Tablets for 5-10 years after Radiotherapy

Morning everyone on this wet wet morning here,

im off to get my dressings changed today,has it really been 7 days since they took that C out of my right boob...

live been researching the tablets as have been told I will have to take Letrazole,but found that the one with the least side effects is Femara? Any advice or thoughts on this please ?

Jackie xxx

  • You know it makes sense !! Rest or I'll be after you lol 

    would rather stay in but guess when I get there I'll change my mind!! 
    Rest hun xxx

  • Hi Mary,

    I was on Femara the pure Letrazole but GP got stopped from prescribing them due to cost so on nothing at the moment..... seeing oncologist on Monday and see what she says!!

     

    Ladies in other areas can have them.... postcode lottery....

    xxx

  • Hi Jackie, just had a look and they are about £28 a pack I am on Anastrazole which is also an aromatose inhibitor and saw an article on the news saying how effective they were and cost about 4p per tablet. That's a massive difference. Due to your MS I expect this is why you have to be on the Femara. Hope you manage to get the consultant to sort it out for you. It will be more costly in the end if it makes your MS worse.

    Good luck with the appointment xxx

  • Thanks Mary,but not holding out much hope at all..... somebody has said Accord is ok but just worried as i was fine on Femara and now on nothing and no one will tell me whst is the closest to,Femara,not even the Pharmacist....what's annoying is my GP,and oncologist happy for me to be on them but the Health pen pushers have said no due to the cost....grrrr 

    So it may be a fight,I'll have to write to Boris lol 

    Will let you know how it goes xxxx

  • Will keep my fingers crossed for you.
    I have been getting some aches and pains in my joints at the moment which I am putting down to Anastrazole. It's documented as one of the side effects, along with the hot flushes (which I am also getting) Oh well only another 4 years and 9 months to go

    Enjoy your night out. I have wine and Strictly Come Dancing final to watch so that's me sorted xxx 

  • Thanks for replying Jackie and sorry to hear you have MS also.

    i have psoriasis and the slightest thing/stress triggers it

    my scalp has been bad since surgery I have heard so many different stories of Radiotherapy working on the spot, then nasties (my name for c cells)being found in other areas. Then the bad side effects of Tamoxifen I'm so confused oncologist tells me my biopsy % was 10-12 intermediate.  If it was lower 8% I wouldn't be offered any follow up treatment? I just don't know what to do.

    i just want to go back to work and forget about the last 4mths. It's been hard I lost my dad last year to Lung Cancer & watched him waste away I think that's why I can't seem to decide what's best option for me.

     

    thank You for your reply & hope you manage to get the  tablets you should be taking
    XxX

     

  • Hi Angel,

    Sorry I didn't reply last night but was out on a girls Christmas night out!!

    I too have psoriasis in my head due to all the worry of it all......

    They get the tumour out but can never be sure that a little *** has broken away so hence the radiotherapy to make sure all is gone....I was petrified about it but it's only 2-3 minutes and totally painless....I slapped on cream everyday which I kept in the fridge and I had 20 sessions and it's a breeze to do and the staff were amazing and kind.

    I know it's got to be your decision but for me it was a no brainer as i dont want it back.....

    Loads of love hun,here if you want to chat .

    So sorry about your dad I lost mine too and miss him so much 
    xxxx

  • Hi Jackier77,

    Thanks for replying, hope you had a great evening with

    the girls.

    Thanks for the advise are you now on tablets?

    Side effects?

    what do you advise and are you being monitored regularly ?

    Angel68

     

  • Hi Angel,

    Yes had a brilliant night thank you and suffering a tad today lol  

    I was on tablets but GP was stopped from prescribing them as they were to expensive and they didn't give me any side effects,seeing oncologist tomorrow as she was going to fight for me to stay on them but not hopeful so I will be asking tomorrow if I don't take anything what's the percentage of it coming back? I'm not going to take a generic brand with bad side effects....

    Its a postcode lottery as other parts of the country still prescribe them .....so wrong...

    So it's wait and see until tomorrow then Tuesday is Dexa scan!!

    Love Jackie xxx

  • Hi Jackie77,

     

    Its so so wrong, it should be if you need them you get them, they are messing with people's lives.

    Do you mind me asking where in the UK do you live ?

    I have everything crossed for you, you have a lot going on this week.

    keep us posted on how things go for you this week Xx

    Wishing you good things

     

    Angel68