Newly diagnosed breast cancer and feel numb, angry and scare

Hello,

Not quite sure what I'm going to write. 

I lay awake again all night tossing and turning with a million things running through my head and not knowing what to do.

 

I was referred by GP to breast clinic a few weeks ago and yesterday I went for my biopsy results . I was rang by clinic the night before telling me they had a cancellation and could see me the next morning. I knew it was going to be bad news.

Ive been told I've got a stage 2 ductal tumor 6cm oestrogen positive. Thats about all i remember. I had to go in on my own whilst my husband satbin the car with the kids - the oldest is covered head to toe in chicken pox and no one could have them for us.

I'm in complete shock and can't stop crying. I'm 41 have 2 young boys.  No family history of breast cancer. I'm so angry, in disbelief, terrified thinking I'm going to die.

I'm currently breastfeeding my 18 month old, and have been told I have to stop feeding for treatment.

I have checked my breats every know and again , so when I found a huge hard lump from nowhere in my right breast I was initially confused thinking it was something  breastbfeeding related. 

Now I have cancer.

I've got my MRI tomorrow and awaiting CT for the treatment plan.

I understand its chemo, surgery, radio and hormone therapy.

I can't look in the mirror at my body without crying.i can't look at my husband or boys without crying.

I don't know how to tell my parents.

I feel like I just want to wake up from this awful dream. Why has this happened. Why didn't I notice sooner. 

And I know this sounds really crazy but the house we live in - it was up for sale because the precious owners - the wife died of cancer in the house and now I have this horrible completely irrational fear I've caught cancer from the house.  That sounds bonkers I know. I don't want to die and leave my 2 boys. 

I'm bed sharing with my 4 year old as he's so poorly with chicken pox, I just nipped to the bathroom and he yelled out mum where are you. That make me cry.

I'm a wreck

Please help me xxxx

  • Hi Lisa 

    Hope your biopsies under MRI went well today- that's great they'll do thsr on a Saturday! 

    Hope you're not too sore after all that and are enjoying your prosecco xxx

  • Morning Gemma and hello Optimisic

    Everything you/we are feeling is understandable. This is A LOT isn't it! I have found myself going down rabbit holes and obsessing about things I see. I have a tiny, fatty lump in my left armpit, which I've had for 2 years. I was convinced this was something to do with the cancer and that cancer must have been there for years but it's just a tiny fatty lump. All the normal hormonal stuff is still happening to us and causing its own symptoms. Hopefully tomorrow your doc will reassure you that it's nothing to worry about.

    re foods, my rational brain totally agrees with optimistic and the doc and mine have only mentioned drug hormones and that I should take any meds containing these. My husband asked in an appt if I should be doing anything differently and doc said no. My irrational brain worries every time I have an egg or a latte! But the thing I'm most worried about is my blooming period every month. I asked why they don't give Womens with hormone positive cancers drugs to block the hormones immediately on diagnosis (eg tamoxifen for me) and there is a good reason it seems. They need the final pathology report of your surgery and this can be skewed if you start taking the hormone blockers first. That's if the plan is for surgery pre-chemo.. I don't know about when it's chemo first.
     

    i found yesterday's tests hard and cried on several people!They we're all very nice. From the colour of my boobs they can see they have already had a lot of tests! It wasn't the procedure it was that they can only do one boob at a time so I have to wait for another appt in 10 days time to get the left biopsied (again). That will be 7 areas tested in total. They said Brexit had caused issues with ordering equipment needed for this particular form of biopsy so it was harder to get hold of some materials needed. It's just so many tests and so much waiting. I feel better today. The Prosecco must have helped :) 

    hope you feel better after tomorrow and that your kiddies are a nice distraction from the scanxiety.

    thanks for all the info re chemo and how you're finding it optimistic. I hope you are feeling good. So good to hear from someone who knows. Did you have a port or picc line inserted for chemo?

    have a good day everyone xxx

  • Good evening everyone 

    Hope you've had lovely weekends, and kept busy .

    Hi Optimistic , thank you so much for taking the time to share all thar information and advice . I've read your post a few times now and it really does help to hear in detail from someone who gone through and going though the same process, thoughts and emotions. Perhaps I'll stop feeling do guilty with the lattes and will start having scrambled eggs for breakfast now!!

     

    Lisa I'm sorry to hear you've needed 7 biopsies. Your amazing for getting through all that. I somehow fainted during mine it freaked me out so much!!!

    It's a pain having to wait for all the tests and investigations to be completed before any treatment but completely understand why they do it that way. Like you I just want it taking out like yesterday! 

     

    I'll let you know how the armpit check goes tomorrow.

    Hope you don't have to wait too long for biopsy results

     

    Xxx