BRCA2 Cancer Gene

I am 45 years old and was recently found to be carrying the BRCA2 cancer gene. My Mother died from pancreatic cancer 9 years ago when she was 57 (she also had breast cancer). I am in the process of breast and ovarian screening (possibly also pancreatic screening) and am considering mastectomy and ooferectomy to reduce my risks. I am finding the decision making very difficult and would love to hear from anyone who has had risk reducing surgery and can share their thoughts with me. At the moment I am fairly sure that I will opt for mastectomy and reconstruction with implants. I don't think I will opt for removal of the ovaries just yet as I am worried about how bad I will feel going into early menopause. I have read that the contraceptive pill can be used to reduce the risk of ovarian cancer.

  • Offline in reply to Jax

    Hi Jax,

    Have fun on your date, don't even think about the age gap, I know your nervous, but do you not feel a little excited too?? I think it's great, good for you, Also have a lovely break in Malta, might be just what you need,

    Best wishes,

    Lynn x

  • Offline in reply to lyn

    Hi Lynn,

    I am excited but so nervous I can hardly eat! I won't be in a fit state to go out by Friday...

    Thanks for your best wishes. Is it tomorrow you go for your test results? Best of luck.

    Jax x

  • Offline in reply to Jax

    Hi Jax,

    I'm sure you'll be fine, and yes I get my results today at 2.50, did a silly thing and took the whole day off, so now i'm wandering around the house looking at the clock every few seconds!!

    Best wishes to you Lynn x

  • Hey Jax......where u at girl???

    you swan off on ya holibobs and havent heard from ya since.....you out on hot dates????

    please ping me a measage to let me know ur ok, i have some news i feel would be of great help to you xxxx

    much loves Tiggs xxx

  • Hi Tiggs!

    At last I have managed to log on! I have made a couple of attempts over the last few days - couldn't remember by username - that's what 38 degrees of heat for a week does to you!!

    I've had an eventful couple of weeks. I had numerous dates with a gorgeous looking guy leading up to my hols who turned out to have a long term girlfriend up his sleeve so that didn't get off the ground needless to say...

    I had a fanatastic week in the sunshine with my sister and nieces - we had a good laugh - just what the doctor ordered. I had been to the breast reconstruction support group at the hospital the night before we went away and I have never felt so depressed. The holiday was good timing as it took my mind off things immediately. Don't get me wrong - it wasn't the lovely brave women I met - they were fabulous - both the volunteers and the patients were an inspiraton. What got me down was talking to all the women who were either BRCA 1 or 2 and hearing their stories of who in their families had been affected - it really brought everything home to me and I was really down in the dumps I can tell you. Having said that, all the volunteers were incredibly positive - they all had great things to say about their surgery and said thay hadn't regretted any of it - they were fantastic. And to bare everything to strangers - I've got to take my hat off to them - they were amazing. All the different results were good too - much better than I had expected but by far the best results came from using natural body tissue. There was a lady there who had had a tummy tuck and her breasts were fantastic - just like the real thing. She had her nipples removed and is awaiting tattoes ets but they still looked amazing. It has completely changed my views about the type of surgery I want. I was heading down the route of just implants but not anymore. I had a consultation at the hospital today to progress my mastectomy surgery and the registrar had a good look at where they could possibly take tissue from. I don't have enough fat on my stomach apparently but he reckons they might be able to get enough from my thighs. I havn't decide yet if I will do this in conjunction with an implant to get the right size but I feel alot more positive about the possible results. They seem so keen on getting it right for you - so far I can't fault them

    What's your news then lady?

    Bye the way I am in the process of new dates so my time has been spent elsewhere of late...

    Jax x

  • Hlleo lady lady.....i was getting concerned to your being AWOL!!!!

    Well my lovely i have found a couple of fantastic sites on fb.....BRCA sisterhood and BRCA 1 & 2 Breast & ovarian support group.....they have been really helpful with giving information, and also ...The Scar Project, and i have made friends with a couple of the ladies who took part in the projecft. They have been photographed in various different types of reconstruction and just mastectomy etc,.....absoultley amazing real hummbling eye opener....one of the ladies jol talkied to me the other night, her cancer has spread but she talked a lot of scence!

    well i went to see Mr Plastic Fantastic and i have to loose some weight and have been working out everyday and have my friend larry as walking buddy after the gym..he's ace!

    i was shocked at how much i will loose of my boyz and i have to have expanders fitted and topped up every 2 weeks for possibly  3 month period to get me to the size i want, and he said he can get me to 38 D.....so that will be my goal!

    i see the gyne surgeon next wednesday.....see what he has to say about it all!

    i am over the shock of it all and sooooo much information to take in i see the adnsum Mr Plastic Fantastic again on the 10th oct.....which hospital u having ur surgery at?

    I am at the Norfolk & Norwich....my friend mel showed me her scars at the weekend, on is from her tummy and the other is silicone......i shall look again at options when i see Mr Figus.

    are u on private messaging or FB????

    i need to know how to drop u a message...as u will be sooooo busy with ur hot dates!!!

    sorry to hear Mr Andsum was a numpty......keep going babe x

    U have been missed!!! glad the holibobs went great tooxxx

    Much Loveage

    Tiggs

    xx

  • Hi Tiggs,

    Lovely to hear from you, you are like a breath of fresh air!

    I am not on facebook yet, I will get round to it... I can send you my private email address - not sure how to do it confidentially though. I got a message ages ago from Lynn asking to be my 'friend', which I accepted - is that a more secure route? I need to catch up with this technology big time...

    Thanks for the information on the the other websites - I will be looking them up next.

    Have you decided where you will be taking body tissue from? Tummy tuck? Do you still need to do this in conjunction with an implant? I have decided that implants on their own don't look natural enough so am trying to get fat from where I can. It sounds like I will have to go down the route of a combination of fat and implants. Can they not get all of yours created from your own body tissue if they are saying you need to loose weight?! It's all very complicated I know. I have had numerous sessions and am still in need of further information. Maybe they can only attach one lot of body tissue rather than taking bits from here there and everywhere. Who knows.

    My surgery will be at the RVI in Newcastle upon Tyne. I am now waiting to see a patient who has had body tissue taken from her thighs so I can see the results - like I say, I can't fault the service I have had so far. I thought it would have been a couple of quick consultations and then op time but it's amazing how much time they are spending on me - very reassuring. I feel alot calmer about the whole thing, I guess because it is not being rushed.

    Yes it was a shame about the handsome numpty. He was flipping gorgeous. Nevermind, I have got dates lined up for this Saturday and Sunday - this time I am going for brains and humour... wish me luck!

    Lotsa love Jax x

  • Hi Jax,

    A good way to communicate safely and privately with Tiggs69 is through our Cancer Chat private messaging system but you will need to request it first. I assume Tiggs69 herself has her private messaging working. To find out how to get your private messaging facility switched on, simply follow the instructions on this thread.

    Best wishes,

    Lucie

  • Thanks Lucie - I will give it a try.

  • Hi Jax,

      I am also 45 years old and have the BRCA2 gene.  Breast and ovarian cancer runs high in my family and I was tested and found out the results in 2010. I have since had my ovaries and tubes removed in May of 2011. It does put you into menapause but I deal with hot flases by taking evening primrose. It helps me a lot.  It is an herbal oil pill and helps with a lot of the menapause.  I have struggled with my weight for many different reasons and so that has put my breast surgery on hold and finally couldn't do the one they and I wanted which was the diep flap.  On 12th of Sept.  2014 I had a double bilateral masectomy with dermal flap reconstruction with implants.  It has been an emotional roller coaster for me .. I knew and would still have the surgery so the dark cloud is not hanging over me. They saved some of my skin and took away all the tissue and my nipples.  They sent it away to be tested and thankfully came back in the clear.  Even though it is an emotional roller coaster I would still do it all over again to not have to worry all the time.  I would get migrains when I had to go for mri's and mammograms. Not that I was worried about the doing the tests or going into the machine but worried about the resu6lts. 

    I am one of 6 and we have all dealt with it differently.  The oldest doesn't have the gene, the second to the oldest has had skin cancer and other health problems and has not been tested, thrird to oldest has battled stage 3 cervical cancer and don't want to be tested for the gene.  Then there is me. My youngest sister and my brother can not afford the tests as my family all live in america.  I have one cousin that has the gene and has had the surgery and is glad she did and another that has chosen to go for tests and deal with things as it comes.

    You have to see how you feel in your heart and what you are comfortable with in yourself.  I am here if you want to ask any questions or just to chat..

    I wish you all the best,

    take care

    LJJ