Dear Inula, I'm so sorry to hear your sad news, I think those are the words that anyone fears who has been diagnosed with Cancer. I wish you the best journey there could possibly be with strenghth and love.

kim xxx

Thanks Kathy

It is difficult to see possitives but one HUGE positive is that he is being offered treatment. The lovely macmillan nurse spoke to us after the diagnosis and pointed out that although DH's cancer is inoperable  he is being offered treatment which she was quick to point out, not everyone is  offered.
Its a good feeling knowing we arent alone.How utterly and totally  isolating cancer must have been before the internet...

Inula x

Hi Jules

I cant tell you how relieved I am to have this valuable haven to come to. Even before we knew we were on the cancer roller coaster it was comforting to have somewhere to chat - usually in the wee small hours because since this all began sleep often evades me.

It heartens me to read that even though your husband wasnt able to finish his full course of cheo he still managed almost 3 extra years with you. Like many people you hear inoperable and right away think weeks or a few months at most.

We didnt ask the question 'how long'. Mainly because we were shell shocked I think. I think DH will ask at some point but I hope he doesnt. Im bolstering him up with tales of husbands and wives who are together 2 or 3 years after diagnosis in the hope that it will give him heart.  DH's best friend died a few years ago of a brain tumour. He had been given 6 months and when he finally passed away  7 years after diagnosis we were all shocked. We had pretty much convinced ourselves he was imortal!

Thank you my virtual friends. You are keeping me sane!

Warm wishes to you all

Inula x

Max

Am happy for you to put Inula in touch with me too if she would like that.  Without private messaging there seems little choice but to depend on people like yourself  (and your trusted friend) - enormous thanks for all you are trying to do.  Jules xxx

Thank you Max. I've sent the email with 2 possible contact email addresses. Very much appreciate your help and I will try to locate the petition and will sign it.

Warm wishes

Inula

Inula ......... Kathy & Jules will be in touch x

Thank you from the bottom of my heart. I have had contact with Jules and look forward to hearing from Kath when she has time... now.... off to find that petition....!

Kath is in Australia so there's the time difference .... Glad to be able to help and thanks for signing the petition.  Take care and love to hubbie x

Hi Inula

We never actually asked how long all the way through hubby's journey as there is nothing precise about cancer and so many differing time scenarios plus changes to available options with research always continuing. It's hard to switch off from the illness but while well enough to do so we continued to go out, see friends and have the occasional weekend away (hubby did not like to be too far from the comforts of home in the last year).  Looking  back we were incredibly lucky that he did not need hospital intervention and could enjoy having visitors most of the time.  They say positive thinking helps and whilst it was not easy I tried to have enough for the both of us.

Sending hugs and best wishes for a peaceful weekend.  Jules x

Hi all

I couldn't quite decide where to write today's news so thought I would tag it onto this thread rather than starting a new one..

The past few days have been very up and down.. mostly down!

Husband had his pre-chemo bloods done on Monday and on Wednesday he got called into his GP's because his white cell count was too high. To cut a long story short he got a call from his Oncology team this afternoon asking him to go to the hospital ASAP so they could determine what was going on. As he was at that end of town he popped in. ..thinking it would be a quick check up then onwards to his planned meet up with a mate. Because he thought it was all something and nothing he didn't let me know he was going. Mad as he'll at him for that as he listens to what he is told by medics then makes up his own version!

Once at the hospital he's ended up having the usual checkups and was sent for an xray which showed that the shadow on his lung has enlarged considerably in the past few weeks so they've decided to admit him. He will be having IV antibiotics and a CT scan in the morning. There is some concern that the tumour has grown considerably  or maybe there's significant infection or perhaps an abscess in the lung all of which could cause a larger shadow than previously.  

So tonight he is in hospital and I'm spending my first night alone in my life... well I say alone... I have my two dogs.

His planned R/T and chemo have been put on hold. I'm very afraid that he won't get chance to have this potentially life extending treatment and from the thunderous looks he was giving the nurse when they put the canula  in this evening I'm fearful that he may decide he is sick of medical intervention already and decide not to have any further treatment. He hates hospitals with a passion  and being stuck in there tonight is one of his worst nightmares :(

What a rubbish few days.

How I miss the sound of my husbands snoring and sleep talking right now!  :(

Netty

Aka Inula