Hi there ...

Just wondering how it went .. sending you all a vertual hug  xx

Hi

I've just delivered him home.  It's taken since 9.00 am this morning.  Doctors eventually agreed to discharge but he had to agree to not call 999 if there was a problem.  That was fine for him as he has no intention of returning to hospital.  We have medication but I've still got to get a discharge letter as apparently there was a paragraph missing.   We have a family rota set up for the short term so have to get some other help on board.   

I didn't know it could be so hard to leave hospital.  He is home.  We know it will possibly be just a week at most but it's where he wants to be.   Thankyou for your encouragement.  I needed someone to tell me to go for it!   I hope you are okay.   Xxx

Woo hoo ... well done and high 5 to ya .. it sounded harder then braking out of prison .. but I'm not sure they can stop you calling 999 .. I'd deff get advice on that .. hopefully that's one [@davek]‍   can answer ... 

But good on ya .. I hope your dad gets a week or however long of loving memories with his amazing family ...  vertual hugs all round ...  Chrissie xx 

P S ...

I'm pretty sure they can't stop you from calling 999 ... it doesn't mean he has to go back in .. but if something happens they would have to come out to him ... I'd call it anyway if needed ... don't let them scare you ... the bullies ....  xx

It did seem very strange to me but for him I don't think it would be a problem.  Obviously for many other people it would be a concern.  I may look into it legally as it may be useful to know for the future.  

To be honest, I’ve not heard of that “promise not to ring 999” malarkey before. Besides, Ambulances are run by a completely different NHS Trust under totally different management and staff. 

It sounds like they were doing their best to change your Dad’s mind. It isn’t uncommon for patients to leave against medical advice and a lot of doctors would agree that an acute hospital isn’t an ideal place for end of life care.

I hope you manage to get your Dad’s care at home arrangements in place. Some areas have hospice at home services but coverage is patchy.

Best wishes - I hope you all have a relatively peaceful night.

Dave

Just wondered how it's going ... you know your dad must feel really proud of you ...

It would make a brill film ...  instead of prison break ... hospital break ... sending you all a vertual hug... please let us know how you go ... always here for you ...

Chrissie xx

Hi

Thank you.  It is tough.  I think he sort of thought that being at home would ease his discomfort which of course it hasn't.  He is happy to be home  though.

The practical things that we've done haven't been quite right but we're learning and I'm getting some different bits of equipment tomorrow.

Despite this being such an awful thing to experience I can't believe how much good has also been experienced.  Life is a strange bag of tricks 

Thank you so much for your messages of support and I hope you are okay.  Xxxx

FYI I'm a lawyer, a health worker can't refuse to help if your dad needs medical attention or they could be charged with a crime and or struck off. 

Okay.  That is interesting.  At the moment we can't get a visit from anyone before 8th November which is very likely to be too late.  I am going to the GP tomorrow but with no power of attorney in place, I don't think they will see me.  It's worth a try though as he does need some different medication.   We knew it was a risk getting him home.  

I feel more confident with that information.  Thank you.