endometrial cancer - diagnosed yesterday

Hi, not really sure where to start but here goes. A fortnight ago I had an ovarian cyst removed and a unilateral salpingo-oophantactomy (think that's how you spell it!) I got the call back to say they needed to see me and was not surprised when they diagnosed me with endometrial cancer. They think it is confined as the cyst and ovary were fine it was the endometrial tissue that was cancerous. Anyway I have to go back and have a hysterectomy and the other ovary removed, they'll be able to stage it then and know if I need chemo etc.this will send me into menopause but I cant have hrt as I'm only 40. I'm finding this all very difficult to cope with. I don't know if I'm mourning for the children I'll never have or the cancer I've got. I'm still not back at work from the last op and the next one is the 24th Nov. I'm supposed to return on monday but the prospect of that is just to much. I'm single, I live alone, I think i get a months full pay which I have almost used on the first op and now have the prospect of trying to manage a house on ssp. I have a sickness policy which covers just my mortgage but my cancer hopefully isn't advanced enough to claim on my decreasing mortgage cover. Its crazy.but I can't help worrying about what seems to be trivial things. I've told my family and close friends about my diagnosis they took it ok, lots of tears, I found myself comforting them, that makes me afraid to tell other people, god my head is swimming!!!

  • Hi everyone 

    would love an update on how your all doing. I am due a scan and a hystroscopy (think that's what it's called) as I had a polyp removed and a blind womb biopsy that showed thick lining. Consultant said no abnormal cells were present but wants to have a full look at my womb. I don't have regular periods due to pcos and I don't think I ovulate (been trying to get pregnant) he mentioned the mirena coil to help shed the lining regular. I'm terrified as I have been googling (I know I shouldn't) and I have seen lots of horror stories. I feel totally lost and alone as nobody I know has been through anything like this. I'm just praying it is all normal and just a thick lining.

  • Hi there, i hope you are well. I am new to this chat.  Saw your post about having to decide on what treatment to go for and wonder what you chose in the end.?  I am in same boat and am worried about side effects.  If you are able to give me any info / advice I would appreciate it.  Thank you so much.

     

  • Hi

    I am 29 years old and also had polyps removed 5 weeks ago. Two biopsys have picked up that I have pre cancerous cells in my womb. I have already had the coil put in at my second lot of biopsys as I was under general anyways. I am really scared as been told it will effect my fertility. I have to wait for two clear biopsys before I can be referred to fertility and my consultant mentioned IVF. I have always wanted a family and so worried about this. All my friends have children and I just dont know if I can face them. My other friend also has just told me she is pregnant. I am really happy for them but also really sad. Is this normal. 

  • Hey,

    I have hyperplasia but my biopsy didn't show abnormal cells. I have been put on progesterone pills and I have the more a coil fitted on June 1st when they do a hysteroscopy. My bmi is higher than yours and I have PCOS. I don't produce enough progesterone to combat the oestrogen which has made my lining grow thicker. Do you have PCOS? I am losing weight but its difficult. I need to lose 3 stone before I can be referred for fertility treatment. This is providing the treatment for the hyperplasia works. Progesterone is the preferred treatment for hyperplasia even atypical if someone wishes to retain their fertility. Insist on having regular scans and biopsies to make sure the coil is doing its job and the cells haven't changed. If you want to talk privately feel free to inbox me xx

  • Hi hope your well wanted to ask what were your symptoms and findings??