Hi! 
so I have EC chemo every 3 weeks for 4 session so 1 down and  3 to go and then I go onto taxipaxel I think it is every week for 9-12 weeks. 
my mum has chronic ovarian cancer now and was BRACA negative so I think I'll be ok. 
I am also thinking just a lumpectomy and the tissue surrounding it to be taken out and of course the lymph nodes. 
we're you out on the hormone therapy at the end? Did you find it threw you into menopause? I've been told I won't be able to have anymore children but I'm hitting 40 this July abs I have 2 lovely boys so I need to be happy with this but I'm still sad at the reality taken away even though I wasn't planning anymore if that makes sense! Xx

Ah ok, everyones treatment plans are different so its so hard to compare. 

I know with my chemo being every 3 weeks i kinda saw a pattern every time. The first 7/10 days i felt rough and then i started to feel more normal on the last week. We would try and plan things on that week as i defintely felt like i had more energy. 

I didnt have hormone therapy as i had triple negative but it seems the chemo has put me into menopause anyhow! I am gutted as we now have a 5 year old boy and would of liked another one but ive got to just be grateful that my treatment was successful. 

Im now in the process of seeing a menopause specialist due to me being 38 now. 

Ooo that's interesting, what does a menopause specialist do? I'm sure I'll need to see one too. 
did you work before your diagnosis and did you go back to work? 
xx

They just seem to know alot about chemically induced menopause and understand how important it is to find the right type of treatment for someone younger. 

My private healthcare wouldnt pay for it so i got my gp to do a referral via nhs so i could see this particular consultant. 

Luckily my work is admin based and i work with my husband so i still did alot of it from home. I havent fully gone back yet, ill have to sort myself out at some point!! 

Covid hasnt helped, i finished radiotheraphy and the following week we went into the first lockdown where i spent every day at home on my own with our autistic son for 6 months. I was having a pity party about myself and it was awful wacthing him struggle. 

Are you having your chemo at home? I had all my chemo, bloods, injections done at home.

xx

So I had the choice of having the chemo at home as I have also gone private but my on oncologist didn't like this idea and to be fair I quite like going to the hospital which gets me out of the house. I live in a village so it's nice to have the change of scenery! I have been signed off work but I work for a large corporate and will be going back but my work will be mainly from home anyway. 
I am lucky in that my 2 boys are with a great full time childminder and I think I mentioned last time that my 3.5 year old is still under assessment with the special needs health visitor for autism. He is a very late talker and is still in nappies so we have challenges but he is so sweet and is beginning to talk which is lovely to see x

To be honest i liked having my chemo at home but the massive downside of it was not speaking to anyone else that was also going through it. Luckily i joined a support group at one of my nearest hosptials. We live in the middle of nowhere and i did find it lonely. 

Thats good about the childminder. I would defintely keep them in there and use to time to just take it easy at home. My poor husband tried to do everything and he was taking our little boy to nursery and therapy on different days if i felt rough. 

Yes you did mention about your 3.5 year old. From what we've learnt is that we are so pleased we got him assessed early on. The nursery were fantastic at supporting us and we've now managed to get his 1:1 support and hopefully will be able to keep him in a mainstream school.

Our little boy is not so little! We are both really tall and he is defintely going to be tall himself. Hes still in nappies but he is so loving and kind, we are very lucky we dont have any behavioural issues. 

xx

Hi Emma,

I'm so sorry that you are finding chemo such a challenge, but stick in there and it'll soon all be just a memory.

Do you know when your genetics test results are due back? Here's hoping that they will be negative.

Kind regards,

Jolamine xx

Sorry for your news.   Hope this forum helps you, you are not alone.   I had the same as you. 2019. Chemo surgery and radiotherapy.   Now starting to feel much better. 

I used the cold cap, and yes it’s cold but you get used to it and saved some hair. 

All ghe staff in chemo wards are fantastic.    After the first session I felt ok as knew what to expect. 

Wishing you lots of luck.

Hi Jolamine 

I think they come back in about 4 weeks time but I know the doctors all expect them to be negative but I guess we will see! 
 

thank you so much for asking xx

Hi Emma,

The doctors usually have a pretty good idea - so here's hoping that they are right.

Jolamine xx