Just diagnosed today Grade 2 Invasive Ductal

Hi,

I guess I am just looking to find someone who has been on or is just starting on this jourbey that no one really wants to take.

I have just been diagnosed this afternoon with Grade 2 Invasive Ductal Carcinoma. ER+/PR+ , but no results back on the HER2 or any idea of stage.

I know that my lumo is 2ccm by 1.2cm and so far looks to be well contained, no lymphovasuclar involvement evident yet which is good and my chest xray is clear.

I am seeing the consultant on Friday morning and my breast cancer nurse says that the treatment plan so far is a lumpectomy with a sentinal node biopsy which will probably take place next week as a day surgery patient.

Are there any questions I should ask that you who have been through it all or are going through it can advise?

It all seems relativeky straightfoward so far and I feel strangely calm after a week of waiting for the results.

When do they normal advise you of what drugs, chemp, radio therapy you may need?

This forum has kept me the right side of madness this past week so thank you to you all :)

xxx

 

  • Hello ladies 

     

    Hope you dont mind me butting in!!!  I had 3 x FEC chemo and then chemo was cancelled but they brought my surgery forward, lumpectomy and sentinel lymph node removal.  Results were clear nodes but close posterior margins. I asked my oncologist what were the margins and he said there wasnt any!!!!  But a second surgery was not priority and they will treat with an radiation boost!!!! I have 3 more chemo then radiotherapy. I am so worried that it's going to come back!!!   I have  grade 3 idc  had a 5cm tumour but clear lymph nodes.

  • Thank you IzzyUK, appreciated. 

  • Hi IzzyUK

    Sorry the journey has started that way for you. The last thing you need is misinformation or limited information at a crucial time as this.  I requested a second opinion from a private consultant and I am glad I did.  Before each surgery the BCN would give me an appointment and discuss in details everything the consultant said. That was of great help. 

    I had node biopsy during surgery, had a radioactive injection the day before surgery injected direct into the nipple that guide them to the sentinel node.

    I was offered I think it was DIEP surgery where they use a flap from the back shoulder to increase the volume of the breast.  When I  decided against it my BCN told me if at a later date even  10 years later I notice a difference and want to have the surgery then I could.

    Good luck with everything, I would say push for the facts they owe you that much.  Without the facts, pros and con it is hard to make a constructive decision. 

    Fagie 

  • Thank goodness we are having such lovely weather that we can get out and walk of the wobbles a bit. I am finding my garden is a great help at the moment, and, like much of the rest of the country I think, have planted loads of seeds over the past two weeks and am watching them like a hawk for signs of them sprouting!

    I had an attack of the wobbles again yesterday, I feel as if I am constantly waiting for terrible news to hit as so many people on this forum appear to be told initially that it all looks good and then after pathology things change enormously. It seems like tempting fate to believe that it could all go well.

    I think I am starting to drive my ever patient husband a bit crackers!

    Anyway, onwards and upwards, what else can we do.

    Take care xx

     

  • Thinking of you today when you get your results xx

  • Thank you - I am like a cat on a hot tin roof!! 

    xx

  • Hi,

    Just thought I'd let you know that I finally got the call from my BC nurse at 3.30 ( what a long day of waiting!!) 

    It seems to be good news, the lump has been removed with clear margins, clear lymph nodes and the size has remained at 2cm ( T1C) and Grade 2.

    I am seeing my consultant tomorrow morning for more info on the treatment plan but tonight I am feeling very much relieved.

    I'll let you know how tomorrow morning goes.

    xxx

  • That's really good news! You must be so relieved! The good news was worth the long wait!!

    Hope you have a nice evening xx