy. Have you contacted patient liaison? Sometimes that get things moving. Can't believe you've lost all that weight and they are not making investigation a priority.  A mass in your liver should be a red flag and be given prompt attention. If I were you I'd be tempted to turn up at a and e and say you are in terrible pain. You'll probably get all kinds of tests done there.

Hi Si,

Really sorry to hear about your membership in this crazy cancer club. 

I was diagnosed Stage 3 Bowel cancer at 35 a week before Christmas 2017. But, I'm still here. Post chemo, then chemoradio and finally 2 operations... and so far, so good. I just take each day as it comes. 

There are many great examples of people that are still living with cancer and cancer treatment. Life does change, mainly because you spend more time in waiting rooms, but you appreciate life in a new way. 

I came across the 'You, Me and the Big C' podcast quite early on and it's been so good to help focus on the positives- one of the presenters is a stage 4 bowelie, too. The other place that helped me was the Younger bowel  cancer Guys and Gals group on Facebook. Might be worth checking it out.

Keep reaching out for support, it makes so much difference. There is lots out there. 

Take care,

Rachel 

Well everything has changed. Scan results were bad, my bowel is now riddled with cancer & at risk of a blockage. I’ve been transferred to a private hospital where all the cancer patients are being looked after & beginning chemo tomorrow. I think the hope is to shrink the tumours in bowel before I have to have surgery as if it gets blocked it’ll be an emergency & then I won’t be able to have chemo. This all means I’m no longer suitable for the trial.

Hi River3 I am so sorry about your scan and the trial but hopefully the chemo will help and you dont have many side effects.Keep me updated how are you going on.I am here to help with any advice if you would like to.

Take care

Denise

Feeling really alone and upset tonight, after being in hospital for a week on a liquid diet so my stomach & bowel could be rested  before my 1st chemo session I feel it’s been a complete waste of time. Over the week we’ve worked out the best time in evening & night for me to have anti sickness pills & gaviscon for it to be effective & I’ve had 3 nights without vomiting. Tonight despite me asking a few times I never received anything for 3 hours, by this time my stomach was bloated & full of gas, I was passing wind & belching & getting cramping pains but they were too busy to see to me. Now despite having had medication it’s had no effect, I can’t lie down without acid coming into my throat, even sitting upright isn’t helping . My stomach hurts & feels like it did last Friday when I had to have fluid drained off, I heard them describe me as the lady with the big belly. I’m just praying I don’t vomit as I know the oncologist is concerned about how my stomach & bowel are going to cope with the chemo. Instead of one larger dose tomorrow the plan is for me to have 3 smaller doses over 3 weeks. I know from experience that even if I don’t vomit my stomach is going to feel like this all night now & probably in morning when I go for my session. There’s been some lovely helpful staff here why couldn’t they have been working tonight. I’m very worried if my chemo session could be delayed if my stomach is still so swollen in morning

Hi. How strange. I'm 43 too. Diagnosed this week with incurable stage 4 Bowel cancer .. no signs and feeling ok . now I'm reeling with the news. Where do we start.. I'm waiting on my oncologist meeting next week to discuss chemo to control it.. maybe we can stay in touch as support. ️