Hi it was about 5.5cmx5.7 but too deep , his radiotherapy has finished about 2 months ago and on chemotherapy tablets, gone too weak and started to have memory loss and can't walk any more. He has been told his mri scan will be done in November to find what's the situation with tumour now.

Creevagh:how big was your sister in laws tumour? 

Hi I know getting told you or a loved one has any form of cancer, let alone brain cancer is a very scary thing. I was diagnosed on the 20th of December last year, yes I’ve had better christmas presents.

I started writing a blog on facebook, to start with it was to help me, now its really just me trying to help others, I’m not sure if it will help or give you information, but my link to it is below.

facebook.com/.../

I called in Cyril as I don’t know anyone of that name, my 20 year old daughter came up with the other bit, as having terminal brain cancer can be a bit of an arsehole.

x martin

Hi Martin,

Welcome to the forum.I am so sorry to hear about the diagnosis of Cyril last Christmas.  I have read you blog and must say that I admire your thought processes and wit in the way you write it. I am sure that this has been a great help to many others.

I sincerely hope that you can continue to contribute to this for quite some time still.

Kind regards,

Jolamine

Hi Harriete, my husband was diagnosed with a grade 4 glinoma back in may , he had a fit too , and severe headache , but it was the fit that got him to get diagnosed with the tumour , he’s had radiotherapy so far but like you I’m wondering where my hubby has gone :( , with all the tablets he’s taking he’s sleeping most of the time , his mobility has gone aswell , as the tumour is in his mobility side of his brain , we didn’t expect it to go so quickly tho , he’s having a scan on 15th nov to see how the therapy has done , but his appetite has gone and I’m afraid that that he’s getting worse , I’m getting so worried, does anyone on here know if this is a bad sign ? I’m trying my best to get him to eat but he’s got no energy either , I feel as if he’s slipping away slowly x

We just found out my daughter has the the same tipe of tumma ur husband has she will go threw the same treatmentband told us 18month maybe more. She is only 26 with a amazing daughter it's heart breaking 

So 2 years have passed, how is your husband now? My husband has just been diagnosed with a stage 4 tumour on Tuesday, he had to go alone, due to covid! He is having an op on the 21st where they're going to tske as much as possible and then give radiotherapy

Rachel xx

Sorry to hear about your daughter, this year is absolutely crap! 

My 49yr old brother got told 2wks ago he has an aggressive brain tumour. Oncology confirmed today it is a grade 4 glioblastoma. He has been told due to where it is surgery is not an option. He's been given a year at the most. I feel sick and numb. He has young children and has always been fit and well no other medical issues. I don't know how to help him or what I can do and how I can prolong his life. He's been told he can have radio and chemotherapy but been warned how ill it

will make him. I'm scared for him and his children, I'm in shock 

Hi Ms Bradley,

Welcome to our forum. I am so sorry to hear about your brother's diagnosis. This must have come as a terrible shock to your brother and all of your family. It will take time for him to process this and to decide whether or not to go ahead with treatment. It is particularly difficult when you feel that he should have a full life ahead of him.

If you have read some of the previous posts you will know that I lost a close friend with this when he was only 26. That was despite having   four major operations, as they couldn't remove all of the tumour and it kept growing back. He fought bravely, but despite taking all the chemo and radiotherapy that he was offered, sadly, this didn't help him.

The best thing that you can do is to be there for your brother. Tell him how much you love him. Help him with any matters he may want to settle before he passes. There may be people he wants to see or things that he wants to do. He may even want to write letters to his children for special milestones in their lives. When he is having his chemo he is likely to feel very tired and generally unwell. It might help if you took the children away for a few hours if things are tough for him. We all worry about leaving family behind. Try to reassure him that you will always be there for his partner and family.

Help him and his family out in as many practical ways as you can. Help his partner to spend some quality time with him. What ages are his children - do they need any help or counselling? If they are of school age, make sure that the school is informed of their home situation.

As things progress the family's needs may change. It is just a case of going with the flow. His partner may find that she cannot manage to look after him 24 hours a day on her own, as well as caring for their family. If she needs additional help try, to help her to arrange this. If there are others in the family who could help out, you could possibly nurse him at home between a few of you.

You could also arrange for carers to attend. We eventually had them coming in 4 times a day for my mother-in-law and were given a hospital bed and other equipment to make her more comfortable at home. You could also arrange for the Marie Curie or MacMillan nurses to come in. They are trained specifically in cancer care and can help you through the various stages.

The Covid Pandemic has made things even more difficult for loved ones who have to spend any time in hospital, especially with the current visiting restrictions. I sincerely hope that you can manage to keep him at home with his family. 

This is a terrible position to find yourself in and unfortunately, there is no known way of prolonging his life, other than what his care team have offered. Many people have lived longer than the prognosis they've been given. My young friend lived for almost 3 years longer than predicted, but these were emotionally and physically draining for all involved.

My thoughts and prayers are with you all and, I and many others on this forum are here to help you through this journey.

Please keep in touch and let us know how you are all geting on.

Kind regards,

Jolamine xx