Hello! How are you? I messaged you asking how your ultrasound went but you aren't notified when you are sent a message so I'm thinking you haven't seen it? Hope all went well and you are doing OK?

Yes final chemo tomorrow! Cannot flipping believe it. I've got my t shirt, a sparkly long skirt and glitter nail polish on! :) yay!

You will be there before you know it. 

Had my MRI today. Was fine. Mammogram and US on Friday. Next Tuesday I'll get results. Eek! 

Thank you very much for thinking of me and your message. I hope you have a good week. How are your side effects? 

Speak soon my lovely xx

Hello! 
 

I've just replied to your message - I didn't realise that you don't get a notification when someone sends one!

Enjoy wearing your glittery outfit tomorrow, will be thinking of you xx

Hi Vicki,

Good luck for the scans today

xx

Thank you! I'm done. Im out already. My doc said he has seen my MRI scan and it all looks very good. Said the two parts of invasive cannot be seen. I'm so happy and relieved!! I imagine I'll still need a mastectomy because of the DCIS part, but I just wanted to know the invasive had got smaller or gone. 

Relieved for now dot com

Xxx

Hello... hope you don't mind me messaging out. I had my first dose of paclitaxel on Tuesday . 11 to go

How where you on it? I felt fine Wednesday but Thursday & today really dodgy tummy 

Just interested to see what lays ahead for me 

x

Hello

Well done on getting your first one under your belt!

The prospect of 12 weekly sessions depressed me greatly when I started. However, I can hand on heart say that the weeks have flown by. My biggest side effect has been diarrhoea and its been pretty much once a day but always manageable with imodium. If I've had to go out for an event etc I have taken imodium beforehand and that works well. My tiredness remained the same throughout and certainly didn't get worse. My only tip would be if you can get some cold gloves and slippers then wear them every time you have your infusion. I wore them straight from the freezer for the full hour having paclitaxel. Touch wood, I have not had any issues with hands or feet. I've had smoothies full of fruit and veg every week and not had a bad time at all on paclitaxel. 

Wishing you all the best on it. You will get through it just fine. I was delayed a couple of times due to low neutrophils and just self injected with filgrastim which brought my levels up nicely. Don't be alarmed if your levels drop as well. Par for the course for a lot of people. Xx

Thanks for the tips... yes I've had a touch of the runs so heads up on that one . I'll stock up on Imodium !

Im also going to buy some if the frozen smoothie I've read about . Can I also ask( sorry...) when did you lose your hair or I'm I guessing we're all different?

many thanks again x

Ask your nurses to prescribe imodium. Don't pay for it! I ended up needing loads so getting it prescribed much better :)

Frozen smoothies that are good are m and s green smoothie mix and also Kale Kick is a pre mixed frozen one you can order in.

I lost my hair 20 days after my 1st EC chemo treatment. Have you had EC chemo? My hair started growing back on paclitaxel and now I have a v short fuzzy head all over :) during the time I had barely any hair I wore a wig that was custom made and glued to my head. 

x

I'm just on paclitaxel x12 and trastuzumba 3 weekly - 6 months

if that makes sense. Still very much the new girl so that's why I'm asking random question

Thanks again x

No problem - ask any question you like anytime :)

Yep I am on phesgo (herceptin and perjeta) every three weeks also. 

I suspect you may keep your hair if only having weekly paclitaxel. It is less than a regular half dose of chemo. Fingers crossed. xx