Hi Jane , I’ve just fell upon this post , I have just been diagnosed with grade 3 TNBC , I’m absolutely driving myself mad .... I’m in for my lumpectomy tomorrow and reading it up it doesn’t sound very pleasant . Im really pleased your nearing  your 4 th year gives me a lot of hope . I’m really thinking about asking for a mastectomy on my right breast or even having both off ! I hope your still keeping well 

Hi Anxiouslady,

I just wanted to wish you all the very best for tomorrow. I have had 2 bouts of breast cancer in the past 9 years. The first time I had a lumpectomy and, a year later, I had a double mastectomy. Both are 'doable', so please try not to worry yourself too much.

Don't forget to let us know how you get on.

Kind regards,

Jolamine xx

Hi 

just wanted to wish your well with your treatment. I was diagnosed with tnbc last Jan and so far all my treatment has gone really well although it wasn’t easy. There are positive stories and outcomes - my sister had tnbc 10 years ago and is doing great. So hopefully that will be the same outcome for us. 

Good of luck with it all

xxxx

Thankyou Rach , my chemo starts the 8 th Feb , absolutely petrified about the whole thing , got 6 chemo & then 15 Rads , going to be a long summer 

Please try to keep positive. I was diagnosed at 34, nine years ago with TNBC at grade 3. After a lumpectomy, tough Chemo and then radio, I spent years going through the emotional experiences that each follow-up appointment provided. I’d wonder if I’d ever see my children grow up and imagine terrible outcomes. Yet now I sit here looking back at the past years and feel so much calmer. I think it helps to hear the positive stories and so I wanted to give you the hope that I wish someone had shared with me in my times of great anxiety and sheer terror. It is possible to fear the worst and then watch the years go by until you finally feel free of the anxiety. I’m going to see my fourth breast case surgeon tomorrow and I no longer fear the appointment as much as I used to. Positive stories are out there and I’m one. Just think how much better the treatment is now for you. My friend is three years on from a double mastectomy and she is also feeling great too. Sending you much love and please see hope ian out there’s in stories like our’s. 

Hi Faith,

Welcome to the forum and thank you for sharing your good news with us. It is always helpful for us to hear about positive stories related to breast surgery. 

I was diagnosed with Mucinous cancer 9 years ago and  had a second bout the following year. The first time I had a lumpectomy and, the second I had a double mastectomy. I have been clear since then until this year, when I have been diagnosed with a melanoma on my face, which is due to be removed on Monday, 4th March. I feel confident in my care team and hope that this will go as well as my previous operations.

Kind regards,

Jolamine xx

Hi Anxiouslady,

I am just wondering how you got on with your first chemo session on 8th. I hope that you managed it without too much difficulty.

Kind regards,

Jolamine xx

Hi, I’m actually 2 in now ! My third is 22/3 and I’ll be half way through . I’m doing ok , I hate the first week it’s vile ... dizzy , eye sight not good , vile taste in my mouth , memory absolutely rubbish , but get that week out of the way and I’m fine . 

Hi Anxiouslady,

I'm glad to hear that you are coping, despite the challenges that chemo sets you.

Kind regards,

Jolamine xx

Hi,

My wife was diagnosed with Grade 3 Triple Negative BC in June 2016, but tragically she was one of the unlucky ones and was taken from us in November 2018 after the illness spread through her lymph nodes onto her lungs.  Her journey was a very difficult one, and looking back now there was a lot of false hope along the way, we had moments when we thought things were getting better but then suddenly things went against us.  She had 16 lots of chemo, 8 blood transfusions and a whole 'Dolly Mixture' of other pills and medications along the way. I know that chemo bought her time that she most certainly wouldn't have had without it, but I also believe that the chemo caused so much strain on her body that in the end it probably contributed to her passing away!

However, every single person is different and I know that there are others out there who have exactly the same cancer as my wife, but their body make up will be completely different and they may have a better outcome because the cancer may behave differently and their body may tolerate and accomodate the treatments much better than what my wife did.  After what I've seen on my wife's cancer journey it is clear that there are many treatments available for Triple Negative, but they are mainly chemo based, or in some circumstances immunotherapy or radiotherapy could also be options. 

Even though there have been huge advances in cancer research, understanding it is very much still in its infancy (quote by my wife's oncologist).  It is all very much a lottery, and even though my wife was unlucky with the illness she did remain positive throughout most of her journey because she believed she could beat it, it was only in the final two months that she started to really suffer and it became obvious that she was then fighting a losing battle.

Everyone has their own story whether it be good or bad, but never give up hope and always stay determined to get through it for yourself and your family and friends.  Yes, it is sometimes hard to stay positive, I've experienced this as a husband too, and I know there were times when my wife struggled to stay positive as well (not that she ever showed it very much). 

Just keep going, try your best to be strong and stay positive.  Yes, I lost my wife and that's scary reading for other ladies going through this, but my that was my wife's individual cancer journey and her's alone. Just because my wife lost her battle with Tripe Negative it does'nt mean that others will too.

James x