Tnbc

anyone else triple negative ?

 

  • Hey Nadiia

    Ah so glad to hear you have finished chemo and have a date for your opp.  What are you having?

    I had my opp on the 1st April, just under 4 weeks of finishing chemo.  I was lucky they pushed it through and i went to a private hospital and stayed for the 1 night.  I had a left mastectomy and full node clearance.  He got 27 lymph nodes.  I'm now concentrating on my exercises so get mobility back in my arm.  I'm getting there, just taking it easy every day.  I'm not sure on my radiotherapy now, just waiting to get that phone call.  They said there may be a delay due to the virus but will call me as soon as.

    So been pottering in the garden and enjoying the warm weather. 

    Yeah i was really scared for my opp esp as my husband couldn't come with me to the hospital as patients only.  But all went ok and wasn't as bad as i thought. I went home with the drain and back to hospital 6 days later to have it removed, so all ok :)

    Good luck for Tuesday, you'll be fine :)  Let me know if there is anything you want to ask before then.

    Best wishes

    xx

  • Hi MIch 

    Thanks for your text.its nice imto hear you are ok.im having right mastectomy this time ,because covid19 I will have my left mastectomy and reconstruction end of the summer.bit sceard but get ready need to do this step .only after operation they will tell me if I need radiotherapy.im going to privite hospital for sergery too.they me they will keep me only 24 hours ..with this lockdown it's very difficult to not get mad.dod you take lots painkillers after ops?

    Thanks 

    Xx

  • Hey Nadiia

    Yeah all a bit scary at the moment but glad its all going ahead and you are at a private hospital too.  They are really good and do take extra precautions and look after you well. I was in for 1 night and went home with drains.  Hardly any pain, just uncomfortable and strange feelings in my chest and under my arm.  I kept up with my pain meds as suggested and if i was late i could feel the pain coming through under my chest and arm.  its not as bad as i thought , often we think the worse.

    I took paracetomol every 4 hours and ibuprofen 3 times a day for about a week and half.

    All the best and thinking of you on Tuesday :)

    xx

  • Hi MIch .

    Thank you for Your wishes.im done now.have operation at 9am .I was sceard a lot but can remember nothing.they check my limf noods.they clear,so they do not remove them .now so hungry and thersty.looming for good recoveryand among to do some gardening shortly,me and my husband dicede to build water wall in our garden planing to be very bussy.thank you for supporting me .keep in touch

    Xxxx

    Best wishes

  • Hey Nadiia

    That's great news opp is all over and you recovering well.  I also went in at 9am, the opp took a while with taking out the lymph nodes so was in there for a while.  Good news for you that your lymph nodes are clear.  Take it easy tonight and eat slowly.  i got sick after dinner haha! Probably due to the anaesethic. 

    I'm enjoying my gardening too, esp as i cant get out exercising.  Today i was painting pots.  Ah a water wall sounds awesome!

    Sleep well

    xx

  • Hi Mich.

    Today it's 5 days after sergery .first few days was ok.bit now all the area from sergery become numb I even call to hospital but they told me it's ok for next few weeks it's healing process.i still have drainage have upoitment tomorrow and will see if they removed or no.take some pain relief medicine.do some exercises and try to keep going.with mastectomy bra looking good .my friend say I looke good they can not even see any diferents .but looke food it's not mean I feel good .some days it's very difficult but I try my best to live normal life .today done some gardening we plant some tomatoes.on Wednesday need to come back to work.and will fainded out of I have radiotherapy.whsy about you? 

    Best wishes

    Xx

  • Hi Nadia

    Yeah the numb feeling is strange, its still numb for me and under my arm and down the back of my arm actually.  It can stay like that for a while.  So how did it go removing your drain?  Is a strange feeling.

    Are you managing ok with the exercises.  In the last 10 days my arm has got so much better and i can lift it now, so happy about that. 

    I sitll have my softie and i wear it with a sports bra and works ok.  Not sure when i'll go for a prosethic fitting, guess not a priority for the nhs at the moment, so will see.

    Sounds like you are enjoying your gardening, good for you.

    Still waiting on news on radiotherpy, they said i should have confirmation this week so fingers crossed!

    Hugs xx

  • Hi Mitch 

    Good to know you doing good too.

    They remove dranege for me on Monday ,it's not painfull ,but it's good to be awalible to walk without a bottle in my hands.i have upoitment tomorrow to discuss my operation resolts and how chemo work out.and what is the next plan .my bend move ok  only strange numb filing. From today I'm back to work from home .so very bussy day and huby doing garden .my hair start growing back so happy about this looking forward to do hair cut and change color after few months,because alway have black color now thinkin to be blond .with mastectomy bra and softies looking good , yesterday buy for my self few new dresses and tops so look good .we need to look forward and be positive.we manage to go thru chemo and surgery so we will be fine .

    Want to say thank you for your time and advice . keep in touch.

    Nadiia

  • Hi ladies

     

    I'm 4 years out of treatment having had TNBC.  I just wanted to give you some positivity.  I am the admin of a facebook group specifically for ladies with TNBC and we have over 900 members, a lot of which are 10 years + past diagnosis.  We have some ladies who are 19 and 20 years.  So TNBC is most definitely treatable and curable.  If you would like to join, just search Facebook for Triple Negative Breast Cancer UK and Ireland .......... and you should find us!


    Good luck with your treatment.  You can do it ladies! x

  • Hey, 

    Aww thanks for reaching out, I've actually just sent you a request to join, as Linda I've been chatting to said you are a great support. 

    It's so nice to connect with other TNBC warriors

    Hope you managing OK Nadiia 

    Xx