Hi  did you manage to get your injection in the end for the bone strenghner.I saw the consultant sent me for a chest xray for the pains in my chest ive been having. Dont appear to worried about things .He did say my white cell count is 1 below them having to stop the tablets, so my immune system as you know yourself is very low.I asked the consultant roughly how long i had to live or could live .He said the expectancy is 2 years for this ,but he did say .He thought i would respond well to chemotherapy,so just have to wait and see what happens .As you will know they cant tell you for definite ,but i needed some sort an idea how long .Hopefully will be longer.Im going to stay positive for my parner ,children ,and Grandchildren ,and i am going to fight it every step of the way ,and enjoy every day i have ,as i think thats what we need to do .Let me know how you get on .Lots of lovexx

Hi,don’t know if you got my last post.

Have you come of your tablet?

Eventually got bone strengthener appointment is for Monday,after a long battle.

My white cells where low so came of Palbociclib,hopefully will be back on next week wil have my bloods taken again on Thursday annoyed as I feel fine just a little fatigued.This has happened twice.But doctor happy for me to continue on high dose.

Wish doctor would no predicted how long we have as they just don’t know.

Go to the breast care cancer forum look for nicky08 and marycock? They have great story to tell about their cancer journey.I hope you feel bette4 and not to down we have a lot to live for so enjoy if you can,thinkin* of you .

off to take granddaughters to park,We call them the mini tornadoes,going to be knackered by the end of the day.

take care,big hug

speak soon.

hi nice to hear from you .No they havent stopped chemo tablets ,as he said its 1 below the threshold for stopping,so happy for me to continue..Yes we have loads to live for .I was shocked when he said most people with what i have live a couple of years ,but like you say .They dont really know just guessing.I will have a look at those 2 storys you mentioned,as i think its good to read positive things .Glad you finally got your appointment finally .Hope it goes ok .Hope you had a great day yesterday with your Grand daughters at the park yesterday .Im seeing mine this afternoon .Really looking forward to it .Hope your day goes ok .I have my zolladex injection on Wednesday morning .Take care speak soon xxx

Hi cocksedge 

Hope you are okay.Thought I would see if you still want3d to chat,as we have stopped responding to each other.

Thinking of you.

Hi so nice to hear back from you .Hope you are ok .I had my 3 monthly scan a couple of weeks ago .The good news is it hasnt spread any futher.However i did develope a chest infection which made me quite poorly.They so say picked it up on the scans i had .They sent me for a chest Xray and a pulmonary angiogram CT.I still seem to have pains in my chest ,but they said that is the tail end of it .also under both sides of my ribs hurt some days is really bad .,but other than that seem to be ok .Im abit more positive now .How are you feeling? .Im so glad you replied ,as it is nice ,as you are the only person i know who has similar to me .Yours is worse than mine ,as at least mine isnt in the bones. I had my daughters graduation last monday it was a lovely day .,and my dauhter and her partner did the race for life in aid of me which i thought was a lovely gesture .The weather has been lovely lately which has given me a real boost .Lots of love xx

Hi,

So glad to hear that your scan was okay.Your medication seems to be working,it’s does make you feel better that things are going okay.

I had my scan about 3weeks ago,but it was early I had only been on my medication for two cycles Unfortunately one of my liver mets has grown,and something on bones which doctor and radiology are unsure if it is new bone regenerating or cancer.But they are going to scan me again on the 13 th August and I see the onicoligist on the 15th which is good so not to much of a wait for results.Thry not talking about targated therapy but chemo.Never wanted to go down that road yet as it’s to early hoped the meds would work a bit longer.But hoping the liver met maybe has shrunk I am praying it has.

You must have been so proud to see your daughter graduating.That was nice of your daughters partner doing the race for life.

I did it Twelve years ago in aid of my dad.

Weather here has been hot,us Scots not used to hot weather,it has been overcast for a few days now but warm.

Went to a secondary breast care meeting and met some lovely ladies,who are all at different stages,but they are so lovely to be around,you feel as if you are not along.We sort of learn of each other what we are going through and personally understand a bit more.

Still working full time,but family said I have to cut down hours,I know they are worried but I feel well enough at the moment to continue,I would only be sat at home thinking,While at work I am surrounded by people and I can chat away.I am a receptionist at an leisure Centre so I am sitting.my Manager has giving me a room to go to if a need to get away,for a break,have not used this room yet.

well you take care and I hope your pain gets better.hope to hear from you soon will give you an update about scan.xxx

so sorry to hear about your scan .I was lucky it is working for me .I really hope your next scan gives you better results .It is such a worry with this disease.im so glad you want to stay in touch as its nice to be able to chat with someone with similar circumstances .Take care for now .Keep me updated how you get on .Im always here if you want to chat about anything .Take carex

Hi friend,

Just Thought I would give you update.Scan now shows Palbociclib and Letrozole are in fact making mets smaller in liver,there are a few in there that are still the same size not bigger as this was what the other doctor had said.so Onicoligist has said no chemo stay on Palbociclib and Letrozole,and all is stable.

So really happy can stay on this treatment a bit longer,

I hope you are well.or as well as you can be.

Probably look at going away for a few days with husband,as it’s been a rubbish summer worrying.

Xxxxxx

Hi so good to hear from you ,im so pleased your scan was good .Thats great news .Im feeling alot better now .Things seem to be going in the right direction .I really am so happy for you your results were good ,as last time we spoke it didnt seem to be good ,and i was really concerned for you .Its nice to have some good news for a change .Have a wonderful few days away .You need it after all the worry you have been through .It will do you good to get away .I go away with my eldest son on the 6th of September for a week .I will keep you updated on my progress .Its so nice to be in touch with someone who has similar to me .Lots of love to you .Take care for now xx

Hi just thought i would message you ,as havent heard from you in a while .Hope you are ok ,and hope you managed to get away ,and enjoy your holiday .Since we last spoke my consultant forgot to prescribe my chemo tablets ,and as it was over the bank holiday ihad to wait till after to get them which made me over a week late taking them. Since then i havent felt so well,but probably coincidence.The consultant wants me to have fortesips due to my weight loss ,as he says 7kgs is too much to lose,and says he doesnt want me to lose anymore.Its just one thing after the other .I expect you must feel the same. I work for the NHS ,so i asked if i could cash my pension in ,but they told me at HR you can only cash it in and get a lump sum if you only have 12 months to live,but she did say if i have to stop work on medical grounds .I will get it in smaller amounts .Are you still managing to work ?.Hope to hear from you soon x