Hi lila,, welcome to the forum the club nobody wants to join, buy the looks of your letter you want more than a good rant, you really been messed about to much, that's trouble with these EXPERTS they still get things wrong and we're on the receiving end of the mess, hopefully you won't have long to wait now until you know what treatment your going to have,, next time you go take a baseball bat with you you might be tempted to use it, again hope you get sorted soon. Good luck... Billy 

Hi Lila 

Wow you have been messed about I’m so sorry to hear that. Your rant is quite justified and actually if that had been me there would have been a lot of Swearing !! I hope from now everything goes as smooth as possible. Keep us informed. I start my second cycle of chemo on Monday. 

Hi Lila,

My heart goes out to you...it’s dreadful the way you have been messed about and you damn well deserve to have a rant!!!! I think all of us on here have lost our confidence I know I have and I’ve had my operation and it’s gone so why am I not happy?

Feel for you,get mad now and demand answers as to the delays? Maybe if you have a good GP they will push for you.... it’s all the waiting that then plays on our minds 24/7...

Hugs lovely 

Jackie 

Thanks everyone im just massively frustrated and needed to let things out. I think it’s the gp who made the mistake in the first instance hence waiting 4 months for the initial appointment. They rang me at one point and asked if I would still like to be referred. To top things off I had an 8.30 appointment on Wednesday and didn’t get in to see the dr until 9.20 who looked quite honestly hungover. I know we are all human but I had really built myself up for that appointment and I’m still no further forward. I’m back on Wednesday so will post again and update you on any progress. 

Aww Lila,

i really really feel for you....you want and need answers as soon as,I know and understand that your mind goes into overdrive and you can’t think of anything else.... 

Hang on in there Lovely and push to get seen....

Much love and hugs,here for you xxx

Lila I feels so cross that you have had to go through all this. Refuse to budge from that Doctors until they give you the answers/plan of action that you need. When I was first diagnosed with a rare pancreatic cancer I was told I needed to take creon tablets immediately to help digest my food as it was so painful to eat and the weight was dropping off. It took over 7 days to get these tablets with a lot of phoning and I lost another 4lb. I waited a long time to see the Consultant and I was actually at the hospital ready for my appointment when they phoned me to cancel it, I felt like crying my eyes out. I said I wasn’t leaving until I saw someone. So stay strong. We will all I’m sure be waiting to hear how Wednesday goes. Lots of hugs  

I can relate to the anger and confusion. To be given hope from the surgeon ,then to be knocked down by oncologist and then to be left hanging by a thread not knowing where you stand. Iam existing at the moment not living . I wish I knew how to switch all the gthinking off. I cared for my husband. For many ytears and now when I need it there is no body there 

Hi

i know exactly how you feel. I think I am beyond angry. Mine is a long story. Yesterday had had it confirmed that I had lobula breast cancer. No symptoms, lumps etc in breast. MAmmagram did not show anything up.  My story started in 2016 my nipple began to sink in my breast with thinking round nipple MAmmagram was clear told to keep an eye on it any problems come back. Fast forward to 2019. Nothing changed felt the same looked the same, no breast lumps, no pain in breast. I hurt my back Nov 2018 thought I had pulled a muscle I have arthritis in lower back so thought it was that dr said sciatica. Still had pain in March so I went back to Dr ask how I went about paying for a MRI. I saw a nurse practitioner who sent me for an X-ray on my back. Also had a MAmmagram in March under the breast screening for over 50's which was normal.. When I went back to nurse for results of X-ray she was more bothered about my raised blood pressure. I asked about X-ray she said it was normal I asked if she was sure she said yes. I then asked if it was just arthritis as the other side of back she said probably. Struggling to breath so they sent me for a chest X-ray which showed slightly enlarged heart so appointKent booked to see cardiologist which is in Nov this year. End of May 2019 had a pain in middle of chest and under left breast in rib area went to hospital could hardly breath ECG and X-ray took again diagnosed with conderentaritis ( un sure if spelling correct) inflammation of cartridge under ribs. Kept going to Dr nurse practitioner every time. End of August still had pain in back but was booked for a M RI had to drive everywhere as I was breathless. I was using a stapler at work then felt as if someone had stabbed me in ribs. Went to see different nurse practitioner who referred me for a CT scan luckily both scans were done on the same day 3rd September. Got a call from Dr they wanted to see me on the 6th Sep to discuss results. News came back cancer in bones. I had to go there and then for another CT scan which showed ribs, back, clavicle, sternum. So after a battery of tests to find primary thought it was cervical, ovarian. As a last check they sent me to the breast clinic who reluctantly did another MAmmagram having had one six months previously. This one did not show anything so consultant had another look at the breasts and my right nipple was slightly red I had knocked it that morning. He decided to do a nipple biopsy but was not concerned about it.  Yesturday confirmed cancer. The consultant who gave me the news could not answer my questions, could not get me out of there fast enough he only said I wifi receive an appointment within two weeks to see an oncologist who will answer anything I wanted to know.

i lost my husband 8 years ago to cancer so I was prepared with questions which probably threw him, I think he was expecting me to cry which I did not until I got home. 

I did everything right checked breasts for lumps, change in shape, colour texture had checked out the change in nipple with hindsight should have asked for a second opinion, asked for a biopsy but I wrongly trusted the experts, trusted the mammograms. My cancer would not be advanced as it is. I have now got to explain to two children that their mother has advanced cancer. One daughter still has problems after her father passed away I am scared what this will do to her. 

Sorry for ranting on

Lila29 and Razzy  I am so angry to read your posts and You are absolutely  not alone!!  I am still in a state of shock... the screening system simply does not work for some of us.   I have had ten breast checks in twelve years - and kept being told everything was 'fine' - 'worried well' they like to call us- until the last one where I suddenly find myself having surgery for double breast cancer - different cancers on each side, one of which was said to be Grade 3 lobular.   My body feels better after the surgery, but my head is now so messed up...I can't sleep and I cant think straight.

Hi ace 123

Thank you for your reply. As you can see from the time of my earlier post I can't sleep either. I am so pleased your body feels better after surgery. We all have stories to tell and sometimes the only way we can rant are on places like this. I am putting a brave face on for everyone and am determined to fight with everything I have. It's in the middle of the night that are the worst. I do worry and like to know the ins and outs of everything so that I can be prepared. Not getting the answers straight away frustrates me. I am keen to start treatment but it's the waitt between tests and appointments that I can't cope with. I know I am only one person and oncologists are busy but I want everything yesterday.  When I asked about surgery yesterday I was told I probably not be having an op they will treat bones to stop pain. I know I am been selfish but I want to be here for my children as long as I can be. I lost both my parents within a couple of months of each other 2 years ago. I am still working at present and only my boss and a couple of close colleagues know. Dreading telling people. 

Good luck with your treatment.