Onwards and upwards - the treatment begins!

So yesterday was D day, diagnosis. I've started this new thread to cover my treatment, though it's more of a random brain dump today.

Yesterday was a whirl. I guess people deal with it in different ways and for me that meant going into auto-pilot - asking lots of questions, getting all my contact details together and booking my next appointments. I also began the daunting task of reading the inch thick of literature that the lovely breast care nurse provided - and making all those dreaded calls to family and friends.

As I'd already prepared for the worst, I was pretty calm, but it was obvious that those who've been trying to reassure me over the past few weeks ("it'll be OK, it's nothing") were now being hit by the train. My parents cried. My husband cried. I didn't cry. At least not until late that night when I realised I was shaking as I lay in bed trying in vain to get some sleep. I must have been running on adrenaline, but I can feel myself rapidly coming down the other side now.

Doubts have started to creep in. Why wasn't there much info on the pathology report? Why nothing about grade? I've had lots of reassurances that this is a relatively good type of BC to have, if there is such a thing. But what if mine turns out to be different? It's already in at least one lymph node, so that's unusual for a start. I've made a list of questions which runs to 4 pages so far.

I'm meeting the surgeon on Monday and while this feels like a positive step forward I'm feeling a bit overwhelmed with the sheer amount of information I have to process in such a short time. Take reconstruction options for example.  That leaflet about reconstruction where the options are layed out in a diagram format, like those pictures of cows you see on the wall at the butchers showing all the different cuts of meat. So basically they can whip a bit off various areas of your body such as your back, tummy, bum etc. and make a boob out of it. I can't quite get my head around it yet. I never thought I'd see the day where I was thinking about having some fake boobs fitted. Pfft!

We still haven't told the kids. One of them had a massive meltdown which went on for 2 hours this morning, so it wasn't good timing. Maybe tomorrow.

Brain feels fried. I tried to make coffee and forgot to put the cup under the machine. For some reason I still didn't put the cup under the machine even as I was watching the coffee fill up the drip tray.

My phone keeps pinging and dinging with messages and calls. Some people remain silent though. I get it. Nobody wants to talk about this *** stuff.

Random brain dump over, thanks for listening.

 

 

  • Hi

    How old are your children?  How did you tell them?  I have seen your later post.  I liked the plastic boob.

    I have a metal leg but ordinary foot so I look normal but walking is a problem because of continuing infection and leaking.  I know this is all bye the way - just saying.

    Cancer  bladder well maybe.  How long do I wait.  Last pre op beginning June (don't remember I see 5 different consultants for different complaints),  I was told that it was probably cancer.  I wish they would hurry up.

    I haven't thought about treatment yet.  I don't seem to experiencing that same things as other people.  I just suppose cancer treatment will come before amputation and neither things are the worst thing that has happened to me.  I guess I'm just resigned and I don't mind dying.  My kids are in their thirties and independant.

     

    I'm just fed up with having something new wrong with me every few years

    All the best with your treatment and remember friends mostly are doing their best.

     

  • Hi finessing, my kids are 5 and 8. We just told them in a simple way that I found a lump and had some tests. It turned out to be Breast cancer and the operation is to remove the bad breast and make a new one...hence them asking what it would be made of ;)

    Sorry to hear your story. It sounds like you’ve really been through the mill. I hope you get some answers soon! 

     

     

  • Hi Mrs Fingers

    I’m just posting to saying I’m thinking of you. Keep us up to date when you can on your recovery. 

    Joolz xx

  • Well it’s a rather late update...I had my op ok. Some ups and downs and rather a lot of morphine and codeine later (!) I went home with 2 drains attached to me like a couple of handbag dogs. 

    The drains came out on day 7 and day 10 and aside from a bit of residual swelling I’m looking and feeling pretty good.

    Later this afternoon I’m meeting the surgeon to hear the pathology results from the op and find out what treatment I might need next.

    Eek!!

  • Ah..... good luck Mrsfingers. Hope your consultation went well x

  •  

    [@Irene70]‍ Thanks, the consultation went pretty well. This is something which has been growing slowly for a very long time - a hideous thought.

    A couple of lymph nodes were affected.

    It looks like I'm going to have hormone treatment due to the strong ER+, plus radiotherapy. Chemo may or may not happen. Apparently the MDT onc thought yes to chemo but I may be able to do a genomic test which will give us a better idea of the effectiveness of the different treatments. Chemo is not always so effective for this type of cancer.

    So a bit of calm before the next storm anyway. I'll take that!

  •  Hello Mrs fingers 

      I think you have managed this brilliantly.  Well done you! There is no right or wrong way  to handle this kind of news; the only thing I would say is it is very new news  at the moment and ridiculous as it may seem now, once it has assimilated itself into your everyday life, things will calm down .You will feel better once you have asked your questions and got a treatment plan in place. Please bear in mind the medical team can’t always give you the answers to every single question. Often they will give you little or no information not because it is bad news but because they want to make sure that they are as informative, accurate and helpful as possible. Guesswork doesn’t help anyone. 

     Please make time to look after yourself and allow yourself to feel however you are going to feel -  it is a rollercoaster and often worse for those around you because they feel so helpless.

     Take care of yourself and those you love. 

    Bon Courage

    Xx

  • Hi Mrs Fingers

    I’ve been reading your thread and can totally relate! 

    I was disagnosed two weeks ago and have a consultation tomorrow to find out whether I will need a mastectomy but it is looking that way. I like you had prepared myself for the bad news and was very calm but the anxiety has really set in now.

    You sound very brave and I really hope all goes well for you.

    It would be great to keep in touch.

    Take care

    Alison

     

     

  • Well done on your positive approach Mrsfingers. You are doing brilliantly and SusanRuths post is a fantastic read and so true.

    I hope in the next few months you remain so positive. Take each day as it comes and deal with the ups and downs as they come. I had such fantastic support from my family and friends. They were an inspiration to me and I am forever grateful to my wonderful medical team who I trusted implicitly

    Onwards and upwards indeed!!

  •  

    Hi Mrs Fingers,

    Grade 1 is what I would expect from mucinous cancer, although I am surprized that you have 2 infected lymph nodes.

    I believe that I told you previously that I also have grade 1 mucinous cancer, though none of my lymph nodes were affected. I had Tamoxifen the first time and a double mastectomy followed by 6 years of Letrozole, which I finished last July.

    I hope that things continue to go well for you.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx