Well it was definitely a weird experience. I like the way you looked at it - we’ll soon see and then I can get my treatment plan.

MaggieMagpie,

I will definitely keep you posted.

Hopefully you’ve recovered from the noise of the mri - my ears were ringing for days :)

Fingers crossed for you x

Hi MaggieMagpie,

it goes down as one of the loudest and weirdest experience in my life. Click click click...

LOL - thought it hilarious that they gave me ‘noise cancelling headphones’ - cancelled nothing. I just lay there thinking up raps to go along with the sounds but my face and ears ached. The bad news is both of us will be having these yearly - oh the joys :shocked:

Hi Maggie....well I’ll go t the foot of my stairs..... just seen this nd now wondering why I don’t get em yrly :) I get a mammogram yrly for 5 yrs then back to routine recall but no routine MRI ( I had lobular and ducal invasive). Guess needs t be marked up to another one of those everyone’s treatment is their own;) x

Hi sandra

sorry but I would not put this down to personalised treatment. Everyone with invasive lobular should have a MRI along with their mammogram as it is difficult to detect by mammogram/ultrasound alone. 

The above statement comes from my oncologist, who had to write to my clinical lead to ensure that this is carried out yearly. I would be shouting from the rooftops if I was denied a MRI.

Hi,

Just checked nice guidelines nd nothing there about mri  checked my own care plan that I was given nd just states same as nice guidelines annual mammograms for 5 yrs. 

As it turns out I get seen 6 mthly 1 for mammogram nd 6 mths later see consultant for check up nd exam but no other tests. 

Will certainly ask at next appointment. X

You’re correct, in fact NICE prohibit the use of MRI screening for lobular.

however, on their website there are studies links that show the benefits of MRI

www.crd.york.ac.uk/.../ShowRecord.asp

This study shows the inadequacy of mammograms/ultrasound 

breast-cancer-research.biomedcentral.com/.../s13058-015-0605-0

its something I think cancer research uk should be campaigning for in order for NICE to take action.

No worries. I hope everything goes well for you and remember you will get through this.

Radiotherapy dept have no record of my surgeons referral  so I've spent half the day chasing it up.

Hopefully  I will hear something  soon.

Take care and positive  thoughts.