Hi Ali omg you have given me hope 10 years  on the meds 

I also was diagnosed 2010 with breast cancer and never thought I would survive and treatment then I had horrific side effects 

I was diagnosed with secondaries 4 weeks ago as they had to leave some cancer behind in 2010 as it was too close to a main artery and it has been controlled with letrazole and last scan September there was hardly anything to see but in March I felt like I had trapped a nerve in my back and had tingly numb sensation in my stomach under my breast so they did a scan and the arm pit cancer had grown and spread 

like most people you think this is it won't be as lucky again but thought no I can do it again! I am nit that old and have lots to live for but the success of this treatment I was unsure of as in the consent form it said continue to take unless nit tolerated or disease progression .. this planted a seed but your post had weeded that seed out and given me something to think about !!

I am day two into second cycle and so far so good I had mild symptoms of tirednessnausea and diorrhea and tingling in hands so fingers crossed 

can I as you do you work?? Did you have any time of if so? I struggled with being tired and working initially and wondered if you did and did it pass the more cycles you take??

Well done!  
 

I'm glad I could help.  
 

Unfortunately I had to get ill health retirement from work as at the time I was severely ill and unexpected to live on as long as I have....yeehah.  I am a lot more tired than I used to be so I'm not sure I can reassure you on that score....

I was full time and considered going part time but my doctor advised against it as it would affect work life balance and also I would lose out from a financial point.  I was retired at 43!

life is good, I have good support and I'm also a born again Christian who believes in the power of prayer...and not a day goes by without my 'family' praying for me. God is so good.

I have gone way past expected longevity and docs are so happy that I continue to tolerate the treatment. My side effects are...dryness. Mostly.  Dry hands, feet, eyes, nose, mouth, skin in general. But there's moisturiser in every drawer in my home lol

wishing you every blessing, stay safe, stay 'healthy'

love, Alison

Hi. May I ask where was your primary cancer and where did it metastasise to?  I have been given the option to try this drug but having read all the side effects I am unsure. 

This is good to read. I start Capecitabine tomorrow 

Hi Folks,

I did not have the positive experience that most of you have discussed.

I was commenced on a regime of 10 oral Capecitabine tablets a day (6x500mg + 4x150mg)

which began on the 1st February 2023.

Day two I began burning up, feeling sick and then the chest pain came at me like someone was sitting on my rib cage and queezing the breath out of me. 

I had an ECG and was immediately taken off them. They were not compatible for me.

(I have a condition called Gilbert Syndrome that appears to hinder the liver breaking down and absorbing enzymes of particular medications, so its somewhat complex)