paplillary thyroid cancer Worried

Hello everyone just after some advice I'm 28 male had a partial thyroid removal 3 weeks ago had test results yesterday confirmed paplillary thyroid cancer 11 mm very small so Consoltant said just confused what happens next any advice would be much appreciated

  • Sorry for late reply hope your doing ok 

     

    I have appointment with Consoltant on Thursday I'm guessing to see what's  next hopefully nothing to concerning  struggling but this week just overthinking I guess   Thanks for reply 

  • Hi i am 9 days post op and doing well. I feel much better this time around, movement in my neck is much easier, don't seem to have the same swelling as last neither. 

    I have my post op appointment on 31st to get dressing and stitch removed. I am back at work on 30th after having the 6 weeks summer holidays off. 

    Hoping the left side comeas back as clear from pathology. Not sure when next bloods will be or RAI, i suppose i will find out more at my next appointment.

    Let me know how you get on at your appointment on Thursday, hope all goes well.

    Natalie x

  • Hello just update had my appointment over the phone as consultant had Covid ct scan was clear it had spread any were however had few reactive lymph nodes  got  appointment on 20th to have the rest of thyroid removed not sure if I will have radioidone treatment after but I Spode will find out hope your doing ok 

  • Hi there thanks for letting me know how you got on. Hope you are ok and not overthinking too much.

    I had my post op on Wednesday and found out that the left side also had a small area of cancer but papillary the right side was follicular variant of papillary. 

    Wasn't really expecting that result but it is what it is i suppose! Anyway we made the right decision to go back and remove the left. Luckily she removed some lymph nodes and these were fine so hasn't spread.

    I had bloods taken to check my levels and if i need to increase my dose my surgeon said she will give me a call.

    I am gutted that the feeling in my throat has not cleared so this mustn't be related to my thyroid after all that. I am on omeprazole for 4 weeks to see if that helps as maybe GERD. So we will see.

    Got to just wait now for an appointment from nuclear medicine about RAI. Earliest thay can do it after surgery is 5 weeks and ideally like it to be done within 2-3 months, so think i will be looking at October some time.

    Keep in touch and let me know how your surgery goes. Wishing you the best of luck.

    Kind regards.

    Natalie x

     

  • Hi there.

    Just been diagnosed with this too. Was a whirl whind or appointments and test. Consultant said had 3 nodules in thyroid 3cm in size and cancer has been detected.

    At review on Thurs i was sent for pre op assessment, bloods and ecg. Had CT scan of lymph nodes on Fri and surgery is booked for next Thurs.

    He said full thyroid will be removed possible some lymph nodes too. There may be a chance I need the tablet and some radiotherapy.

    I asked had it been caught early, his reply "no" but not to worry. He was quite surprised no symptoms had been displayed other than a lump 7 weeks ago.

    I havent really had time to process whole thing as its been quick moving and a shock.

    I try not to worry as in reality it is out of my control but its human nature to do so.

    Take care

  • Hello itwas a shock to me to with all the appointments and tests but quicker get done the better I think I only had left side removed first now going to have other side removed  but from what i experienced after the Op I only had minor pain for couple of days Then I felt fine other than Horse Voice which only come back and week go

     

    try and stay stay positive you will be on the mend sooner than you think 

     

     

  • Did they say there was a chance you would need radiotherapy or radioiodine therapy? They are two very different treatments. Radioiodine therapy is usually just a one-off and just involves taking a capsule. I never had radiotherapy so don't know much about that, but think it is a lot more involved and tends to be repeated.

    Hope all goes well with whatever treatment you need. It's hard not to worry. A cancer diagnosis is bound to be a shock. 

  • hello hope everyone doing ok just update had my op had the full thyroid removed.   phone consultation today to say the  ct scan I had before the second op shows might have thyroid tissue left there from the first  not sure if it's concerning or not so booked in for ultrasound scan next week fingers crossed nothing serious .

    hoping to get radioidne done soon to get it over with but look like scan push it further away 

     

    hope everyone's doing ok 

  • Hi, I had my right thyroid removed in October and cancer was found. I'm waiting for a second operation to remove my left thyroid follow by radioidone treatment. May I ask when you start your treatment? How long do you have to wait after the operation?

    Hope you are doing ok.

     

  • Hi there I am ok thanks. I have now been told that I won't be needing the RAI treatment as my nodules were just under the required measurements. However I have been for an ultrasound on my neck today as I am still having a feeling of something pressing on/stuck in my throat. While I was there they took 2 fine needle biopsies, one either side so just got to wait now and see what the results of those show. Not quite sure what they seen think one was a node and the other possibly residual thyroid tissue left over.

    I was told by my consultant surgeon that you can't have RAI for at least 5 weeks following surgery. Think they like you to have it within the first 2-3 months. Hope this helps.

    Take care and hope all goes well with your second surgery.

    Natalie x