Hi,

I’m so sorry you’re going through this too.  I’m 27 and nearly on my final chemo!  I’m also having chemo first and I’m due surgery next month... I believe it’s in the hope to shrink what’s there so it’ll be a lumpectomy instead of masectomy.  

Like you I was also really lucky to have private medical and believe me, you’ll be so glad you have it!  It’ll be a whirlwind from now as treatment starts asap, so get ready!  I’m here if you ever want to chat... I promise the shock does ease... time really is a healer! Xx

Hi there ..

Just little note .. if you go on the hormone therapy , beware of the side effects .. no one told me .. I started tamoxifen .. and within a week had gone from a strong lass in control to a blubbering wreck...

I cryed over everything and anything .. l came on here and learned others had emotional things too .. and some get painful joints .. don't worry , I went on a mild anti depressant for a couple of weeks .. and it all went back to normal ... I've been on them 18 months now and have no problems ..

You might get no effects but if your ready and prepaired , you will know why ... Chrissie x

Hi, sorry the delay. 

We had a lovely getaway and I think it was definitely for the best to keep my minds busy.

Im waiting for the hospital to contact me re testing for the BRCA gene and now had all my results back.

ive been diagnosed with grade 3 triple negative invasive ductal carcinoma stage 1. My lump is 2cm. 

I cried with relief as I was so certain in my head that it had spread. I’m going to ask again just to double check as the consultant doesn’t really like to say to much about the diagnosis. I definitely cope better when I have all the facts!!!

I’ve got an appointment with the oncologist tomorrow to discuss treatment but been told by the consultant that it will be 6 months of chemo and then surgery.

I had a implant fitted to wear the cancer is and then a mammogram to check it was in place. This is for when I have chemo apparently and they can keep track of where the cancer is. I’ve never heard of this implant?! 

I had my eyebrows tattooed yesterday which look very dramatic today but I’ve been told they will fade!! 

It all still feels really surreal but I’m feeling pretty positive. 

Ive joined a support group near to where I am so hopefully that will help. 

Hopefully after the 1st chemo session I will feel less anxious as I’m scared silly about catching an infection and being ill. My 3 year old little boy is always bringing bugs home from nursery, he is due his next set of vaccines soon and we’re still waiting for him to get chicken pox! 

Has anyone got any positives to tell about triple negative? 

Thanjs again xxx

Hi Tiamaria

I too have joined recently and we sound like we're in a similar situation. I'm 42 and found a lump which has turned out to be 21mm er/pr+, her2+ and mucinous.

It's only been under two weeks since I was diagnosed so haven't had all my investigations yet. Two more scans Monday then seeing my Oncologist Friday for the plan (which again I'm bricking it in case they find anything else!). At my results appointment they told me they wanted to do chemo first and when I questioned this they said it was because they wanted to see how it reacts and also hopefully shrink it. 

I have gone through every emotion and it changes daily. I have found that reading the posts on here and other forums has really prepared me for what is to come and has certainly opened my eyes to a world I have never really known. I'm the first person in the family to get breast cancer so it was a huge shock to everyone, especially because of my age too. I don't drink or smoke. I breastfed my babies, I eat healthily. All the things they say can reduce your risk. 

I have avoided Google as I did start when I first found out but some of the things I read made me feel worse so I stopped. I posted on here and got responses from some lovely ladies who helped me put things into perspective. 

I'm scared about the chemo and have read and read all the info but I'm not sure if this even would prepare me. I think the worst is fear of the unknown and also the lack off control over everything. 

Most of all I'm trying to stay positive. I have come to hear / read so many success stories from people it's very reassuring. 

Sorry to ramble on, I feel I can let myself go on here moreso than with those around me as although they are all fantastic they don't fully understand. 

Take care and please keep in touch, everyone on here is there for support. We'll do this together xx

Hi Elsie, 

I'm glad to hear that you are feeling more positive now. I am on holiday at the moment, so don't have the same access to email and thus Cancer Chat.

I am still thinking of everyone on here whatever they are going through and hope that you are all coping as well as possible.

Kind Regards,

Jolamine xx

Hi there ..

Glad you had a deserved get away .. but not so good news now .. it means you gotta get those boxing gloves on, and fight a bit harder ... but there's been a few on here with triple neg ... so get your head around it .. you sound like your half way there .. wer all in that cancer boxing ring with you ..

Get everyone on board .. esp your little ones nursery ... everyone needs to be more aware now to keep him apart from kids if they look poorly .. and if you have "loose it" days, that's normal .. when we sit and think it gets a bit overwhelming...  but just go with whatever your feeling .. take any offers of help, you'll need them .. and you can chat about anything on here .. someone will know exactly what you mean ..

So sending you a vertual hug... together wer strong ...  Chrissie

Hi there 

I am 39 and have also just last week had a diagnosis which I am also totally shocked by. I have recently had a baby during lockdown 11 months ago and only fed from 1 side which is the side I found a tiny lump in. Originally I was told it was a cyst so was blown over with the diagnosis. 
how are you holding up? I'm still in shock and about to start treatment next week. 

Hi Ems,

A very warm welcome to our forum. I thought that I would reply to you because Tiamaria's post is an old one (June 2019) and I'm not sure how active she is on the forum these days. I am so sorry to hear that you have received a cancer diagnosis. I can only imagine your shock when you thought that it was a cyst.

Have you been told what type and grade it is or what treatment you'll be having? Getting a diagnosis like this is always challenging, but it will get easier once you start treatment and begin to fight it.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine 

thanks for replying I'm not very good with online stuff normally! I have a small lump at the side of one breast which is a grade 2 tumour which has shown a bit in the nearby lymph node also. It's not triple negative and is estrogen receptive so I understand that means I will be on hormone therapy for a long time. 
I start chemo next week, about 24 weeks in total and then surgery abs then radiotherapy. It's all very overwhelming! 
 

emma x

Hi Ems,

I am so  sorry to hear about your diagnosis, but it is good news that it is not triple negative and that it is oestrogen receptive. I have had 2 bouts of breast cancer in the past 11 years and took hormone therapy for nearly 8 years. It wasn't all plain sailing, but it was 'doable' and I am still living a busy and fulfilled life as a result.

What sort of surgery are you opting for? I have had a lumpectomy and a double mastectomy, so if you need any help or advice, you only have to ask.

It is all very overwhelming at this stage. Look on this year as a lost year, then you should be able to function more normally again.

I shall be thinking of you next week and I hope that all goes well with your chemo.

Do please keep in touch and let us know how you are getting on.

Kind regards,

Jolamine xx