sorry for the late reply. It's difficult to make decisions when you have an illness but I'm sure your medical professionals do what's best for you, it sounds like your having a difficult time at the moment. Darrell, has been home for a short while today and enjoyed his Sunday dinner. From tomorrow, his counts will drop, so he will be in isolation but he's ok
Hi Lindsay, sorry Darell has an infection I bet it's one thing after another for you, hope he keeps feeling well and keep getting stronger,this MDS is a *** in that's it's quite rare and not many people understand it and how you feel when you tell them you are suffering from it, it's a lonely place to be sometimes,anyway I had blood transfusion yesterday and am waiting to hear from consultant what the next step is to be once he,s had this meeting with expert in MDS,still having three injections every Thursday morning.I hope you are looking after yourself it must be so difficult for you so please take care and it's so lovely to hear from you,love for now Chris xx
