Hi [@X14urx03]‍ 

My daughter is 2 in a couple of weeks, I got Diagnosed at  the end of June. Mine was a small tumour with some DCIS. Grade 3 and hadn’t spread to lymph nodes. It is hormone receptive. 

We too had pregnancy struggles. It took us two years to conceive, I was actually about to start IVF and found out I was pregnant! 

So, having radiotherapy and now on tamoxifen. I haven’t looked into fertility, I am aware that after two years you can consider taking a break to try for another baby. I would like to do this, but I also realise it might not be easy for us as it took so long to get pregnant in the first place. It is ***, we were going to start trying again and then this happened so it’s a lot to get your head round, however I guess I am trying to look at it like it will be what will be. 

Your team will be able to advise you on options so discuss it with them. Better to be informed and aware of the choices you have. 

Yes, the anxiety was bad for me waiting for results but it has got better. Hang in there hun, pop on here if you need some support. Whatever the outcome, once you have a plan of action you will feel better. 

Xxx

Hi babe, I’m taking letrazole, coping ok on it now, bit sickly at the beginning but ok now, the radiotherapy does mess with your emotions, I wasn’t crying but a bit short tempered. I feel good now although my family say I have changed, my fuse is a bit shorter, guess it’s the letrazole but the good outweighs the bad so I’ll keep on them for now, going back to hospital in 6 months.. xxx

Hey [@GeorgieS]‍ 

Thanks for getting back to me, I am actually feeling abit more normal today, came on my period! Maybe I just had a bad case of PMT this month

12 sessions left, I am having 20 in total. So eye of the storm. Glad the hormone therapy has settled down for

you now. I am hoping if it is the tamoxifen it settles down in the next few months.

xxx

Hi babe, sorry it’s took a while to get back to you, I’ve been away for the weekend. Poor you getting PMT too, us poor women we have everything don’t we, I’m 56 so luckily don’t have that problem anymore lol.i had 15 sessions, just think about ringing the bell, it seems strange but you will get emotional about doing it and you feel stronger cos it marks the end of your treatment. Keep in touch babe xx

Hi all, 

had results today- lymph nodes clear and the lump was slightly smaller than on the MRI at 16mm. Planning to have radio and hormone therapy but just waiting for my lump to be sent to America for the oncotype test. This will determine if I will need chemo. This depends on the level of the cancer and take into consideration my age. Did you all have to wait for these results aswell? 

Had a chat about fertility, as my cancer reacts to oestrogen getting pregnant may be a risk for the cancer to come back. It’s crap really as this may be the risk you take. Not quite sure how I feel about that at the moment as it’s hard to get your head around not having any more children. 

Lots to think about and more waiting which is rubbish. 

Hi babe, glad to hear you’re lymph nodes are clear, I didn’t know/have my lump sent away, well not that I know. My main worry was having chemo but got my head around it in the end and was so thankful that I didn’t need it. I’m a lot older than you babe and having more children wasn’t relevant for me and I can honestly say that I didn’t know that the treatment can have an effect on your fertility so I am not qualified to answer any questions babe, I’ll be thinking of you, please stay in touch, sending lots of love xx

Morning [@X14urx03]‍ 

Do you feel better now you have your results? Good news it is localised and did you get clear margins? 

I discussed at length the Oncotype test, and they didn’t send my sample off in the end. The reason being, the tumour was so small that when they use there predict tool, they Strongly felt I would get marginal benefit from chemo Vs the impact of it. 

If you have the option thats good though, more waiting but at least you are well informed. 

The baby situation weighs heavy on my mind, I have been told in a couple of years I could take a break from Tamoxifen to try for a baby, but it’s unclear on how much this increases your risk. Mine is hormone receptive too, so this is a big decision to take. There is a trial being held st the moment called POSITIVE and findings seem promising. If I think about too much, I find it quite upsetting but fortunately we have beautiful babies already and that makes it easier! Taking one step at a time right now. 

You may be on the same journey as me if you have radiotherapy and hormone therapy. I am doing both, in the middle of radiotherapy now. 

Sending lots of love xx

[@X14urx03]‍ 

Just another note, when I say impact of Chemo I do not mean this in a negative way, they felt it wasn’t necessary,  I was fully prepared to have it, in my case my oncologist was very confident in the teams assessment of my treatment.

Hi guys, sorry for the late reply, I’m away at the moment and wasn’t able to get on here.

I finished my radiotherapy 2 weeks ago today and all is well. My skin was very red and itchy but it has calmed down now.  Still slathering the MooGoo on twice a day.  Energy levels aren’t too bad either but up until I came away I’d been sleeping really well.  Yes, still get easily upset and emotional but to be fair I’ve always been a bit of a cry baby! I know what you mean about feeling sad but let’s face it, there’s not much good news out there at the moment (I mean actually IN the news) so when we get tired or run down it possibly affects us more.  

It’s never been more important to try and make time for the things you like to do, this will help improve your mood I’m sure.

I’ve been taking tamoxifen for about 3 months now and getting on OK I think.  Only having hot flushes at night, the rest of the time I’m cold as usual!

xx

Hello lovely, sorry for delay in responding.  Like [@GeorgieS]‍ I’m 56 so too old to be worrying about freezing eggs though believe it or not I’m STILL having periods although I think the tamoxifen is finally seeing them off (hooray for THAT!)

Try not to worry about the lump in your throat, stress and anxiety can manifest themselves in so many different ways. Talk to your breast care nurses, consultant, whoever - that’s what they’re there for. Xx