ahhh that explains everything , sorry to hear you are having a bad time with chemo but like you said its going to make you better ...thank you for your response i do wish my mum would join these threads i think it may help her talking to others who have what she has etc etc //

Hi I would love to join in this conversation I am 43 and was diagnosed with invasive lobular breast cancer stage 2 on June 6th and on June 21st has a full masectomy with immediate reconstruction and a reduction on the right breast to help with matching up. I am totally devastated my 2 children and husband have been great but I feel sick knowing that I have the worst to come Chemo I just don't think I am strong enough to do this. I am a specialist ASd teacher and work with very sick children and I am a good carer for others !!! 

Any advise

We you not offered chemo in a tablet form ? Is this a possibility ? 

No, I was not offered it in tablet form. I wonder if it depends on the type of chemo drug that is being given as this varies according to the type of cancer cells found. Where there are no receptors as in tnbc, the chemo drug may be different.

I shall try and find out.

You are being really strong. Once the cancer cells are removed you are cancer free. First hurdle crossed.

Chemo is to prevent it coming back and to destroy any cells that might be hiding in the body.

Not everyone has the same reaction with chemo You are young and have a lot to look forward to. Look on the bright side, we all are going to fight it and win.

All the best.

Hi archie ...

Welcome to our little chat room , where you can put down anything you want to ask .. there's lots of us breast cancer lasses on here ... I'm a grade 3 and had total mastectomy last July ... 

The more positive you try to be, the more you scar that cancer away ... coz it likes us totally floored and to cry forever ... as then it thinks it has the upper hand ... if you look on the" good and bad " thread you can track lots of our journey s  on there ... coz we hold each other up, on the bad bits ... and high 5 the good bits ... but we all have one thing in common ... kicking cancers butt .... 

Those feelings your having are normal ... even super woman would feel scared sometimes ... and wer only mere mortals ... so hold on in there ... think of all those little ones, when you feel weak ... that's what I do ... I watched a t.v programme about a children's cancer ward .. from babies to teens .. they were walking with drips .. lost their hair ... or just laying down, but the one thing they all did was smile ... so that's what keeps me going .. you can do this ... we just had one of our lasses finish her treatment .. 

We can make it together ... don't look to far ahead ... just take one day at a time and one problem as it comes up ... and most of all be kind to yourself ...  Chrissie

Hi,

You are all such a caring group. I have not been great and so have not posted anything. I had my second dose of chemo last week Thursday but could not bear the cold cap this time, it made me sick so got rid of it. It churned my stomach and I felt I would throw up or faint.

The ONC had reduced dose as I was very ill after first one. It was ok, but the tiredness, the awful bitter taste have come back furiously. Trying best to get up and move around in the house. Lost all hair,almost all now, eyebrows and lashes disappearing fast. My grand daughters start crying when they see my bald head.

Visited a Macmillan drop in place near the chemotherapy hospital and my daughter spotted a wig similar to my style and so we bought it, though it is slightly lighter in colour and I do not like wear wearing it but have worn it twice on 2 trips with family out of the house. Walking around feels like all are staring at me. At home just use little scarves.

scarves.

But the main issues are that after 5 days I am again feeling exhausted, swelling on feet, legs, hands and every morning pretty bed on my face, which reduces once I get up. Just do not want to back in hospital for blood count like last time. Shall call the nurse later and ask if there is any cause for concern.

Thank you all. Any advice is welcome.

My mother also diagnosed with breast cancer stage 2, she had her partial mastectomy surgery on May 29 , then the doctor sent the sample of lump and the lump node for necessary tests , we were called for a follow up meeting with the doctor on 3 of July and the doctor said results came out good , no cancer found in lump node no other surgery needed , we were extremely happy to know that , i almost cried , since my mother diagnosed with breast cancer I have been taking care of my mom and she is my everything , I have been trying to so hard to give her the best treatments possible, unfortunately my mom lives with me in Canada , I am Canadian my mother is not , I applied for her  permanent residency, while waiting for the application results we went through this terrible news , right now everything going out of pocket , yet no results from the immigration yet, but I was happy that my hard work and a lot of prayers from friends worked out , treatment is going well .we got the best oncologist of this town.he made a very good treatment plan for my mother . But since my mother had her surgery she is fatigue and has pain in her back part of the body ,when we told this to doctor , he showed his concern and gave her a pet ct scan test to know if there is anything inside the bone , I was already in big shock now can’t take another one , what could the possible reason for that pain ? I hope the test result comes out negative. Each day is a big test for me , my mother feels guilty , she was telling me that why did I tell to doctor about my body pain ? I told her mom you need to get treatment it’s nothing we can keep it for near future but she cried and was telling me it going cost extra money  for me, I can’t cry in front of her but I hold my tears and told mom God is there , believe on him . Now all I need prayers from everyone. Please pray for my mother’s recovery . 

You are doing really well, with so much to deal with. When things just keep coming one after the other, one wonders when is this going to stop and show the light at the end. It is a very difficult time fir you, your mother and your family. Please, you are doing really well. I shall pray for you and your mum. We want to believe that we shall fight this cancer.

All here in the community have their own stories to tell and I hope that shall give you courage and strength.

someone suggested to me to do short nydrayoga and it has helped. It makes you feel your presence. You could google it and maybe your mum can try it.

May God be with you.

Thanks a lot for your kind messages , I have been so much stress now a days , moms Health insurance was expired on July 5 then when I went to buy another one I was refused to buy anything regarding cancer due to her past medical history, I was completely shocked and feeling lost how to get an arrangement for the insurance, the insurance company offed me me to buy an insurance which doesn’t cover pre existing condition, so I had by that as we never know what’s coming up next , but this one is uselsss as it won’t cover anything for now related to her cancer treatment, here we got  an appointment for the doctor on 31st of July to see the test  results of my moms pet ct scan but it’s 21st July today haven’t got any call for the test date yet .hospital said she is in waiting list , doctor waned to test in details of her lump by sending it to usa Cancer research centre , but last week they called and asked us to pay 4100$ cad , as my mom doesn’t have her health insurance card yet .I told them how can I afford to pay such huge amount ? Then the nurse told me she will speck with my moms oncologist to see if she really needs this test . Everyday I am praying and checking moms application status if there are any changes but nothing yet . Mom looks so much weaker than before and she has unbearable body pain , i am so scared  , please keep me in your prayer .

Hi there.

You are at that point, where I would think of the almighty and pray and ask him/her to give you, your mum and your family strength. Every time I pray or think of God I ask for everyone’s suffering to be taken away. 

Although, I am going through my own issues, with repeated chemo sessions, making me weak and ready to give up, but something says to me I have to fight it and carry on. 

Sone mindfulness pointers, like nydrayiga, which is very short and makes you feel your own presence has helped me even if fir the moment but also as I was tired, exhausted put me to sleep. Try it, may help.

You, your mum and your family are in my thoughts and prayers. 

B W