Immunotherapy or not?

I had surgery in June to remove left lower lung, all went as planned thankfully, I've now finished my course of chemotherapy ∆ wasn't as bad as I feared but now have an even bigger decision to make.... immunotherapy for twelve months.  I'm in such a quandary because of all the possible side effects, some of which would be irreversible should I get them meaning the rest of my life taking steroids and insulin.  I know not everyone gets them but I can't weigh up whether or not the risk of having side effects is worth the relatively small % of the benefits of the treatment.  I'd appreciate the experience and views of others please.

  • Hi Roberta

    I've been having cemiplimab immunotherapy for metastatic skin cancer for the last 9 months. I too was worried about possibility of serious side effects but the majority of people do not get them. You will be very closely monitored for symptoms and have regular blood tests and scans. You will be given a 24 hour contact number.  The plus side dor me cancer progression has been slowed down dramatically with some tumours no longer detectable. The down side is fatigue and skin rash both of which are manageable. The drugs for lung cancer are in the same class,  pembrolizumab seems a common one and is well documented here if you do a search. Do not underestimate the risk of cancer returning from just a few residual cells which the immunotherapy treatment can help eradicate. In my opinion if you are offered the treatment take it. If it does not agree with you, you can discontinue it. Hope this is of some help in making your decision.

    Ed

  • Thanks for your positive reply, I don't have to make a decision immediately thank goodness as treatment can be started any time in the next twelve weeks.  Also at 71 I need to decide on quality of life over quantity