Lung Cancer Stage 4 at 41 which has spread

I found out on June 3rd that I have stage 4 lung cancer which has metasized to the right adrenal glad, stomach, and bone :-( EMERGENCY radiothreapy in July as bone cancer showed it was 2cm away from hitting spinal cord, I had repeatley gone back to my GP at the beginning of the year as I was suffering from excruaiting shoulder pain, I was palmed off and told it was in my head... Long strory short I went into a walk in clinic at the end of May and they suspected gallstones, How my life CHANGED on the 3rd of June... I started chemo on the 9th August to be told after 2 cycles it wasn't working and CT scan has now shown 3 small nodules on liver, I'm now on a new type of chemo Doctaxorel, I've had 2 cycles one more this Thurs and will be re - scanned, I'm absouletey dreading the results... But I'm a FIGHTER!!! The last couple of days I've had real bad fluid building up in my legs and face, been feeling quite breathless too... Some days in my head I don't even feel like there's anything wrong with me...this is one *** of a disease and I feel lost at times...Sorry if I'm having a rant.. Xx

 

  • Hiya Harry, 

     

    Thanks so much for your message really means alot :-) 

     

    I sometimes still think I'm living in a bad dream and I'm gonna wake up from this nightmare...

     

    Are you suffering too?  This is one B*****d of a disease!!! Why does life have to be so cruel??  I tell myself If I allow myself to go down, I'll never get up... I'll ALWAYS FIGHT!! ! 

     

    My pain is not being helped by the heatwave we're having,  feeling quite out of breath and really bloated (When I started chemo last year  I couldn't of been one of those ones who lose weight, "Oh NO I pile on 5 stone with steriods..." (Originally last June I  was 11st and 5ft 8 tall was a good weight for my height) My steriods are now being tampered down from tomorrow, so no doubt l'll have more pain due to inflammation... 

     

    Roll on Thurs is all I can say I get to speak to the Ongoligist, I want some answers to lots and lots of questions I HAVE... 

     

    Thanks again for your message, I'll. Look forward to speaking with you soon. Julie x

     

     

  • Hi Julie, I'm not suffering at all, thanks. Regular check-ups but all good so far. My chances of a recurrence are now low but the anxiety never goes away completely. Hope you get clear answers from your oncologist on Thursday.

  • Hiya Harry, I'm glad to hear that your not suffering :-) hope you don't mind me asking, what Cancer did/do you have? How long ago was you diagnosed? That's really great news that your chances are low, I can understand the anxiety... Mine at the moment is STABLE so I know the feeling...always dreading the hospital appointments.

     

    Thanks so much for your message, I'll be absolutely Bricking it this afternoon, I'm going with a POSTIVE MENTAL ATTITUDE (PMA)

     

    I'll post on here how I get on, take care and chat soon 

  • Hi Julie, Penile cancer. Thankfully caught very early so minor surgery only. And very little chance of a recurrence now, as it has been a few years. Good luck this afternoon!