Hi Lilly 

When is your half way check up and are u still kicking it’s butt and keeping positive hun xx

Been thinking of you these last couple of months picturing you kicking it’s butt and getting healthy and strong every day xx

Hi Annjo8.

Im 3 chemos in and my next one is on Tuesday. I’d forgotten how rough chemo is, but only for the first 7-10 days, then I start to feel human again. 

I saw my oncologist today and he wants a ct a week after my next chemo. So a little earlier. He said the chemo hasn’t worked as well as he hoped and wants to start something else. So good and bad really. He talks of maybe some radio, which is good as this wasn’t an option before, but it all depends on the scan results. But he’s confident there are other treatments out there to try, so I’m keeping fingers crossed. The aim is for remission.

Its funny, when all this first happened I was broken, but as time has gone by I’ve come to terms with it all. I’m in a good place right now with the thanks of amazing support from family and friends. I feel very lucky. Focusing on all the positive!! 

How are things going for you? Are you still using the Lego hat?

i decided against it and my hair started to come out a few days after the first cycle started. The last of it eas shaved off on my 40th Birthday a couple of weeks later. It had to be done, I looked like I had a comb over .

I really hope things are going as well as they can be for you.

Take care xxx

Hi Lilly

im ok now but had a few really bad days after my 4th cycle and it was not the chemo but the white blood cell injections I have to take the pain was so so bad I hardly left my house, could not eat a lot as another side effect of it is mucas build up in digestive track.

i had my check up and all I have left is thickness which should be gone by end of my 6th cycle which is 16th October then I have my operation then I’m still opting for radio after just to make sure.

ive had a night out with friends playing pool having a laugh n ended up in a nightclub n walking home (with a cute friend I keep dreaming about ) at 4am (no alcohol for me) and OMG it was amazing I felt refreshed and normal people treated me as me and it was my doctor who told me to go out to the pub as I was starting to get cab fever as people avoiding me as don’t know what to say or how to be so that night was brilliant. 

I’m off out again tomorrow night for same thing minus the nightclub n 4am getting home lol

Im so happy there is other options and ways for you to kick cancers *** x

We will both be in remission in no time hun xx

sending hugs  

Hi Lilly,

I was wondering how you are doing? 

xxx

Hi Kajena. 

I’m ok thanks. Not much has happened since I last spoke to you. I have pretty much been in limbo. 

I didn’t have my 4th chemo as my levels were to low. The ct showed that it hadn’t worked and that there was more spread to lymph nodes and further enlargement of the original tumours. I’m just so uncomfortable . Everyone is tiptoeing around me again, it’s driving me mad. So I’m taking it out on the house . 

I am starting a different chemo on Saturday, EC. The plan is for 3 cycles, then scan. If it’s working then I can have 3 more and if it’s not, then who knows? But fingers crossed.

You must of had your last treatment by now. How are you feeling? What’s the next stage for you? 

Thank you for the message