I'm so sorry to hear that,  but glad you got to spent it with him,  so sorry, 

My husband is 32 he has melanoma it spread to his brain and bowel he's had bowel op and brain surgery he has one large tumor what they tried to take so much out but couldn't take it all he has 7 other rumors on his brain, same as your husband he started with headakes,  he is on chemo form tablets and has been given months he got told this in November last year, he isn't detearating he looks so well and can do everything,  he does have sickness but that is about it,  we get passed pillar to post we don't no weather we coming or going the tablets he's on is keeping the rumors stable,  it's just so frustrating not knowing what's gonna happen 

Hi Lauren,I am 43 and figting with brain mets since October 2020.at least your husband offered surgery too.my hospital couldt be bothered.so had 10x radiotherapy which didn't help my right arm at all and now on tablets.i am shielding until end of March then I am planning go back to work.I am feeling well too no signs except I can't use my right arm properly.

my husband was so up front with things at the beginning , he asked the nuero consultant what his prognosis was and how long he would /could have ? they told him straight that he had 12  months if radiotherapy worked and 6 if it didnt , and it was exactly 6 months that he passed :( , but by the sounds of ur hubby seems to be reacting well to all his therapys :) im really happy to hear that , but make the most of every day u get with him :) i was hoping that i would have had longer but it took its toll on him , all i can say is hopefully hes able to do more for himself where hes gone 

He's just had another scan so now waiting for results.. he's still very well , no signs the tumour is misbehaving so hoping for some good news! 

Hi Sal,

I hope that it was good news for your husband after his scan.

Kind regards,

Jolamine xx

Hi x

unfortunately my husband pats had a scan in March that showed the cancer had progressed .. he's since started a different chemo pcv .. he's coped ok with it so far

he showed no signs that the cancer had progressed he is fit, strong , lost no weight and has a healthy appetite so it came as a bit of a shock - that's what scary, you don't know what's going on inside their head

My hubby has changed so much... he's not easy to live with, I feel I'm constantly walking on egg shells and trying to keep him and our 3 kids happy. 
im grateful he is feeling well in his self and hope it continues... hope your situation is going ok , take care x 

Hi Sal,

I am so sorry to hear that your husband's cancer has progressed, despite the fact that he still seems fit and well. Many partners find that they are walking on egg shells at times and this can be very difficult to cope with. I expect that he will be worrying about the outcome of all this and is unintentionally taking this out on you.

Have you tried discussing how you both feel about all that is happening? Just be prepared for the fact that we don't alwaays think or act rationally when faced with these situations.  Can I ask what ages your children are?

Thinking of you all and hoping and praying for better news at his next scan.

We are always here for you.

Kind regards,

Jolamine xx

Hi. Apologies for hijacking this thread. My wife has been diagnosed with inoperable Glioblastoma Category 4. I'm writing from Ireland. I'm just hoping against hope that someone may have experience of getting a second opinion on inoperable nature of tumour and that it may have in fact, been possible, when considered by a different surgeon? I'm also overwhelmed with all the various different radiotherapy options, with everywhere claiming to be world class...etc. Does anyone have any experience of successful clinical trials or travelling anywhere in the world where there was a better outcome than what doctors at home had initially suggested? Many thanks for any help or feedback.

James

Hi JamesTwo,

A very warm welcome to our forum, although I am so sorry to learn of your situation. Unfortunately, I do not have any experience that you are looking for, but hope that someone will come along soon who will. Have you tried speaking with one of the nurses here? Their tel no is 0808 800 4040 and they are open from Monday - Friday,  9.00am - 5.00pm.

I agree that trawling through the various options is  a bit of a minefield. What has your wife been offered so far?

Please keep in touch. We are always here for you both.

Kind regards,

Jolamine 

hi james , so sorry to hear about your sad news about you wife , we  didnt look for a second opinoin when my husband got diagnosed with his brain tumour because we were told that the consultant that gave us his news was the best in his field , has your wife been given a time ? my husband asked up front on how long he had left cos he was that type of guy , a fighter . we fought it head on , the dr told him/us that if the neurosurgery and chemo worked he'd have a year and if it didnt he would have six months , he went thro all the radiotherapy but no chemo , evryday for 4/5 weeks , he did get weaker , and i know its hard to think about it but we faced up to everything that came his way , but after six months to the day he passed away , he was so brave as you will be im sure but do everything together and live life as full as you can , my thoughts are with your family , by the way its been 19 months now since he passed away but its still as clear as day , stay strong x